Me and the other big C – June/July 2022


Recently, Chris and I felt lucky not to have caught covid since the pandemic started in early 2020. That said, not that we would know in the early days before tests were available.  We both had bad colds/flu in March 2020 but we will never find out if that was covid or not.  I wrote about this experience in a diary I maintained over that period.

It was therefore a bit of a shock when both of us finally tested positive in the middle of 2022, despite surviving unscathed through several waves since the pandemic began in early 2020.  To this day, we (mostly me) remain slightly paranoid about protecting ourselves.  e.g. I have maintained the habit of not touching door handles with my bare hands to this day.  My brother-in-law described us as the most covid careful people he knows. 

We were on holiday 2 weeks ago, not too far from home, only around 50 miles north.  I had been feeling a tickle at the back of my throat on our second day which seemed like a run-of-the-mill issue.  As we were meeting friends later that day (Wednesday 29th June), just to be sure, both of us took a covid test and both were negative.  We tend to trust the tests.  However, after meeting our friends, my symptoms worsened pretty quickly that evening and Chris decided we would go home the following day.  It was an uncomfortable night, mainly with shivers, fever, and aches and pains.  We limped home as planned the following morning – luckily, Chris was able to confidently drive the motorhome all the way back.  At home on Thursday 30th June, we took another test, I was positive, but Chris was still negative.  I got into bed later that day and literally stayed there for a week, I had zero energy.  Within 24 hours, the coughing started, a productive cough with brown/rust coloured sputum, a classic sign of a chest infection/pneumonia (I have a history of those, so knew what was coming next to a certain extent).  I find this type of illness scarier than the NET!

Other symptoms which started pretty early included headaches, aches and pains, wheezing/tight chest.  I also checked my saturated oxygen levels, temperature, and heartbeat.   The latter was initially around 10 beats higher than my normal resting rate.  The saturated oxygen levels were between 92 and 95 (only slightly lower than normal) and the temperature was around 1-degree centigrade higher than my normal.  The fever only lasted 48 hours and the aforementioned tests all returned to normal simultaneously.  The coughing was relentless with my Ventolin inhaler (for my mild asthma) most likely only functioning in placebo mode as I puffed away hoping for some relief! It took around 2-3 days for the sputum to change to green and then another 2-3 days to become clear.

Chris tested positive 36 hours after me and had most of the same symptoms, particularly fatigue, headaches and coughing, she also had sickness. She also spent quite a bit of time in bed.  We both slept in different bedrooms to avoid disturbing each other. She recovered quicker than me, testing negative 24 hours earlier than I did, but her symptoms were still pretty bad and debilitating. 

The most unusual symptom for me was nausea which had a knock-on effect to my appetite.   I lost 2kg/5lbs in a week, not a lot really.  The nausea was still there even after I finally tested negative on 9th July.  I’ve been clear of that now for 48 hours.  For me, that was a horrible symptom, probably because it’s not something I’m used to experiencing.

Three days after testing negative, I’m still experiencing the coughing symptom, but I’m told this can be pretty much normal for many people.  Nonetheless, I’ll be glad when it stops! 

We survived but we really don’t want to get it again. 

Stay safe all!

Curve Ball

13th July 2022.  My annual NET MDT consultation on 13th July 2022 was basically good news, I remain stable. However ……… my favourite radiologist had authored my latest CT scan report from 22 June.  He reported something on my left lung which looked like an infection, my Oncologist showed me on the CT output.  He described it as “fluffy” and there was more than one area. His conclusion is that it was most likely caused by covid indicating I may have had it for a whole week before becoming symptomatic.  As I indicated above, I did experience something like a tickly throat for a day or two prior but not for a whole 7 days.  My Oncologist, who is also a lung subject matter expert, is certain this is not tumour and will run the CT scan again in 3 months to check the lung.  How very strange.  After researching this issue, I found it is something doctors are seeing a lot.  Read more here by clicking on the picture below:

Click on the picture to read


I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me.  Neither should any post or comment made by a follower or member of my private group be assumed to be medical advice, even if that person is a healthcare professional as they are not members of the private group or followers of my sites in any official capacity.  Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals.

Subscribe to my newsletter

Thanks for reading.


I’m also active on Facebook. Like my page for even more news. Help me build up my new site here – click here and ‘Like’

Sign up for my newsletters – Click Here


My Diagnosis and Treatment History

Follow me on twitter

Check out my online presentations

Check out my WEGO Health Awards

Like my new awareness page – click here or on the photo.  (Like rather than follow please!)

Check out my Glossary of Terms – click here

patients included

Please Share this post for Neuroendocrine Cancer awareness and to help another patient


RonnyAllan.NET – Summary of November 2022

In November 2022, I was very active on my blog site as it was World Neuroendocrine Cancer Day on 10th Nov (although every day is

Read More »

In the news – new Neuroendocrine Tumour PET Fluorine-18 based ‘tracer’

This should be of interest, particularly to Canadians. (Not to be confused with 18F-FDG which is a different scan). For people waiting for imaging tests

Read More »

Incurable isn’t terminal

Opinion Words are important I was diagnosed with stage IV cancer in 2010.  OK, it wasn’t a really aggressive type but it had caused a

Read More »

The Inspirational Wilko Johnson: 12 July 1947 – 21 November 2022

Wilko playing at his last show. Oct 2022 in London. Aged 75. RIP Wilko Johnson – Neuroendocrine Cancer I have been following Wilko’s cancer story

Read More »

Neuroendocrine Neoplasms (NEN) – genetic related syndromes

Definitions – the differences between Hereditary vs Familial vs Genetic Disorders I wanted to start with these definitions because people may unintentionally use these three

Read More »

Neuroendocrine Cancer: Those who know, know!

Over the years of my advocating, I’ve tried to explain Neuroendocrine Cancer to many people outside the community.  Some ‘get it’ but many don’t.  Most

Read More »

Ask More, Assume Less

This is a great catchphrase from Neuroendocrine Cancer UK. It is partly based on the realisation that Neuroendocrine Cancer is no longer rare.  OK, that

Read More »

Piss off Cancer, it’s been 12 years since my “big surgery”

I’m still here I was 54 years and 9 months old at diagnosis on 26th July 2010.  For the first few months, I had no

Read More »

Neuroendocrine Cancer: 10 questions your dietitian will ask

Background to Diet and Nutrition  This is clearly an important topic for many patients.  In my group, it is the 12th most common topic out

Read More »

2 thoughts on “Me and the other big C – June/July 2022

I love comments - feel free!

%d bloggers like this: