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Ronny Allan
On my website RonnyAllan.NET, July was a bit quieter mainly due to my holiday and other commitments. However, there was still significant support within and without the community.
Below, I’ll list the top performing blog posts in July, I can assure you there is some great information in there, and you may have missed some of my newest blogs which made it to the top 10.
Number 1 is the story of US Representative Joaquin Castro, great diagnostic story and showing signs of being vocal about NET and the US healthcare system to a much wider audience – this is great awareness too!
Bonus photos of our walk in Dartmoor at the end.
Best wishes to Joaquin Castro
Do not miss this story
Dear every patient I ever took care of, I’m sorry I didn’t get it
A frequently visited post, very helpful I’m told. It will one day be my most-read blog post. Click here or on the picture
Diagnosed with Neuroendocrine Cancer? – 10 questions to ask your doctor (and where to find a NET Specialist Worldwide)
A frequently visited post, very helpful I’m told. It will one day be my most-read blog post. Click here or on the picture
Currently trending on RonnyAllan.NET – Ronny Allan – Living with Neuroendocrine Cancer
A person with Cancer fell into a hole and couldn’t get out………. (ronnyallan.net)
NET Specialists, Multidisciplinary Teams (MDT) and Centres of Excellence (ronnyallan.net)
Biopsies – tissue is the issue! (ronnyallan.net)
Ronny Allan: My Diagnosis and Treatment – Neuroendocrine Cancer
Disclaimer
I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me.
Neither should any post or comment made by a follower or member of my private group be assumed to be medical advice, even if that person is a healthcare professional.
Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals.
Bonus pictures from our trip to Dartmoor
If you want to see more like this, click here to follow Ronny on Facebook.
If you want to see the Facebook post covering this trip, please click here.
Top 10 Posts & Pages in the last 48 hours (auto updates) (Click the titles to read them)
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Please Share this post for Neuroendocrine Cancer awareness and to help another patient
Who needs a gallbladder anyway?
We can survive without a gallbladder, but clearly it is a useful, functioning organ, and we are better off to keep it if we can.
Neuroendocrine Cancer Clinical Trial – Lutetium-177Lu (Satoreotide)
What is Satoreotide? It’s an agonist treatment. i.e. a ‘next generation’ radiologand for Peptide receptor radionuclide therapy (PRRT) or more specifically the radiopharmaceutical that binds
A review of September 2023 on RonnyAllan.NET – Living with Neuroendocrine Cancer
On my website RonnyAllan.NET, September was an interesting month because I had pushed out some blogs before I went on a planned overseas holiday from
Never mind the Bollocks – here’s the cancer
I don’t tend to share some very personal stuff, but this is on the boundary of that rule and there are some important messages to
First and only FDA-cleared, fully automated chromogranin A assay
There has been controversy about the utility of Chromogranin A for many years now. Specialists have been critical about its use but to be fair
Neuroendocrine Cancer: Question, Clarify, Confirm
One of the many observations I make in my private Neuroendocrine Cancer Facebook group is the misunderstandings caused by the use of non-standard terminology combined
Clinical Trial – Lutathera NETTER-2 Important Update
UPDATE – Sep 25th, 2023 – Novartis radioligand therapy Lutathera® demonstrated statistically significant and clinically meaningful progression-free survival in first line advanced gastroenteropancreatic neuroendocrine tumors
Lanreotide: Ipsen injection devices vs generic injection devices
Whenever I get a chance to talk to a pharma involved in somatostatin analogue injection devices, I tell them one very important thing …… “To
Cancer doesn’t take holidays (but I do)
Glen Etive Scotland in 2018 After diagnosis in July 2010, with the exception of a planned holiday to Turkey prior to my ‘big surgery’, holidays
A cup of tea
I would also mention those who contributed to my “Tea Fund” which resides on PayPal. You don’t need a PayPal account as you can select a card but don’t forget to select the number of units first (i.e. 1 = £4, 2 = £8, 3 = £12, and so on), plus further on, tick a button to NOT create a PayPal account if you don’t need one. Clearly, if you have a PayPal account, the process is much simpler
Through your generosity, I am able to keep my sites running and provide various services for you. I have some ideas for 2023 but they are not detailed enough to make announcements yet.
This screenshot is from every single post on my website and depending on which machine you are using, it will either be top right of the post or at the bottom (my posts are often long, so scroll down!)
Summary –
June was a relatively quiet month on my website RonnyAllan.NET – mainly due to me being on holiday for much of it! However, a respectable 18,000 blog views are not to be sniffed at! The top 10 for June are now listed. Take a look please, open them up, read them, share them.1 Sometimes, you gotta climb that hill, even if it hurts (ronnyallan.net)
This must have struck a chord. It’s not a story about physical fitness, it’s a metaphor about the mental challenges of living with cancer.
2 Currently trending on RonnyAllan.NET – Ronny Allan – Living with Neuroendocrine Cancer
My post for busy people to catch up.3
The Syndromes of Neuroendocrine Cancer – Early Signs of a Late Diagnosis – (ronnyallan.net)
An oldie but a goodie
4 Neuroendocrine Cancer? – 10 questions to ask your doctor (and where to find a NET Specialist Worldwide) – (ronnyallan.net)
A frequently visited post, very helpful I’m told. It will one day be my most-read blog post. Click here or on the picture5
Summary of May 2023 on RonnyAllan.NET
People seem to like the monthly updates from my blog
6
Clinical Trial: Phase 1/2a Study of 23ME-00610 in Patients With Advanced Solid Malignancies (incl Neuroendocrine Neoplasms) (ronnyallan.net)
An interesting clinical trial with a genealogical twist
7 Cancer-related fatigue (CRF) – Neuroendocrine Cancer (ronnyallan.net)
This was well received in both my group and my Neuroendocrine Cancer facebook page. Click here or on the picture.
8
Repeat after me: Maria Menounos has Neuroendocrine Cancer (ronnyallan.net)
Still getting a lot of attention.
9
Neuroendocrine Cancer: Awareness is key, but it must be the right message – (ronnyallan.net)
An awareness message in Ronny Allan style. Some people won’t like it but I won’t be changing my opinion anytime soon. Click here or on the picture to read more.
10 A spotlight on duodenal Neuroendocrine Neoplasms (dNENs) (ronnyallan.net)
The latest addition to my “Spotlight on Neuroendocrine Cancer” series.
Disclaimer
I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me. Neither should any post or comment made by a follower or member of my private group be assumed to be medical advice, even if that person is a healthcare professional. Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals. Click here and answer all questions to join my private Facebook group
Check out my Glossary of Terms – click here
Please Share this post for Neuroendocrine Cancer awareness and to help another patient
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