Neuroendocrine Tumours (NET) – Vitamin B12 (Cobalamin)

Neuroendocrine Tumours (NET) – Vitamin B12 (Cobalamin)

Before you read thisThis information is designed to help you understand how vitamins work in the body and how certain NET-related factors might affect them. It is not a substitute for personalised medical advice. Every NET patient is different — tumour type, treatments, surgery, symptoms, and nutritional needs can vary widely.If you have concerns about vitamin levels, supplements, or symptoms, please speak with your NET clinical team. They can assess your individual situation and guide you safely.   Vitamin B12 is a water-soluble vitamin.  Unlike fat-soluble vitamins, they are not stored in your body long term. They enter your bloodstream,…
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Medical Stories – Neuroendocrine Tumors (NETs): Anthony’s Story

Medical Stories – Neuroendocrine Tumors (NETs): Anthony’s Story

Great patient story from Anthony and Amy featuring well-known US NET specialist Dr Pamela Kunz. Some of you will have heard me or read one of my posts, emphasising the importance of patient stories.  This story encompasses all the strongest areas for awareness but also explains a classic NET journey for others to hear about.  It's wonderful to hear the voice of caregiver Amy as these things tend to impact on close family too.  I hear that strength come through in her voice and I'm sure Anthony appreciates that.  Anthony is a strong too, this guy plays soccer, tennis, he runs…
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Diabetes – The NET Effect

Diabetes – The NET Effect

Updated January 2026Originally published September 2018. My chest infection is now settled, as too is the excitement and apprehension behind my first ever Ga68 PET - the outcome of that is still a work in progress. Earlier this year, my thyroid 'lesion' on watch and wait was given a 'damping down' with the prescription of a thyroid hormone supplement but I await a re-ignition of that small bush fire downstream. Bubbling behind the scenes and clamouring for attention is the spiking of my blood glucose test results and I was very recently declared 'at risk' for diabetes with a score…
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Ryan Gonzales – wrestling with Pancreatic Neuroendocrine Cancer

Ryan Gonzales – wrestling with Pancreatic Neuroendocrine Cancer

Great story from Ryan who was diagnosed with stage IV Pancreatic NET in 2022.  Ryan is a wrestler and a wrestler coach.  He's therefore used to facing tough situations.  His podcast sponsor has used some fine words which I will leave you to read.  I see many patients facing up to these situatons on a day to day basis but I think it's great that Ryan is telling his story to help others. Ryan is married with 4 children, so, like many of my readers, he has a lot to live for. I wish him the very best as he…
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From Whipple to Waikiki by Jerry Chezick. Surf’s up!

From Whipple to Waikiki by Jerry Chezick. Surf’s up!

An essay by Jerry CrezickJerry is a Pancreatic Neuroendocrine Tumor (NET) patient recovering after a Whipple operation carreid out early 2022.  He soon realised he had a big challenge on his hands.  Read his story of recovery helped by learning to surf!  First posted in my private Facebook patient support group.  Gerry kindly agreed to let me post here. Honest, open and inspiring stuff"Finally I realized, I had to become the World Expert on MY Body"I've recently passed the 2-year anniversary of my Whipple.About 9 months before, I experienced a total knee replacement and figured, if I could endure that…
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