Neuroendocrine Cancer: turn surveillance into a positive


It’s hard to be positive when you don’t know how you’re doing. The only way to know how you’re doing is to get professional surveillance. This is precisely why I see getting surveillance (scans and other imaging, tests, etc) as a positive. Even if something isn’t quite right, at least you know, your doctors know, and they can watch it or do something about it. They simply can’t do that if you’re not getting surveillance. This is precisely why it’s a positive thing, i.e. if you don’t get it done, you don’t know how you’re doing – that is a more worrying situation in my opinion.  Surveillance is meant in the widest context, it can range from a telephone appointing asking questions and getting answers, all the way through to scanning. 

Don’t cross the bridge until you come to it

Testing needs to be done.  There’s an old saying that I truly believe in – “Don’t cross that bridge until you come to it” and it decodes in various contexts to something like “don’t worry about things in the future you cannot control”.  In terms of test results, those will be what they will be, and no amount of worrying will change that fact.   It’s wasted energy.  Sit tight, wait and focus on other things until your doctor gives you the results. 

I wrote some tips to try to avoid this fear by turning surveillance into a positive. You can read that here or by clicking on the heading or picture.

Click on the picture to read more

Living with cancer: 5 tips for facing things you can’t control

I realise not everyone is wired in the same way to handle fear and worry.  But worrying about things you cannot control might be wasted energy. Try these 5 tips:

Click on the picture to read more

8 tips for conquering fear

You may also benefit from these blog posts:

Click on the picture to read more
Click on the picture to read more

Thanks for reading.


I’m also active on Facebook. Like my page for even more news. Help me build up my new site here – click here and ‘Like’

Sign up for my newsletters – Click Here


My Diagnosis and Treatment History

Follow me on twitter

Check out my online presentations

Check out my WEGO Health Awards

Like my new awareness page – click here or on the photo.  (Like rather than follow please!)

Check out my Glossary of Terms – click here

patients included

Please Share this post for Neuroendocrine Cancer awareness and to help another patient


Experimental drug for Gastric NET – Netazepide

Gastric NETs When I wrote my post entitled “Spotlight on Gastric Neuroendocrine Neoplasms“, I explained what these were with some emphasis on the association with

Read More »

A Newsletter from RonnyAllan.NET – 13th March 2023

Newsletter from Ronny Allan – 13th March 2023 Welcome to my new template newsletter compiled using WordPress (my blog app). This is the 2nd in

Read More »

Fructose intolerance – the NET Effect

Background   When I cast my mind back to my very first surgery, I remember all sorts of ‘plumbing’ issues but was told it would take

Read More »

A tribute to the life and legacy of Miranda Filmer

It’s true to say that Neuroendocrine Cancer is an older person’s disease, the epidemiology is clear on that.  But I do see many young people

Read More »

Treatment for Neuroendocrine Cancer: Beware of the alternatives

The Alternative Hype Cancer Research UK warns of the risks in Alternative Therapies, and I pay great attention to what these guys say.  I know

Read More »

RonnyAllan.NET – Summary of February 2023 – Ronny Allan – Living with Neuroendocrine Cancer

Summary Another great start to 2023 and I thank those who continue to support my social media and this blog.  I’m keen to hear any

Read More »

A spotlight on Gastric Neuroendocrine Neoplasms

What are Gastric NENs Unlike other anatomical types, the word Gastric is used to indicate a tumour (NET) or carcinoma (NEC) in the stomach.  The

Read More »

Sometimes I climb hills just to piss my cancer off

Pissing off cancer is both metaphorical and physical Being diagnosed with a Grade 2 metastatic Neuroendocrine Cancer in 2010 was a bit of a shock.

Read More »

Belzutifan for the Treatment of Advanced Pheochromocytoma/Paraganglioma (PPGL), Pancreatic Neuroendocrine Tumor (pNET), or Von Hippel-Lindau (VHL) Disease-Associated Tumors

What is von Hippel-Lindau disease (VHL)? Von Hippel-Lindau disease (VHL) is an autosomal dominant disease that can predispose individuals to multiple neoplasms. Germline pathogenic variants in the VHL gene predispose individuals to specific

Read More »

I love comments - feel free!

%d bloggers like this: