11 Aug 2025
By Ronny Allan
0 Comments
I may look well, but you can’t see my battles!

I may look well, but you can’t see my battles!

Patient Advocacy, ,
As I ponder my annual surveillance this summer and wonder what will be discussed, I also think about how far I’ve travelled and what I have been able to do.  It’s more than I thought I’d be able to do, I didn’t expect to still be here. Often, I feel lucky.  Perhaps an odd thing to say when I’m living with Stage IV cancer.  But those cards were dealt in 2010, and I now play with a new deck where I do have some control over how those cards are played.  As long as it’s not a flush! No pity please.…
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07 Aug 2025
By Ronny Allan
0 Comments
Sometimes you gotta climb that hill because it’s a better view!

Sometimes you gotta climb that hill because it’s a better view!

Living with Neuroendocrine Cancer, Sometimes you gotta climb that hill!, Survivorship, Travel with Ronny,
For those who are not familiar with my "sometimes you gotta climb that hill" series, let me explain one important thing before you read. These posts are metaphorical posts. The "hill" represents a challenge, often one that people with cancer have to face. It is not a blog about physically walking up a hill - although I do use my outdoor challenges to get the point over (plus many of my followers prefer my exploits to my technical articles!). I always get a lot of personal satisfaction and self administered mental health treatment by taking part, and that is also…
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29 Mar 2025
By Ronny Allan
5 Comments
50 years of marriage – in sickness and in health

50 years of marriage – in sickness and in health

Inspiration
When I was diagnosed with metastatic Neuroendocrine Cancer in 2010, there's a lot of milestones I doubted I would reach. One is today and I can now tick off another and be thankful for reaching it. I have been married to a kind and beautiful lady for 50 years today - 29th March 2025. I've written a lot about so called 'cancerversaries' but real life anniversaries are so much more meaningful. The former is really about survival but also inspires hope. The latter is also about survival in this modern age but it is also about love and thankfulness. I'm…
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06 Mar 2025
By Ronny Allan
1 Comment
Health Union Accredits Ronny Allan as a Certified Patient Leader – February 2025

Health Union Accredits Ronny Allan as a Certified Patient Leader – February 2025

Awareness, Inspiration, Living with Neuroendocrine Cancer, Patient Advocacy, Survivorship, , , , , ,
  Health Union accredits Ronny Allan This was announced in summer 2023 but it took me a while to engage due to my many commitments (including some big personal stuff to sort out)  I had a false start, many things took priority for a while but early 2025, I was encouraged to complete it and finally crossed the line in February 2025. Read my Facebook announcement of certification -  click here. My formal certificate was recently received, see below!  Health Union Acquires WEGO Health - WEGO Health WEGO Health had the largest network of patient leaders in the world, clearly…
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14 Feb 2025
By Ronny Allan
1 Comment
No-one is ever alone on RonnyAllan.NET

No-one is ever alone on RonnyAllan.NET

Patient Advocacy, Survivorship
On February 14th, I'm so lucky to have Chris to celebrate Valentine's day.  I know some people live alone and for some that is their choice. But I also know some don't have that choice, perhaps they are a NET patient who lost their partner, or a partner who lost their loved one to NET.  My heart goes out to those today.  I have a private group where people can ask questions about NET which is open 24/7 365 days per year. No-one is ever alone in this group. I may be sleeping if you contact me on my public…
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14 Jan 2025
By Ronny Allan
8 Comments
Neuroendocrine Cancer – If you can see it, you can detect it!

Neuroendocrine Cancer – If you can see it, you can detect it!

Living with Neuroendocrine Cancer, Survivorship, , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , ,
Updated December 2025 Background Scanning is a key diagnostic support and surveillance tool for any cancer.  Even though you have elevated bloods or urine (....or not), a picture of your insides is really like a thousand words.... and each picture has a story behind it. Scanning can be a game changer in the hunt for tumours and although scans do not normally confirm the cancer type and grade, they certainly help with that piece of detective work and are key in the staging of the cancer. When I read stories of people in a difficult diagnosis, I always find myself saying 'a scan…
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24 Dec 2024
By Ronny Allan
4 Comments
A Christmas 2024 message from Ronny

A Christmas 2024 message from Ronny

Patient Advocacy,
Background to 2024  I've only ever sent these on Facebook but since last year, after some challenges, I wanted to make sure I covered anyone who supports my sites via one channel whether it is Twitter (X), Facebook, Newsletter or direct from a subscription to my website.  All of the outlets above have kept my viewing figures high, I guess I can't complain about a 2024 total of over 285,000 blog hits (so far), a figure higher than 2023.  I've had a lot of personal issues to deal with in 2024, including some strange health stuff, so I'm delighted this…
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30 Oct 2024
By Ronny Allan
1 Comment
Piss off cancer – I’m 69.5!

Piss off cancer – I’m 69.5!

