01 Nov 2025
By Ronny Allan
0 Comments
Ronny Allan – a review of my blog activity September and October 2025

Ronny Allan – a review of my blog activity September and October 2025

Newsletters
Here is the monthly summary of September and October 2025 on RonnyAllan.NET - Every share helps someone understand or even work towards a diagnosis, discovery of the best doctors and treatments.  I was too maxed out at the beginning of September, so skipped it to pick up along with October.  The selection of top posts this month really shows the breadth of subjects applicable to Neuroendocrine Cancer that need to be considered. Click on the each of the 10 posts to read. You can share the whole post or you can share those individual posts - each has a share…
Read More
31 Oct 2025
By Ronny Allan
15 Comments
Neuroendocrine Cancer? – Where to find a NET Centre/Specialist Worldwide

Neuroendocrine Cancer? – Where to find a NET Centre/Specialist Worldwide

Awareness, Diet and Nutrition, Living with Neuroendocrine Cancer, Patient Advocacy, Survivorship, , , , , , , , , , , , , , , , , , , , ,
Scroll down to check out the doctors list just below Important note The accuracy of these lists depends on the accuracy of the sources. If you think the source is wrong, let them know, not me. However, you can also join my private Facebook group and someone in there will often be more up to date than the source!  To the best of my knowledge, this the only attempt at a worldwide list of specialists.  Finding experts Many people ask for a definition of a "NET Specialist". There's also discussions surrounding Multidisciplinary Teams (MDT)/Tumor Boards and Centres of Excellence (CoE).…
Read More
31 Oct 2025
By Ronny Allan
0 Comments
Reports of my death have been greatly exaggerated….. the pitfalls of Artificial Intelligence (AI)

Reports of my death have been greatly exaggerated….. the pitfalls of Artificial Intelligence (AI)

Humour
Reports of my death have been greatly exaggerated….. the pitfalls of Artificial Intelligence (AI) I recently discovered — to my great amusement - that someone referred to me as “the late Ronny Allan.” While I appreciate the dramatic flair, I’d like to reassure everyone that I’m still very much alive, caffeinated, and actively moderating, educating, and occasionally ranting about neuroendocrine cancer.  To be fair, I do spend a lot of time digging through esoteric subjects such as pathology reports and clinical trial data, so perhaps someone mistook my silence for eternal rest. Or maybe they just assumed that anyone who’s…
Read More
30 Oct 2025
By Ronny Allan
0 Comments
I made it to 70!

I made it to 70!

Awareness, Inspiration, Living with Neuroendocrine Cancer, Patient Advocacy
I started doing the “Piss off cancer” series when I got to 65, mainly because I initially thought I wouldn’t make that age. I was 54 years and 9 months old at diagnosis on 26th July 2010.  For the first few months, I had no idea what the outcome would be.  What I did know at the time, given the final staging, grading, and other damage that was accumulated via various tests, checks, and scans; is that my body had been slowly dying. Without intervention I may not be here now to tell you this tale and who knows what…
Read More
29 Oct 2025
By Ronny Allan
0 Comments
European Neuroendocrine Tumor Society (ENETS) 2023 guidance paper for appendiceal neuroendocrine tumours (aNET)

European Neuroendocrine Tumor Society (ENETS) 2023 guidance paper for appendiceal neuroendocrine tumours (aNET)

Latest ENETS Guidelines, Treatment, , ,
European Neuroendocrine Tumor Society (ENETS) 2023 guidance paper for appendiceal neuroendocrine tumours (aNET) Appendiceal neuroendocrine tumours (aNET) account for 50%–77% of all appendiceal neoplasms and are mostly identified incidentally following appendicectomy for acute appendicitis or after a laparotomy performed for unrelated reasons. In the great majority, aNET are low grade (>80% grade 1 (G1)) and very rarely, if ever, are associated with a secretory syndrome. This post is part of my ENETS Guideline series and supplements my Spotlight series article which can be found by clicking here.TABLE 1. Nine clinical questions for aNET scenarios.Q1 – What is the current incidence of aNET…
Read More
27 Oct 2025
By Ronny Allan
0 Comments
Weekly roundup from Ronny 20th – 26th October 2025

Weekly roundup from Ronny 20th – 26th October 2025

Newsletters
Weekly roundup from RonnyAllan.NET covering period 20th - 26th October 2025 A busy week!  I continue to be diverted on personal stuff but still managed to publish many things.  My biggest task which has been outstanding for a while, was published and commenting on the latest statistics on Neuroendocrine Neoplasms out of USA, the first SEER output since 2017.  Heading - Neuroendocrine Neoplasms as a group are not rare - but then I have been saying that for 10 years.  If you missed the conversation on Facebook - click here.   New or updated blogs in the last 7 days: CABOMETYX®…
Read More
19 Oct 2025
By Ronny Allan
0 Comments
Weekly roundup from Ronny 13th – 19th October 2025

Weekly roundup from Ronny 13th – 19th October 2025

Newsletters
  Weekly roundup from RonnyAllan.NET covering period 13th - 19th October 2025 A busy week!  I continue to be diverted on personal stuff but still managed to publish many things.  My biggest task which has been outstanding for a while, was published and commenting on the latest statistics on Neuroendocrine Neoplasms out of USA, the first SEER output since 2017.  Heading - Neuroendocrine Neoplasms as a group are not rare - but then I have been saying that for 10 years.  If you missed the conversation on Facebook - click here.  But a link to the article is also below. …
Read More
18 Oct 2025
By Ronny Allan
2 Comments
Neuroendocrine Cancer: a needle in a haystack?

Neuroendocrine Cancer: a needle in a haystack?

Patient Advocacy, , , , , , , , , , , ,
Reviewed and edited 6th April 2026 It's no secret that Neuroendocrine Cancer can be difficult to diagnose. Although earlier diagnosis is improving (as reported in the US SEER database report issued in 2025 and also in many other places), there is still a lot of ground to cover. There are a number of reasons why these Neoplasms are often difficult to correctly and quickly diagnose including but not limited to: - they grow silently, they often produce vague symptoms which can be mistaken for much more common illnesses, and their complexity is not fully understood. Neuroendocrine Cancer is a heterogenous…
Read More
13 Oct 2025
By Ronny Allan
0 Comments
10 Random Blog posts Set 1 – RonnyAllan.NET

10 Random Blog posts Set 1 – RonnyAllan.NET

Diet and Nutrition, Inspiration, Living with Neuroendocrine Cancer, Newsletters, Patient Advocacy, Survivorship, The NET Effect Series, Treatment
10 Random Blog posts Set 1 - RonnyAllan.NET WelcomeA new series of random blogs that are not only informational, but also relevant. Carefully selected by the author.Thanks for reading.  Feedback welcome. Neuroendocrine Cancer Nutrition Series Article 2 – Gastrointestinal Malabsorption The Cancer Legacy of Steve Jobs Cancer-related fatigue (CRF) - The NET Effect Jimmy Buffett 1946-2023 - Neuroendocrine Carcinoma (Merkel Cell Carcinoma) Cancer Ablation Meet Edison® Histotripsy System - powerful bubbles   Lower grade higher stage NETs - slow motion, chronic and indolent?   Neuroendocrine Cancer Awareness - let’s move into the 21st century   Living with NETs - nobody…
Read More
25 Sep 2025
By Ronny Allan
8 Comments
Immunotherapy and Neuroendocrine Neoplasms

Immunotherapy and Neuroendocrine Neoplasms

Clinical Trials and Research, Treatment, , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , ,
Updated 24th September 2025. Introduction There's a lot of Immunotherapy stuff out there!  The picture regarding its use in Neuroendocrine Neoplasms is not clear and there is no general roadmap printed.  I first heard of Immunotherapy for NETs following attendance at ENETS 2017 in Barcelona. The presentation that sticks out was one given by Dr Matthew Kulke, a well-known NET Specialist in Boston. My reaction to the presentation was one of 'expectation management' and caution i.e. it's too soon to know if we will get any success and when we will get it. He also hinted that it's more likely…
Read More
22 Sep 2025
By Ronny Allan
0 Comments
Weekly update 22nd September 2025

Weekly update 22nd September 2025

Newsletters, ,
Another helpful week with some good support on my social media outlets.  This is despite a reduction in new posts while I resolve some website issues.  I thank you if you  have supported my website via my social media accounts, particularly Facebook. So what are the highlights of last week?  Let's start with my Pheochromocytoma/Paraganglioma campaign. Click here or the picture below to read the post.  Why not join in on the Facebook post - click here. Steve Jobs is always a draw, he's so well known.  He may not have taken part in much Neuroendocrine Cancer awareness when he…
Read More
18 Sep 2025
By Ronny Allan
0 Comments
The Treachery of Pheochromoctyomas and Paragangliomas – please think of it!

The Treachery of Pheochromoctyomas and Paragangliomas – please think of it!

Patient Advocacy, , ,
Something came up in my timeline this week and I really enjoyed reading it.  I have many alerts set for various subjects including Pheochromocytomas and Paragangliomas.  Often an old published article is republished making it to my alert system and it got pushed up the timeline. It did seem like it was up to date but I eventually spotted it was from 2006! I appreciated some of the content because it had confirmed many parts of my knowledge about these interesting tumours. Two things stood out in this 2006 document:  Firstly, the mention of how many of these tumours are…
Read More
03 Sep 2025
By Ronny Allan
0 Comments
The 4 Cs – Causation, Correlation, Coincidence and Confounding Factors

The 4 Cs – Causation, Correlation, Coincidence and Confounding Factors

Patient Advocacy,
I learn a lot in my private patient group.  I also notice people jumping to conclusions on the cause of their issue when two variable things change at the same time.  It is pretty normal (and even I do it) to want to know what is causing a symptom but working out the causes is not always easy.  Treating the symptoms may be a more efficient use of time and energy.  Healthcare professionals are better placed to work this stuff out but in 2025, the internet, google, and even artificial intelligence can help the resourceful patient/caregiver.  But all of these…
Read More
02 Sep 2025
By Ronny Allan
0 Comments
Ronny Allan – a review of my blog activity August 2025

Ronny Allan – a review of my blog activity August 2025

Awareness, Newsletters, Patient Advocacy
Here is the monthly summary of August 2025 on RonnyAllan.NET - Every share helps someone understand or even work towards a diagnosis, discovery of the best doctors and treatments. The selection of top posts this month really shows the breadth of subjects applicable to Neuroendocrine Cancer that need to be considered. Click on the each of the 10 posts to read. You can share the whole post or you can share those individual posts - each has a share button or you can copy and paste the internet link (url). Use your own words, invite them to subscribe to my…
Read More
19 Aug 2025
By Ronny Allan
0 Comments
Last week on Ronny Allan dot NET – 11-17 Aug 2025

Last week on Ronny Allan dot NET – 11-17 Aug 2025

Newsletters, Patient Advocacy
It's been an amazing week on my Facebook pages with some knock on effect on my website. I have been working on (and focussing on) my main Facebook page and I appreciate the support from you guys. Sharing a facebook post has proven to be very powerful for some of my posts on that page (Neuroendocrine Cancer). Between us we attracted many people from outside the community and many who were not part of the community but now are. Thank you. On my website, I only added a couple of posts last week: 1. 2025 Surveillance Update from Ronny Allan:…
Read More
16 Aug 2025
By Ronny Allan
0 Comments
2025 Surveillance Update from Ronny Allan: “No evidence of progressive disease”

2025 Surveillance Update from Ronny Allan: “No evidence of progressive disease”

Inspiration, Living with Neuroendocrine Cancer, Patient Advocacy, , ,
It's only a couple of weeks since I celebrated my 15th year since diagnosis of metastatic small intestine Neuroendocrine Tumour (NET) at Grade 2.  Thinking back to that period of my life, I'm happy but also slightly amazed to be celebrating such a long milestone having been diagnosed with cancer at Stage IV. I think it's a sign of many things, including but not limited to, early intervention by inquisitive healthcare professionals following vague symptoms, early access to a NET multidisciplinary team (MDT). Of course, human resilience must also be a factor. I didn't take this diagnosis lying down, I…
Read More
14 Aug 2025
By Ronny Allan
0 Comments
Surgery is risky but so is driving a car

Surgery is risky but so is driving a car

Treatment, , ,
I enjoyed reading an article written by Dr Eric Liu entitled The Complications of Surgery. In his article, Dr Liu, himself a surgeon, explains that surgery comes with risks, and patients should be made aware and be able to discuss these risks with their doctors. This got me thinking about my own experience which goes back to the autumn of 2010 when I first met my surgeon. At that time, there were a few articles about whether surgery or ‘biochemistry’ was the best treatment for certain types, grades and stages of Neuroendocrine Tumours (NETs). To some extent, these debates continue, particularly for pancreatic NETs.…
Read More
11 Aug 2025
By Ronny Allan
0 Comments
I may look well, but you can’t see my battles!

I may look well, but you can’t see my battles!

Patient Advocacy, ,
As I ponder my annual surveillance this summer and wonder what will be discussed, I also think about how far I’ve travelled and what I have been able to do.  It’s more than I thought I’d be able to do, I didn’t expect to still be here. Often, I feel lucky.  Perhaps an odd thing to say when I’m living with Stage IV cancer.  But those cards were dealt in 2010, and I now play with a new deck where I do have some control over how those cards are played.  As long as it’s not a flush! No pity please.…
Read More
09 Aug 2025
By Ronny Allan
0 Comments
NETTER-3 – Clinical Trial: [177Lu]Lu-DOTA-TATE in Patients With Grade 1 and Grade 2 Advanced GEP-NET

NETTER-3 – Clinical Trial: [177Lu]Lu-DOTA-TATE in Patients With Grade 1 and Grade 2 Advanced GEP-NET

Clinical Trials and Research, Patient Advocacy, Treatment, ,
Why is this trial important? The output of NETTER-2, suggested Lutathera for GEP-Grade 2 and 3 NETs could be used as a first line treatment. In some areas this appeared to be controversial.  The data from NETTER-1, which was focused on Grade 1 and 2 (less than ki67 of 10%), did not conclude the same, different aim. However, this appears to be the main aim of NETTER-3, to look at the data in the same way as NETTER-2 but for Grade 1 and 2 with similar criteria used on NETTER-1. You might say NETTER-3 is a follow on from NETTER-1 but…
Read More
08 Aug 2025
By Ronny Allan
0 Comments
Ronny Allan – a review of my blog activity July 2025

Ronny Allan – a review of my blog activity July 2025

Awareness, Newsletters, Patient Advocacy
Here is the monthly summary of July 2025 on RonnyAllan.NET Every share helps someone understand or even work towards a diagnosis, discovery of the best doctors and treatments.  The selection of top posts this month really shows the breadth of subjects applicable to Neuroendocrine Cancer that need to be considered.  Click on the each of the 10 posts to read. You can share the whole post or you can share those individual posts - each has a share button or you can copy and paste the internet link (url). Use your own words, invite them to subscribe to my website and…
Read More
07 Aug 2025
By Ronny Allan
0 Comments
Sometimes you gotta climb that hill because it’s a better view!

Sometimes you gotta climb that hill because it’s a better view!

Living with Neuroendocrine Cancer, Sometimes you gotta climb that hill!, Survivorship, Travel with Ronny,
For those who are not familiar with my "sometimes you gotta climb that hill" series, let me explain one important thing before you read. These posts are metaphorical posts. The "hill" represents a challenge, often one that people with cancer have to face. It is not a blog about physically walking up a hill - although I do use my outdoor challenges to get the point over (plus many of my followers prefer my exploits to my technical articles!). I always get a lot of personal satisfaction and self administered mental health treatment by taking part, and that is also…
Read More
28 Jul 2025
By Ronny Allan
0 Comments
Weekly Roundup on RonnyAllan.NET – 28th July 2025

Weekly Roundup on RonnyAllan.NET – 28th July 2025

Newsletters, Patient Advocacy
New or Repurposed/Republished blogs this weekClick pictures to read Click the picture to read the post Page - Neuroendocrine Cancer - featured post Go straight to the facebook post - click here or go straight to the relevant blog post - click here Page - Ronny Allan - featured postGo straight to the facebook post - click here or go straight to the relevant blog post - click here Page - World Neuroendocrine Cancer Day - featured postGo straight to the facebook post - click here or go straight to the relevant blog post - click here Now click on…
Read More
26 Jul 2025
By Ronny Allan
7 Comments
15 years since diagnosis, I’m still here

15 years since diagnosis, I’m still here

Inspiration, Survivorship
I finally made 15 years since I was diagnosed on 26th July 2010.  A milestone I was not certain at the time I would reach.  However, as things progressed, as treatment was administered, and as I got used to living with Neuroendocrine Cancer, I eventually became more confident this was a possibility with the help of Chris, my wife of 50 years. I was fortunate that my cancer was not that aggressive although it was aggressive enough over an unknown period of time (probably years) to have grown inside my small intestine and mesentery, reached an army of lymph nodes,…
Read More
24 Jul 2025
By Ronny Allan
0 Comments
My NET is different than yours

My NET is different than yours

A spotlight on NENs, Awareness, Living with Neuroendocrine Cancer, , , , , , ,
When you manage a large support group, you see a lot of posts.  Many of them highlight a lack of knowledge about the heterogeneity of Neuroendocrine Neoplasms.  The issue is not always with those answering the question but often it is the person asking the question.  Sometimes intervention is needed to focus responses. So, what are the key issues?   Read on..... If you read any authoritative source on this cancer, it will normally begin with “Neuroendocrine Neoplasms (NENs) are heterogeneous tumours ………….”  “Heterogeneous” means consisting of dissimilar parts or elements, essentially meaning “mixed” or “diverse,” but I used the term…
Read More
21 Jul 2025
By Ronny Allan
0 Comments
Ronny’s Weekly Roundup 14th – 20th July 2025

Ronny’s Weekly Roundup 14th – 20th July 2025

Patient Advocacy
New or Repurposed/Republished blogs this weekClick pictures to read https://medicalstories.tv/ Page - Neuroendocrine Cancer - featured post Go straight to the facebook post - click here or go straight to the relevant blog post - click here Page - Ronny Allan - featured postGo straight to the facebook post - click here or go straight to the relevant blog post - click here Page - World Neuroendocrine Cancer Day - featured postGo straight to the facebook post - click here or go straight to the relevant blog post - click here https://ronnyallan.net
Read More
16 Jul 2025
By Ronny Allan
0 Comments
Ronny Allan’s Glossary of Terms (Basic Edition)

Ronny Allan’s Glossary of Terms (Basic Edition)

Clinical Trials and Research, Diet and Nutrition, Living with Neuroendocrine Cancer, Patient Advocacy, Ronny Allan's "The Trouble with the NET Series", Spotlight on NENs - Types Series, The NET Effect Series, Treatment, ,
Welcome to my Neuroendocrine Cancer terms and definitions list providing a source of meanings for acronyms and medical terms, all sourced from top cancer/Neuroendocrine Cancer sites.  This version is a simple combination of an intelligent search (e.g. type first character to filter etc) plus a simple long list of all the terms in my repository. But each has a link which will direct you to the definition of the term plus where applicable, links to any of my articles where I have tagged this term (therefore providing added context).Please note I’m constantly working on the repository to clean up all definitions, adding…
Read More
15 Jul 2025
By Ronny Allan
5 Comments
Medical Stories – Neuroendocrine Tumors (NETs): Anthony’s Story

Medical Stories – Neuroendocrine Tumors (NETs): Anthony’s Story

Inspiration, ,
Great patient story from Anthony and Amy featuring well-known US NET specialist Dr Pamela Kunz. Some of you will have heard me or read one of my posts, emphasising the importance of patient stories.  This story encompasses all the strongest areas for awareness but also explains a classic NET journey for others to hear about.  It's wonderful to hear the voice of caregiver Amy as these things tend to impact on close family too.  I hear that strength come through in her voice and I'm sure Anthony appreciates that.  Anthony is a strong too, this guy plays soccer, tennis, he runs…
Read More
14 Jul 2025
By Ronny Allan
0 Comments
RonnyAllan.NET – weekly round-up 7th – 13th July 2025 

RonnyAllan.NET – weekly round-up 7th – 13th July 2025 

Newsletters, Patient Advocacy
New or Repurposed/Republished blogs this weekClick pictures to read Page - Neuroendocrine Cancer - featured post Go straight to the facebook post - click here or go straight to the relevant blog post - click here Page - Neuroendocrine Cancer - featured post Click here to read about NET and diet Page - Ronny Allan - featured postGo straight to the facebook post - click here or go straight to the relevant blog post - click here Page - World Neuroendocrine Cancer Day - featured postGo straight to the facebook post - click here or go straight to the relevant…
Read More
13 Jul 2025
By Ronny Allan
4 Comments
Hot Saturday cycle ride

Hot Saturday cycle ride

Patient Advocacy, Survivorship, Travel with Ronny
You're right, this is a strange title for Ronny to use on his blog........ However, I'm testing a different way to blog from my website to test something which has been annoying me (and others). Anyway, that's the explantion, now enjoy the pictures and story!The weather in UK is currently very hot (..... for UK!) so we decided on a slow cycle down to the nearest beach. It was a great and relaxing ride. We had already taken sandwiches for lunch and we just needed a cup of tea (cappachino for Chri) at a place called The Noisy Lobster -…
Read More
10 Jul 2025
By Ronny Allan
0 Comments
2025: A Review of the 1st half of the year on RonnyAllan.NET – Living with Neuroendocrine Cancer

2025: A Review of the 1st half of the year on RonnyAllan.NET – Living with Neuroendocrine Cancer

Newsletters
ReviewMy 2025 year to date has been really tough due to other commitments.  However, the total viewing figures at 30th June are not bad considering where I started.  To be honest, I’m still flabbergasted by reaching one million views in 2018, and then reach 2 million in December 2020.  I'm over two-thirds of the way to 3 million at 1 Jul 2025. It just happened, there wasn't a plan!  I'm grateful for every single view though.2025 has been a challenging year, mainly because I've had a lot of holidays plus I have a major family commitment which is not looking to…
Read More
01 Jul 2025
By Ronny Allan
0 Comments
Ronny Allan – a review of my blog activity Jun 2025

Ronny Allan – a review of my blog activity Jun 2025

Awareness, Newsletters, Patient Advocacy, ,
Here is the monthly summary of June 2025 on RonnyAllan.NET Every share helps someone understand or even work towards a diagnosis, discovery of the best doctors and treatments.  The selection of top posts this month really shows the breadth of subjects applicable to Neuroendocrine Cancer that need to be considered.  Click on the each of the 10 posts to read. You can share the whole post or you can share those individual posts - each has a share button or you can copy and paste the internet link (url). Use your own words, invite them to subscribe to my website and follow…
Read More
30 Jun 2025
By Ronny Allan
0 Comments
RonnyAllan.NET – weekly round-up 23rd-30th June 2025

RonnyAllan.NET – weekly round-up 23rd-30th June 2025

Newsletters
New or Republished Blog Posts this week https://ronnyallan.net/2025/06/29/a-trial-to-assess-efficacy-and-safety-of-octreotide-subcutaneous-depot-cam2029-in-patients-with-gep-net-sorento/ https://ronnyallan.net/2025/06/27/dll3-expression-in-neuroendocrine-neoplasms-an-overview/ https://ronnyallan.net/2025/06/26/an-enets-position-statement-on-nutritional-support-in-neuroendocrine-neoplasms/ https://ronnyallan.net/2025/06/23/ronnyallan-net-weekly-round-up-23rd-june-2025/ https://ronnyallan.net/2025/04/26/currently-trending-on-ronnyallan-net/ Page Neuroendocrine Cancer This is my biggest and oldest page, mostly generating blog posts for reading and sharing. Click on the icon above to browse this page. Click below to read a popular recent post. Click the graphic to read and share the post Page Ronny Allan This is a personal themed page but also posts blogs. Follow this page for my blogs and my travel plus personal NET related updates. I also use this page to admin and moderate inside my private Facebook group click picture to…
Read More
29 Jun 2025
By Ronny Allan
6 Comments
A Trial to Assess Efficacy and Safety of Octreotide Subcutaneous Depot (CAM2029) in Patients With GEP-NET (SORENTO)

A Trial to Assess Efficacy and Safety of Octreotide Subcutaneous Depot (CAM2029) in Patients With GEP-NET (SORENTO)

Clinical Trials and Research, Treatment, , , , , ,
Click here to read the latest announcement on 11 June 2026. The FDA has assigned a Prescription Drug User Fee Act (PDUFA) target action date of 10 June 2026 for Acromegaly. Lund, Sweden — 9 January 2026 — Camurus (NASDAQ STO: CAMX) today announced that the U.S. Food and Drug Administration (FDA) has accepted for review the company’s resubmission of the New Drug Application (NDA) for Oclaiz™ (CAM2029), octreotide extended-release injection, for the treatment of patients with acromegaly. The FDA has assigned a Prescription Drug User Fee Act (PDUFA) target action date of 10 June 2026. Note:  CAM2029 received a…
Read More
27 Jun 2025
By Ronny Allan
0 Comments
DLL3 Expression in Neuroendocrine Neoplasms – an overview

DLL3 Expression in Neuroendocrine Neoplasms – an overview

Clinical Trials and Research, Treatment, , , , , ,
Updated 20th August 2025 Background - Conventional therapeutic targets for neuroendocrine tumours (NETs) include somatostatin receptors (SSTRs), mammalian Target of Rapamycin (mTOR), Vascular Endothelial Growth Factor (VEGF), and tyrosine kinases. These pathways are crucial for tumour growth, survival, and angiogenesis. The most well known is SSTRs given that most NETs express these and allows targeted therapies such as somatostatin analogues (SSA) and peptide receptor radionuclide therapy (PRRT) to be used. Other targeted therapies like everolimus and sunitinib, which inhibit mTOR and tyrosine kinases respectively.  Sunitinib also targets VEGF as does cabozantinib. For neuroendocrine carcinomas (Grade 3 poorly differentiated), targeting has…
Read More
26 Jun 2025
By Ronny Allan
0 Comments
An ENETS Position Statement on nutritional support in Neuroendocrine Neoplasms

An ENETS Position Statement on nutritional support in Neuroendocrine Neoplasms

Diet and Nutrition, , , , , , , , , ,
I've written many times about Nutrition and NETs - clearly it should say NENs (Neuroendocrine Neoplasms) as the issues also extend to Neuroendocrine Carcinomas.  I was helped in the early days by my friend and 'nutrition for NET' mentor Tara Whyand, at the time, probably the top NET Nutrition Registered Dietitian in the world.  Perhaps she still is. Much of what Tara said and wrote, and what I emphasised, particularly in my blog and my patient group, was that much of this was not fully integrated into NEN patient care as part of a multi disciplinary approach.  Many attempts have…
Read More
23 Jun 2025
By Ronny Allan
2 Comments
RonnyAllan.NET – weekly round-up 23rd June 2025

RonnyAllan.NET – weekly round-up 23rd June 2025

Newsletters
New or Republished Blog Posts this week https://ronnyallan.net/2024/09/20/cabozantinib-for-advanced-neuroendocrine-tumours-another-tool-in-the-treatment-toolbox/ https://ronnyallan.net/2025/06/19/good-morning-from-ronny-allan/ https://ronnyallan.net/?na=view&id=53 https://ronnyallan.net/2025/06/11/dont-delay-your-blood-tests-its-not-good-for-your-health/ https://ronnyallan.net/2025/06/10/ronnyallan-net-weekly-round-up-9th-june-2025/ https://ronnyallan.net/2025/04/26/currently-trending-on-ronnyallan-net/ Page Neuroendocrine CancerThis is my biggest and oldest page, mostly generating blog posts for reading and sharing. Click on the icon above to browse this page. Click below to read a popular recent post. Click the graphic to read and share the post Page Ronny AllanThis is a personal themed page but also posts blogs. Follow this page for my blogs and my travel plus personal NET related updates. I also use this page to admin and moderate inside my private Facebook group RIP Dr Richard Warner…
Read More
11 Jun 2025
By Ronny Allan
0 Comments
Don’t delay your blood tests – it’s not good for your health!

Don’t delay your blood tests – it’s not good for your health!

Patient Advocacy, , , ,
15 years today, and before I was formerly diagnosed, I had a blood test done. And it was a fairly insignificant event, as a precaution, as a "just in case" check after telling a nurse in my GP surgery that I thought I'd lost some weight. The form she gave me sat in my in-tray for a couple of weeks, I was far too busy at work for blood tests. I didn't even feel ill! Fortunately, I did eventually get the test done on 11th June 2010 and and here we are today! Check out the video where I talk…
Read More
10 Jun 2025
By Ronny Allan
0 Comments
RonnyAllan.NET – weekly round-up 9th June 2025

