I was 54 years and 9 months old at diagnosis on 26th July 2010. For the first few months, I had no idea what the outcome would be. What I did know at the time, given the final staging and grading, in addition to the other damage that was accumulated via various tests, checks, and scans; is that my body had been slowly dying.
Without intervention I may not be here now to tell you this tale and who knows what would be listed on my death certificate. It’s amazing to think something that would eventually kill me without intervention, didn’t have a much grander announcement than the one presented to me in 2010 (or had I been paying more attention, in 2008 or 2009). I will never know if a much grander announcement would have happened because following my chance diagnosis, I was ‘patched up’ and thankful to still be here today.
My “big surgery” took place on 9th November 2010. I say “big surgery” because I had two other surgeries following it, one of which could also be categorised as major surgery.
Truthfully speaking, I did not expect to be here 13 years later, or at least that was my thinking at the time and for some years after that. The fact that I am must be related to the early intervention and radical surgery administered over the period 2010-2012, and the constant surveillance since. As a metastatic small intestine NET, debulking surgery is thought to be prognostically advantageous for many.
Accessing a specialist team is important early on, preferably before surgery as there are certain vagaries with Neuroendocrine Tumours (NET) which should at least be considered.
I was admitted on 8th November 2010 for what my surgeon called “an octreotide soak”. That day was not incident free – you can read about that day here. Or click on the picture below.
I was admitted on 8th November 2010 and woke up on 10th December 2010, complete coincidence, nothing was planned. In fact I hadn’t even heard of “NET Cancer Day” and I shy away from its use today due to the bad grammar and association with other misguided and out of date messages.
I’ve written extensively about this but you can read it here:
Check out my detailed clinical history from diagnosis on 26th July 2010:
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