Inspiration,
I started doing the “Piss off cancer” series when I got to 65, mainly because I initially thought I wouldn’t make that age.I was 54 years and 9 months old at diagnosis on 26th July 2010.  For the first few months, I had no idea what the outcome would be.  What I did know at the time, given the final staging, grading, and other damage that was accumulated via various tests, checks, and scans; is that my body had been slowly dying.Without intervention I may not be here now to tell you this tale and who knows what would be…
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25 Sep 2024
By Ronny Allan
0 Comments
Sometimes you gotta climb that hill, even if you don’t want to

Sometimes you gotta climb that hill, even if you don’t want to

Inspiration, Survivorship, Travel with Ronny,
When I was diagnosed, I was very compliant with my doctors and nurses.  Whatever test they wanted, I'd cooperate. Whatever hurdle they wanted me to jump over, I would jump.  I always had questions though, I find an inquisitive mind helps with coping. That's not to say I enjoyed each experience but what I knew it was required to move onwards to the next step - everything was on the critical path.  In particular, the liver biopsy was a challenge but totally necessary to get to the diagnosis which would then dictate treatment and prognosis.  Surgery for Stage IV small intestine…
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17 Aug 2024
By Ronny Allan
9 Comments
Don’t worry, I really am OK!

Don’t worry, I really am OK!

Living with Neuroendocrine Cancer, Patient Advocacy, Survivorship
I read an interesting article in the BBC entitled "Why people keep quiet about their battle with cancer" and a similar article from Fred Hutch in USA "Why people keep quiet about their battle with cancer" is also interesting reading. The usual range of reactions and fears can be found in these stories and it made me think about my own experience. I think there are two key themes involved here: Talking about Cancer Managing your illness Firstly, as I have an international audience, I thought I'd introduce what might not be a well-known British trait - the 'stiff upper lip'.  For the uninitiated, I'm…
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27 Jun 2024
By Ronny Allan
0 Comments
Sometimes you gotta climb that hill …….. twice!

Sometimes you gotta climb that hill …….. twice!

Inspiration, Patient Advocacy,
Climbing hills are tough, but within my limits, I make the effort and always enjoy the end product, the views and the feeling of accomplishment.  The lead picture is a before and after, 2018 and June 2024.  Some things are different including dress choice, the weather and my hair colour! Believe it or not, at 68 years old, I'm fitter on the 2024 version! In some ways, my diagnosis and subsequent tests and checks were much easier than the treatment, particularly the surgeries.  My first one was really tough with an 18 day stay and at times, I felt quite…
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29 Apr 2024
By Ronny Allan
6 Comments
Happy 10th birthday to my Blog Ronny Allan – Living with Neuroendocrine Cancer (RonnyAllan.NET)

Happy 10th birthday to my Blog Ronny Allan – Living with Neuroendocrine Cancer (RonnyAllan.NET)

Awareness, Humour, Inspiration, Living with Neuroendocrine Cancer, Patient Advocacy,
On 29th April 2014, I release my first post entitled "What's it all about" i.e. why on earth am I writing a blog! It was simple in those days, I just wanted your money :-)  I was fundraising as many diagnosed cancer patients and their supporters frequently do. In my own case, I was fundraising for my local NET charity who were raising money to support NET patients in various ways.  Their latest challenge at that time was getting access to intraoperatrive radiotherapy machine (IORT), something that could help 'blast' small cells and tumours in places near to the 'operative…
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31 Mar 2024
By Ronny Allan
0 Comments
From Whipple to Waikiki by Jerry Chezick. Surf’s up!

From Whipple to Waikiki by Jerry Chezick. Surf’s up!

Inspiration, , ,
An essay by Jerry CrezickJerry is a Pancreatic Neuroendocrine Tumor (NET) patient recovering after a Whipple operation carreid out early 2022.  He soon realised he had a big challenge on his hands.  Read his story of recovery helped by learning to surf!  First posted in my private Facebook patient support group.  Gerry kindly agreed to let me post here. Honest, open and inspiring stuff"Finally I realized, I had to become the World Expert on MY Body"I've recently passed the 2-year anniversary of my Whipple.About 9 months before, I experienced a total knee replacement and figured, if I could endure that…
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18 Oct 2023
By Ronny Allan
2 Comments
Exercise – it’s a free prescription

Exercise – it’s a free prescription

Inspiration, Patient Advocacy,
Exercise is a free prescription.  Clearly, I need to be careful with that statement given my aversion for cancer myths but it was once prescribed to me to get me through an awful period in 2013.  The vast majority of doctors will tell you exercise is good for us but like me they must realise that it sometimes takes quite a bit of effort to get out there and do some! Apparently the older you get, the harder it becomes (I can confirm this is true!).  In fact, my blog was actually created to document my return to fitness and…
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03 Jun 2023
By Ronny Allan
1 Comment
Getting back in the saddle

