Tag: Peritoneal carcinomatosis

A form of cancer affecting the peritoneum, the thin membrane surrounding your abdominal organs. Peritoneal carcinomatosis most often develops when other abdominal tumors spread to the peritoneum, leading to multiple new tumours on the surface of this membrane. If you get peritoneal carcinomatosis, it generally means that your abdominal cancer is in an advanced stage. There are also very rare cases of primary peritoneal carcinomatosis, which begins in the peritoneum itself. These cases usually happen in women who are at high risk of developing ovarian cancer.

Since peritoneal carcinomatosis most often develops when existing cancers spread, the main risk factor is having other advanced cancers, including:

Appendix cancer
Colon cancer
Rectal cancer
Pancreatic cancer
Gastric cancer
Neuroendocrine Tumours in these areas

09Oct 2020 by Ronny Allan 5 Comments

Paul Hunter – Snooker champion and Neuroendocrine Cancer patient. Died 9th October 2006

Inspiration

Paul Hunter, three-time Masters snooker champion was just 27 when he fell victim to Neuroendocrine Cancer at the peak of his powers and popularity. At just 25, he'd won the third Masters title, a feat which, at the time, had been achieved by only two other players in the world. He was dubbed the "Beckham of the Baize" because of his chiselled good looks and long, blond hair (a reference to famous footballer David Beckham).This young age is unlike the majority of Neuroendocrine Cancer patients who are diagnosed in their later years. I took to the internet to find out more. Although there are many sites and articles confirming the link to "Neuroendocrine Tumours" in the annals of the internet, many sites state "stomach cancer" (some as late as 2017)…

17Jul 2018 by Ronny Allan 8 Comments

Neuroendocrine Cancer: Fibrosis – an unsolved mystery?

Living with Neuroendocrine Cancer, Treatment

Update as at 3rd Feb 2021. Thanks to a grant of $1.2million from the NET Research Foundation, a team led by UK and Netherlands will explore the underlying molecular cause of mesenteric fibrosis, as well as develop new diagnostic and imaging tools to treat the condition. This is great news. Read more here. BackgroundIt has long been observed that certain Neuroendocrine Tumours (NETs) are often associated with their ability to secrete hormones and these substances are thought to be responsible for the collection of symptoms which include (but not limited to) diarrhea, flushing and wheezing. One of the lesser known aspects of this disease is the development of fibrosis, both local and distant. These fibrotic complications may lead to considerable morbidity. They can also result in incidental diagnoses of NETs after…

Will flesh out and tidy up in due course but this is essentially a trial just for somatostatin receptor positive advanced bronchial NETs. Starting now or very shortly. Brief Summary: This phase II trial studies the effect of lutetium Lu 177 dotatate compared to the usual treatment (everolimus) in treating patients with somatostatin receptor positive […]

The GRAIL multi-cancer early detection test study

Edit 13th Aug 2021. Major Announcement from UK. The NHS will today launch the world’s largest trial of a revolutionary new blood test that can detect more than 50 types of cancer before symptoms appear. The first people to take part will have blood samples taken at mobile testing clinics in retail parks and […]

Neuroendocrine Tumors: Targeted Therapies – Update from NET Specialist Diane Reidy-Lagunes, MD, Memorial Sloan-Kettering Cancer Center – August 2021

Background. For those who want a quick run through of Neuroendocrine Tumors from diagnosis to selection of treatment, about the treatments themselves plus what is the Future Directions in the Management of Neuroendocrine Tumors. There are 8 episodes, and each is around 3-5 minutes long. I personally found them very useful and in a language […]

UK Travel Insurance – are cancer patients a cash cow?

OPINION FOR UK NEUROENDOCRINE CANCER PATIENTS (probably applies to all cancer patients in practice). Some of my findings are potentially applicable in other countries. Nothing in this article should be interpreted as a recommendation to travel or use any company or service mentioned. This is based entirely on my own experience and decisions. Background. Ronny […]

I thought I was going to die. I didn’t

I thought I was going to die, I didn’t Opinion. It can be extremely hard to face a diagnosis of cancer and with that, an uncertain future. After treatment, there’s worry about the cancer growing or coming back after a period of stability. BUT there is also the thought of dying of cancer. I think […]