RonnyAllan.NET – weekly round-up 9th June 2025

Newsletters
New or Republished Blog Posts this week https://ronnyallan.net/2025/06/06/a-diagnostic-imaging-study-of-64cu-sartate-for-neuroendocrine-tumours/ https://ronnyallan.net/2025/06/02/ronny-allan-a-review-of-my-blog-activity-may-2025/ https://ronnyallan.net/2025/05/30/ronny-allans-top-10-so-far-in-2025/ https://ronnyallan.net/2025/03/13/histotripsy-the-case-for-use-in-uk/ https://ronnyallan.net/2025/04/26/currently-trending-on-ronnyallan-net/ Page Neuroendocrine Cancer This is my biggest and oldest page, mostly generating blog posts for reading and sharing. Click on the icon above to browse this page. Click below to read a popular recent post. Click the graphic to read and share the post Page Ronny Allan This is a personal themed page but also posts blogs. Follow this page for my blogs and my travel plus personal NET related updates. I also use this page to admin and moderate inside my private Facebook group a special post…
Read More
06 Jun 2025
By Ronny Allan
0 Comments
A Diagnostic Imaging Study of 64Cu-SARTATE™ for Neuroendocrine Tumours

A Diagnostic Imaging Study of 64Cu-SARTATE™ for Neuroendocrine Tumours

Clinical Trials and Research, , , , , , , ,
UPDATE 23rd December 2025. (Originally published Apr 2021).  Phase 3 trial to commence soon (clinical trials reference detail to follow) Sydney, Australia 22 December 2025 Clarity Pharmaceuticals (ASX: CU6) (“Clarity” or “Company”), a clinical-stage radiopharmaceutical company with a mission to develop next-generation products that improve treatment outcomes for patients with cancer, is pleased to announce it will be commencing a pivotal Phase III registrational trial of its 64Cu-SARTATE diagnostic agent in patients with neuroendocrine tumours (NETs). This follows a successful End of Phase meeting with the United States (US) Food and Drug Administration (FDA), in which all key components of the proposed…
Read More
02 Jun 2025
By Ronny Allan
0 Comments
Ronny Allan – a review of my blog activity May 2025

Ronny Allan – a review of my blog activity May 2025

Awareness, Newsletters
Here is the monthly summary of May 2025 on RonnyAllan.NET The list of posts this month was totally unexpected! Every share helps someone understand or even work towards a diagnosis, discovery of the best doctors and treatments.  The selection of top posts this month really shows the breadth of subjects applicable to Neuroendocrine Cancer that need to be considered.  Click on the each of the 10 posts to read. One reason I'm thankful is because I continue to interleave personal life via short motorhome breaks or other holidays/adventures and maintenance of my blog and other social media sites. I was distracted by…
Read More
30 May 2025
By Ronny Allan
0 Comments
Ronny Allan’s Top 10 so far in 2025

Ronny Allan’s Top 10 so far in 2025

Newsletters, Patient Advocacy
Just click on the pictues and read (and hopefully share!) I'm constantly fighting algorithms!  Facebook is the worst, apparently only 10% of followers will get a notification of a new post on my pages.  10% !!! Because I am a blogger for a health condition, they put me amongst businesses.  Clearly they want advertising revenue from business, I get that, Facebook has huge overheads.  But I am here helping people and not reaching my community (unless I pay of course).  However, if you are following my Facebook pages, add them to your favourites and you will help beat the algorithms.…
Read More
19 May 2025
By Ronny Allan
2 Comments
Ronny Allan’s weekly roundup 12th – 18th May 2025

Ronny Allan’s weekly roundup 12th – 18th May 2025

Newsletters
New or Republished Blog Posts this week https://ronnyallan.net/2016/04/21/neuroendocrine-cancer-unexpected-detours/ https://ronnyallan.net/2025/05/12/neuroendocrine-tumours-now-you-see-them-now-you-dont/ https://ronnyallan.net/2025/05/12/ronny-allans-weekly-roundup-5th-11th-may-2025/ Page Neuroendocrine CancerThis is my biggest and oldest page, mostly generating blog posts for reading and sharing. Click on the icon above to browse this page. Click below to read a popular recent post. Click the graphic to read and share the post Page Ronny AllanThis is a personal themed page but also posts blogs. Follow this page for my blogs and my travel plus personal NET related updates. I also use this page to admin and moderate inside my private Facebook group No side effects of Lanreotide whatsoever :-)…
Read More
12 May 2025
By Ronny Allan
0 Comments
Ronny Allan’s weekly roundup 5th – 11th May 2025

Ronny Allan’s weekly roundup 5th – 11th May 2025

Newsletters
New or Republished Blog Posts this week https://ronnyallan.net/2025/05/12/neuroendocrine-tumours-now-you-see-them-now-you-dont/ https://ronnyallan.net/2025/05/04/ronny-allans-weekly-round-up-for-29th-apr-4th-may-2025/ https://ronnyallan.net/2025/05/01/ronny-allan-a-review-of-my-blog-activity-april-2025/ https://ronnyallan.net/2025/04/28/the-6-es/ https://ronnyallan.net/2025/04/26/currently-trending-on-ronnyallan-net/ Page Neuroendocrine CancerThis is my biggest and oldest page, mostly generating blog posts for reading and sharing. Click on the icon above to browse this page. Click below to read a popular recent post. Click the graphic to read and share the post Page Ronny AllanThis is a personal themed page but also posts blogs. Follow this page for my blogs and my travel plus personal NET related updates. I also use this page to admin and moderate inside my private Facebook group a special post box in…
Read More
12 May 2025
By Ronny Allan
0 Comments
Neuroendocrine Tumours – now you see them, now you don’t!

