
What is Carcinoid Syndrome? Carcinoid syndrome (CS) is the most frequent hormonal complication accompanying neuroendocrine neoplasms (NENs) and is defined by chronic diarrhoea and/or flushing in the presence of systemic elevated levels of serotonin or its metabolite 5-hydroxyindolacetic acid (5-HIAA). Importantly, other causes of these symptoms should be considered and investigated depending on the clinical presentation. CS […]

I was delighted to see this clinical trial which looks at the efficacy of PRRT (Lu177) vs the efficacy of Everolimus (Afinitor). The latter is approved for the treatment of adult patients with progressive, well-differentiated non-functional, neuroendocrine tumors (NET) of gastrointestinal (GI) or lung origin with unresectable, locally advanced or metastatic disease (US FDA wording, […]

Since I started blogging, I’ve read dozens of articles on the subject of ‘cancer metaphors’ and in particular their use in describing cancer experiences with the words ‘fight’, ‘battle’ and other ‘military’ sounding terms. The authors say that perhaps this is not the best language to use. One author used the term ‘violence’ to describe these […]

November is always busier as I help spread awareness for 10th Nov (remembering that every day is 10th Nov on my site!). I also managed to push out quite a few blogs, some ‘remasters’ from 2014 but with their originality from that time. Others include the ENETS Guideline series, a work in progress. I’m thankful […]

This ENETS guidance paper, developed by a multidisciplinary working group, provides up-to-date and practical advice on the diagnosis and management of digestive neuroendocrine carcinoma, based on recent developments and study results. These recommendations aim to pave the road for more standardized care for our patients resulting in improved outcomes. However, it’s true to say that […]
Totally agree, My wife has been caring for me for 5 yrs. Because of all these Dr.s visits, hospital stays, imaging and blood draws seems like a forever ago since my dx. with no relent, even when she is not feeling well herself she puts on a front for me to hide it from me. I can always see it and tell her she needs some caring to. I can see the stress of it all.. the not knowing building up until the Drs. Tell me I’m doing ok for another 4 months and then having to go through it again and again is not good for one’s soul. She has lost a lot the last 3 yrs. Recently a brother from covid. and about 2 1/2 yrs. ago another of her brothers passed from pancreatic cancer, took him pretty quickly. And then add what’s going on with me what a “Molotov”. She is my rock, without her not sure where I would be at this point. I need to focus some attention on her like you said..they should make a worldwide holiday for them, a weekend commemorated just for them probably need more than a weekend but this would be a start.
So agree – over the last few months my husband of 48 years has been my rock – listening, caring after my surgery, nagging sometimes but always there, they are worth a million prescriptions as are many friends and familyxx
All the best to you both in your challenge, will be thinking of you.
Cheers Ian, we didn’t need to call you, we made it 🙂
Another aspect – when Angela had cancer she seemed so far away. We love in the east of the country and she lives over on the west. One of the hardest things was knowing hug may help her but we weren’t there.to give her one. Me being disabled didn’t help as I couldn’t just jump on a bus or train and go to her. Her now husband and his family were fantastic but we just felt it should be us helping. Sorry this is the first time I’ve put this into words. Chris I know what it’s like. Ronnie I think you are doing a fantastic job and wish you all the best.
thanks for your support Irene. Sounds like you have been reflecting which is good! Ronny & Chris
Totally agree; love and care required for those who do the 24/7 care, often with many balls in the air, whilst the focus is on the person who is suffering from the illness. Perhaps it is worthwhile considering taking the carer for a pint or having her nails painted, whilst letting someone else visit the patient in hospital, who often finds talking to vistiors, who are trying to do the right thing, exhausting. Worth considering when someone you care for is seriously ill.