Newsletter from Ronny Allan - 13th March 2023
Welcome to my new template newsletter compiled using WordPress (my blog app). This is the 2nd in this format, and I will continue in the absence of a Newsletter app that meets my needs. It's been another busy month as you will see below. But please take the time to read through as I can almost guarantee there will be something you missed and want to read and share! Some of the items below will make you laugh but others may make you cry.
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My award-winning blog is central to everything I do, without it, there is no Facebook, twitter or private group. It follows that supporting my blog is also supporting those other outlets. The widget below displays the last 9 published posts with lead photo and short description plus the ability to share it on your social media or another outlet.
‘Chinese Dumplings’ and Neuroendocrine Cancer
Update of one of my posts from 2015 which was interesting in that year. This is not really about a treatment which is available everywhere
“An odd disposition of tumours” – less common metastases in Small Intestine and Pancreatic NETs
Every day is a learning day in NET! When I was diagnosed in 2010, my Oncologist sent me for a specialist scan that would help
Chemotherapy for Neuroendocrine Cancer
Edited and checked April 2024One of the unusual aspects of Neuroendocrine Cancer is that chemotherapy is not normally considered as a ‘standard of care’ or
Carcinoid vs Neuroendocrine
OPINION – There’s a constant debate regarding the validity of the term ‘Carcinoid‘. I’ve posted about this a few times and as far as I know,
Things are not always how they seem
Graphic courtesy of SoBadAss.me (Sam Cleasby) In 2014, Chris and I walked 84 miles along Hadrian’s Wall on the English/Scottish border. It was a fantastic
Neuroendocrine Cancer Online Forums: frighteningly good or good at frightening?
OPINION When I was diagnosed, I was happy with my own research and kept away from forums on the advice of a fellow patient who
Colonoscopy Comedy
Last year I wrote a series of articles on the ‘coping’ side of cancer, one of which was about still being able to have a
Surgery – the gift that keeps on giving
I first wrote this article in December 2014. My thoughts went back to my first surgery in 2010 when I was discharged 4 weeks before
Piss off cancer, it’s 13 years since my liver surgery!
I’m still here I was 54 years and 9 months old at diagnosis on 26th July 2010. For the first few months, I had no
Top 10 Posts & Pages in the last 48 hours (auto updates) (Click the titles to read them)
Milestone Reached
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Public Page "Neuroendocrine Cancer"
This is my biggest page with over 12,000 followers. I normally post technical and awareness stuff on this page. Please ensure you have LIKED this page to see the feed. The lead picture above is of a recent popular post; however, the link will take you to the public page where you can browse the site to find something you like.
Public Page "Ronny Allan"
This is my named page with over 7,000 followers. I normally post about my journey from diagnosis to where I am today occasionally venturing into my past life before cancer. I do post a lot of travel stuff on here. Please ensure you have FOLLOWED this page to see the feed.
Public Page "World Neuroendocrine Cancer Day"
This is my new page with over 1300 followers (currently). I intend building this up for campaigning purposes. Please ensure you have LIKED this page to see the feed. The lead picture was a very popular post on this page.
Follow me on Twitter (click on “My Tweets” to go to my twitter profile)
My TweetsI write about clinical trials all the time. Normally as a standalone blog post. Each one is indexed using a Clinical Trial category. Below you will find a blue box which links to all the post categorised as pertaining to clinical trials. If you want me to write about a particular trial just contact me.
General Clinical Trials Disclaimer
Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study. To learn more about this study, you or your doctor may contact the study research staff using the contacts provided in the clinical trials document. It’s very important to check the trial inclusion and exclusion criteria before making any contact. If you need questions, the articles here is very useful Questions to Ask About Clinical Trials | Cancer.Net
The inclusion of any trial within this blog should not be taken as a recommendation by Ronny Allan.
I have the biggest Facebook support group in the world for Neuroendocrine Cancer. It is rules based but also educational based. It is open to patients and/or their primary supporter. Click the green box below to join but you must answer all questions otherwise you will be delayed in joining or not accepted.
Disclaimer
I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as medical advice given or advised by me. Neither should any post or comment made by a follower or member of my private group be assumed to be medical advice, even if that person is a healthcare professional as they are not members of the private group or followers of my sites in any official capacity. Please also note that mention of a clinical service, trial/study or therapy does not constitute an endorsement of that service, trial/study or therapy by Ronny Allan, the information is provided for education and awareness purposes and/or related to Ronny Allan’s own patient experience. This element of the disclaimer includes any complementary medicine, non-prescription over the counter drugs and supplements such as vitamins and minerals.
A cup of tea
I would also mention those who contributed to my “Tea Fund” which resides on PayPal. You don’t need a PayPal account as you can select a card but don’t forget to select the number of units first (i.e. 1 = £4, 2 = £8, 3 = £12, and so on), plus further on, tick a button to NOT create a PayPal account if you don’t need one. Clearly, if you have a PayPal account, the process is much simpler
Through your generosity, I am able to keep my sites running and provide various services for you. I have some ideas for 2023 but they are not detailed enough to make announcements yet.
This screenshot is from every single post on my website and depending on which machine you are using, it will either be top right of the post or at the bottom (my posts are often long, so scroll down!)
Thanks for reading. I leave you with one post which is fast becoming the most popular one. It covers the heterogeneity of Neuroendocrine Neoplasms which is extremely important if you want to be understood and understand others in patient groups and pages.
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