Neuroendocrine Tumours – now you see them, now you don’t!

Treatment, , , , , , , , , , , ,
In my post entitled "If you can see it, you can detect it", I listed the different types of scanning techniques and technology to find evidence of disease in Neuroendocrine Tumours (NETs).  Of course, while scans, blood and (current) marker tests can give some pretty big and important clues, "tissue is the issue" that is most efficientEven after formal diagnosis, seeing all the tumours can be a challenge with NETs.  In the article I quoted above, I indicated that scans for NETs can be analogous to picking 'horses for courses'. For example, most NETs have somatostatin receptors and can often…
Read More
04 May 2025
By Ronny Allan
0 Comments
Ronny Allan’s weekly round-up for 29th Apr – 4th May 2025

Ronny Allan’s weekly round-up for 29th Apr – 4th May 2025

Newsletters, Patient Advocacy
New or Republished Blog Posts this week https://ronnyallan.net/2025/05/01/ronny-allan-a-review-of-my-blog-activity-april-2025/ https://ronnyallan.net/2025/04/28/the-6-es/ https://ronnyallan.net/2025/04/26/repeat-after-me-make-time-for-your-wellness/ https://ronnyallan.net/2025/04/26/currently-trending-on-ronnyallan-net/ Page Neuroendocrine Cancer This is my biggest and oldest page, mostly generating blog posts for reading and sharing. Click on the icon above to browse this page. Click below to read a popular recent post. Click the graphic to read and share the post Page Ronny Allan This is a personal themed page but also posts blogs. Follow this page for my blogs and my travel plus personal NET related updates. I also use this page to admin and moderate inside my private Facebook group Exciting mail! Page World…
Read More
01 May 2025
By Ronny Allan
0 Comments
Ronny Allan – a review of my blog activity April 2025

Ronny Allan – a review of my blog activity April 2025

Newsletters, Patient Advocacy
Here is the monthly summary of April 2025 on RonnyAllan.NETEvery share helps someone understand or even work towards a diagnosis, discovery of the best doctors and treatments.  The selection of top posts this month really shows the breadth of subjects applicable to Neuroendocrine Cancer that need to be considered.  Click on the each of the 10 posts to read. One reason I'm thankful is because I continue to interleave personal life via short motorhome breaks or other holidays/adventures and maintenance of my blog and other social media sites. I was distracted by many personal things in April 2025, (including a 2 week overseas holiday)…
Read More
28 Apr 2025
By Ronny Allan
1 Comment
The 6 E’s

The 6 E’s

Diet and Nutrition, Inspiration, Patient Advocacy, Survivorship, , , , , , , , , , , , ,
An opinion post When I first heard of something called "The 5 Es", it struck me that I was aware of these issues and their potential effects; and I’m certain there is science to substantiate most of the content. These 5 E’s are apparently the most common ‘triggers’ for (so called) Carcinoid Syndrome. Clearly, they are not going to have the same effect on every patient e.g. I have the occasional drink of ‘Ethanol’ and I always enjoy it, I go for long exhausting walks as ‘Exercise’ and I always feel great after. I had dental treatment using ‘Epinephrine’ without any precautions before and after…
Read More
26 Apr 2025
By Ronny Allan
1 Comment
Repeat after me: Make time for your wellness

Repeat after me: Make time for your wellness

Inspiration, Patient Advocacy, Survivorship,
Following a diagnosis of metastatic Neuroendocrine Cancer in 2010, I had no idea about outcomes.  Back, then I was focused on getting my illness fixed or patched up.  That took a few years and several procedures including 3 surgeries, plus a ton of drugs including a monthly injection. Apart from recuperation periods following those procedures, I pretty much worked as normal as possible throughout that 3 years, I thought that was part of my healing, mental and physical.  I didn't really holiday a lot, perhaps in hindsight, that was a foolish omission. Finally, when I broke out of my illness…
Read More
26 Apr 2025
By Ronny Allan
6 Comments
Catch up on Ronny Allan’s Blog

Catch up on Ronny Allan’s Blog

Awareness, Clinical Trials and Research, Diet and Nutrition, Humour, Inspiration, Latest ENETS Guidelines, Living with Neuroendocrine Cancer, Newsletters, Patient Advocacy, Ronny Allan's "The Trouble with the NET Series", Spotlight on NENs - Types Series, Survivorship, The NET Effect Series, Travel with Ronny, Treatment
You guys lead busy lives but the aim of this article is to help you catch up. Below are the most read posts in the last 7 days.  Click on anything that takes your fancy.  Many thanks.  To read any article, just click on the title/picture below Latest from Instagram https://www.instagram.com/neuroendocrine.cancer.ronny/ Select of category of posts you'd like to see Disclaimer I am not a doctor or any form of medical professional, practitioner or counsellor. None of the information on my website, or linked to my website(s), or conveyed by me on any social media or presentation, should be interpreted as…
Read More