Getting back in the saddle

Inspiration, Living with Neuroendocrine Cancer, Patient Advocacy, Survivorship, Travel with Ronny,
The "getting back in the saddle" metaphor -  I thought back about a few periods since my diagnosis on 26th July 2010 about how I would 'get back in the saddle'. I suspect many cancer patients experience similar junction points in their own journeys.  After I was told about my metastatic Neuroendocrine Cancer, work was my anchor, something that I felt comfortable and in control, so in effect that was my metaphoric saddle in the early days. But as my treatment came into view, particularly major surgery, clearly new thoughts about how quickly I could get 'back into the saddle'…
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31 Dec 2022
By Ronny Allan
4 Comments
Happy New Year from Ronny

Happy New Year from Ronny

Awareness, Inspiration, Living with Neuroendocrine Cancer, Newsletters, Patient Advocacy, Survivorship, Travel with Ronny,
Another year of survivalI normally only do a Facebook happy new year, but I wanted to make sure I reached everyone who follows my blog and other social media outlets.    All of the outlets above have kept my viewing figures high and although I only beat 2021 viewing figures by almost 10,000, it is an upward trend, so I'll take it!2022 was an amazing year in many respects. I continue to live well with Neuroendocrine Cancer, almost like a chronic disease.  I'm not foolish enough to think I don't need surveillance though.  That is ongoing, including regular contact when…
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23 Dec 2022
By Ronny Allan
2 Comments
A Christmas 2022 message from Ronny

A Christmas 2022 message from Ronny

Awareness, Inspiration, Living with Neuroendocrine Cancer, Newsletters, Patient Advocacy, Survivorship, Travel with Ronny,
Background to 2022I've only ever sent these on Facebook but this year, after some challenges, I wanted to make sure I covered anyone who supports my sites via one channel whether it is Twitter, Facebook, Newsletter or direct from a subscription to my website.  All of the outlets above have kept my viewing figures high, I guess I can't complain about a 2022 total of around 270,000 blog hits and hitting the milestone of 2 million blog hits in early November - that was a major boost.  It takes 3-4 years to get a million hits based on current performance. This…
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24 Apr 2022
By Ronny Allan
1 Comment
We are still here!

We are still here!

Inspiration, ,
I'm always amazed at the responses to my post "I'm still here" and it has become a bit of a catchphrase I use, even in response to a question in my private group.What I see is that many of us are still here and I wanted to dedicate this post to those who frequently join in with my "I'm still here" posts.I'm glad you're still here too.  Share or comment if you agree!We are still hereCheck out the fantastic response to my 5th year 'cancerversary' post.  Click here to be inspired. Missed out 6th!!!Check out the fantastic response to my 7th…
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22 Feb 2019
By Ronny Allan
0 Comments
“I Knew There Was Something Wrong, But I Didn’t Know What” — A Nurse Shares Her Cancer Story

“I Knew There Was Something Wrong, But I Didn’t Know What” — A Nurse Shares Her Cancer Story

Inspiration, Living with Neuroendocrine Cancer,
Judy Golz is a retired registered nurse — she’s also a neuroendocrine cancer survivor.  Like many nurses who get cancer, their experience in working in the healthcare industry possibly helps get a quicker diagnosis, possibly because they can recognise symptoms and likely differential diagnoses and it possibly helps knowing how the healthcare system works. But with uncommon and complex diseases, it's not always that straightforward, even for a nurse or any other healthcare professional.  But Judy makes an excellent point about the quantity and quality of medical information now out there, including for Neuroendocrine Cancer and suggested she would be in…
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20 Feb 2017
By Ronny Allan
0 Comments
25 Life Lessons From a Two-Time Cancer Survivor

25 Life Lessons From a Two-Time Cancer Survivor

Inspiration, Survivorship, , ,
Sometimes, a blog post comes along and it just resonates!  I got chatting with the author who has given me permission to post it here.  Shari Berman is a two-time cancer survivor. She was diagnosed with Hodgkin’s Lymphoma at age 25, days after returning from her honeymoon and a second time with breast cancer 8 years later. I posted her full CV below.Her post "25 Life Lessons From a Two-Time Cancer Survivor" is a fantastic summary of a positive approach to life, despite a cancer diagnosis (or in Shari's case, two). I've seen some similar quotes before but Shari has collated…
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01 Aug 2016
By Ronny Allan
10 Comments
Living with Cancer – if you’re reading this, you’re surviving

Living with Cancer – if you’re reading this, you’re surviving

Inspiration, Living with Neuroendocrine Cancer, Survivorship, , , , ,
You may sometimes feel like you're not surviving but if you're reading this then you most definitely must be! For the first few years after my diagnosis, I avoided using the word 'survivor' in relation to my incurable cancer. I had no idea what was going to happen. It just didn't seem to sit right despite the fact I'm a 'glass half full' kind of guy. However ........ I was studying the term 'Survivorship' and found it also applies to those living with incurable and long-term cancer. This piece of research totally changed my thinking. Today is National Cancer Survivors…
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