You may remember my article entitled The trouble with the NET (Part 1) which was a lighthearted but still serious discussion about the dangers of self-treatment on the internet. Linked to that blog was a very popular article written by the scientists at Cancer Research UK debunking some cancer myths which seem to regularly patrol the NET and social media.
Many well meaning people will send you articles they saw on the ‘NET’ about this and that treatment which claims to cure cancer. The vast majority of them will be unfounded, lacking in any proper and formal scientific research and there is normally a product or book for sale attached to the link. In some instances, these ‘miracle cures’ can actually be dangerous for some.
In a follow on article, Cancer Research UK warns of the risks in Alternative Therapies which is written in a similar vein. I pay great attention to what these guys say. I know from my association with their research capability, that they take an evidence based approach and do not publish these things lightly. Please note Alternative Therapy is not the same as Complementary Therapy, it means an alternative to conventional treatment.
One bonus and very interesting aspect of their article is that they discuss the Steve Jobs issue of initially opting for alternative treatment rather than conventional, excellently making the point that he did not have Pancreatic Cancer, rather he had a Neuroendocrine Tumour (NET). We all know this, but many newspapers, magazines, TV commentators and bloggers frequently get this wrong.
Those selling and promoting alternative treatments rarely discuss the risks, especially the biggest risk of all – missing that small window of opportunity to hit a cancer with the best conventional (and proven) treatment possible.
The link to the article is here – I strongly encourage you to have a read – click here.
There’s another article here where a study confirms people who opt for alternative therapy die sooner than those who don’t – read here.
You may also be interested in reading Part 3 of this series where I discuss the FDA clampdown on bogus claims made by those sharing ‘miracle cures’
Be careful out there – it’s dangerous.
You may also like my Neuroendocrine Cancer myths articles – click here
Thanks for reading
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Remember ….. in the war on Neuroendocrine Cancer, let’s not forget to win the battle for better quality of life!
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I do not get any help for net Dana Faber Boston Ma cat scan show liver stomach and lymph glands been going there for 9 years. They money just testing. So all I do is spend a small fortune on alternative products.
can you give me an example of an alternative product? Are you not on any somatostatin analogues (octreotide or Lanreotide) ?
Great blog
Reblogged this on Cancer Isn't Pink and commented:
Important information regarding “miracle” cures through alternative courses of action targeted at the most desperate cancer patients. During my son’s course of life with pancreatic cancer, many suggestions have been offered by well-intented friends.
thank you for the reblog!
You are very welcome! I was happy to have found you and this information was terrific. I’m a follower of yours now! 😀
Just in the last two days I’ve had a couple of people recommend things that they’ve read on the internet to me. It’s very frustrating because I know they are trying to help, but they just don’t understand this cancer. I want to just scream sometimes.
I cringe at these, I wish the forums would police it a bit more. It prompts me to post this type of blog post. Feel free to respond with a link to my blog 😀
The link was broken this morning at 3 am in the US. You might want to check and see if they changed something. 🙂
checked and it works this end Ed but thanks for the tip off!
Yes, working now. Maybe they were rebooting the server?