Inflammatory bowel disease (IBD) Archives

03 Sep 2024

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Not every illness is visible

Awareness, Living with Neuroendocrine Cancer, SurvivorshipBowel surgery, Chemotherapy, Crohn's Disease, Diarrhea, Inflammatory bowel disease (IBD), Invisible illness, Radiotherapy, Stomach cramp, Surgery, Ulcerative colitis

I personally don't see myself as 'disabled' but I do have an invisible illness. I can see it and I don't necessarily care if others don't. I'm fit, can walk for miles, I even look quite healthy. However, I live with the consequences of Neuroendocrine Cancer. These consequences differ from person to person but I know that some people with this disease have even met the criteria to be officially classed as 'disabled' through government schemes. Judging by what I read, I have less debilitating issues than others, so I feel quite fortunate. That's not to say I don't have any issues at all - because I do!…

Please flush after use!

Awareness, Diet and Nutrition, Humour, Living with Neuroendocrine Cancer, Patient Advocacy, SurvivorshipBowel obstruction, Carcinoid crisis, Carcinoid syndrome, Diarrhea, Flushing, Inflammatory bowel disease (IBD), Loperamide hydrochloride, Quality of LIfe (QoL), Stomach cramp, Surgery

Early in my journey, I was in a public toilet, the sign said "Please flush after use". I tried my hardest but my face would not turn red. I then clicked what the sign meant! OK, that did not happen but it does make for a good intro to the blog title. Over the years, I've read so many stories and answered so many questions about the quite natural act of using a toilet (.....some more repeatable than others). I think if there were a 'Bachelor of Science degree in Toiletry', I might pass with First Class Honours. I jest, clearly,…

Neuroendocrine Cancer Nutrition Series Article 3 – Gut Health

Diet and NutritionAntibiotics, Carcinoid syndrome, Carcinoid tumour, Diarrhea, Diet, Dysbiosis, FODMAP, Gut, Gut Flora, Hydrogen breath test, Inflammatory bowel disease (IBD), Lactulose, Malabsorption, Midgut, Neuroendocrine, Neuroendocrine cancer, Nutrition, Probiotic, Proton pump inhibitors (PPI), Small intestine bacterial overgrowth (SIBO), Small intestine NET (SI NET), Surgery

In this article, I'm discussing the use of probiotics to combat several issues including the general health of the 'gut' including IBS like symptoms, and the potential issue of small intestine bacterial overgrowth (SIBO), all of which may be related in some way to Neuroendocrine Tumours. That said, these issue may be regular conditions, nothing to do with NET. Nutritional issues are one of the biggest challenges affecting most Neuroendocrine Cancer patients and nutrition and gut health can become more important issues. It is also a key factor in maintaining a decent quality of life and for most countries without…

Tag: Inflammatory bowel disease (IBD)