30 Dec 2025
By Ronny Allan
0 Comments
A review of 2025 on RonnyAllan.NET

A review of 2025 on RonnyAllan.NET

Awareness, Living with Neuroendocrine Cancer, Newsletters, Patient Advocacy, , ,
Summary of 2025 from Ronny  It was a good year for my advocacy work but a difficult year personally which had some impact on my advocacy work.  I had to spend quite a bit of time looking after my brother's affairs when he was diagnosed with dementia and is now living in residential care. That took a lot of  my free time away, not that I resent it, it's just one of those things you just have to do, despite the stress it entails.  I also have a glitch on my website affecting iPhones which I'm slowly working through.   …
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24 Dec 2025
By Ronny Allan
8 Comments
15 years of Christmas!

15 years of Christmas!

Awareness, Inspiration, Patient Advocacy, Travel with Ronny, ,
15 Christmas celebrations since diagnosis. A thankful statement My Facebook memories today are full of Christmas activities including my first Christmas following diagnosis of advanced Neuroendocrine Cancer.  I had been out of hospital for only 4 weeks following major surgery in 2010. I remember the whole of my own family attended, my son and daughter's families and 3 grandsons (.... since diagnosis, I now have 4 💜).  Since last Christmas, I celebrated my eldest Grandson's 21st birthday on 3rd Jan 2025, he was only 6 when I was diagnosed.  I also enjoyed celebrating Chris's 70th birthday on 11th December 2024,…
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17 Dec 2025
By Ronny Allan
0 Comments
Another Next Generation PET/CT is coming soon. The Omni 128cm Total Body PET – Small Australian trial at Peter Mac

Another Next Generation PET/CT is coming soon. The Omni 128cm Total Body PET – Small Australian trial at Peter Mac

Clinical Trials and Research, Patient Advocacy, ,
A Global first for NET.  Omni 128cm Total Body PET at the Peter MacCallum Cancer Centre in Melbourne Australia.  According to Professor Michael Hofman, they have been using the camera for a couple weeks and it is exceeding their expectations.  They're running a short trial comparing results against regular PETs.  The great news is that part of the trial will be a prospective sub-trial around dual FDG/ DOTATATE.  In fact I now know that the first patient  in the world to be scanned was a Pancreatic NET and you can watch a great video of this event below. What is…
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14 Dec 2025
By Ronny Allan
0 Comments
Neuroendocrine Cancer: I hadn’t heard of it until I was diagnosed with it

Neuroendocrine Cancer: I hadn’t heard of it until I was diagnosed with it

Awareness, Patient Advocacy,
My diagnosis came with many strange words including, "carcinoid" and "neuroendocrine" ......... can you spell that please, I said to the doctor. I had a low ki67 figure from a tissue sample taken percutaneously from my liver, it seemed pretty good that I was only 5 in a range of 0-100 but somehow the word 'indolent' did not seem to match the long list of metastases including the mesentery, the liver, the retroperitoneal cavity, the armpit, the clavicle. If that was not enough, there was also a long list of secondary effects including but not limited to "mesenteric fibrosis", "retroperitoneal…
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14 Dec 2025
By Ronny Allan
0 Comments
Ronny Allan’s ‘PoNETry’ © – An Ode to Invisible Illness

Ronny Allan’s ‘PoNETry’ © – An Ode to Invisible Illness

Inspiration, Living with Neuroendocrine Cancer, Patient Advocacy, Survivorship, , , , , , ,
Ronny Allan's 'PoNETry' © series can be shared with poetry credit to: RonnyAllan Thanks for reading Ronny I also have one about Lanreotide (or "butt darts" in general) - click here Click here and answer all questions to join my private Facebook group   Check out my WEGO Health Awards Check out my Glossary of Terms - click here   Please Share this post for Neuroendocrine Cancer awareness and to help another patient  
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07 Dec 2025
By Ronny Allan
0 Comments
Neuroendocrine Tumours (NET) – hiding in plain sight – an awareness post from Ronny Allan

Neuroendocrine Tumours (NET) – hiding in plain sight – an awareness post from Ronny Allan

Awareness, Patient Advocacy, , ,
When I was diagnosed, I didn’t even feel ill. It was therefore a bit of a shock being told I had metastatic cancer, advanced enough to kill me without treatment. It was hiding But it did make me think back to some minor irritants, or to be accurate what I thought were minor irritants, things that I could not explain, things that I did not think were serious enough to speak to a doctor.  And what would this doctor have said at the time? I was never misdiagnosed because I was never diagnosed with anything that wasn’t already there and documented.…
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07 Dec 2025
By Ronny Allan
0 Comments
Ronny Allan – just a wee Scottish guy with a computer

Ronny Allan – just a wee Scottish guy with a computer

Awareness, Patient Advocacy
I was assessing performance of the awareness period in November 2025 on Facebook and was astonished to find the size of my reach on that platform.  It appears I reached well over half a million people (572,700 to be exact) when adding up the performance of my 3 public Facebook pages (from left to right 16k, 3k and 8.5k followers).  Clearly much of this performance was generated by people reading and sharing my work.  But the most astonishing figures came from separating these views into followers (of my Facebook pages) and non-followers (a clear target for awareness).   From the graphic…
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05 Dec 2025
By Ronny Allan
0 Comments
Ronny Allan – a review of my blog activity November 2025

Ronny Allan – a review of my blog activity November 2025

Newsletters
Here is the monthly summary of November 2025 on RonnyAllan.NET - Every share helps someone understand or even work towards a diagnosis, discovery of the best doctors and treatments.  November is not a good month for me because I tend to think back to the worrying times when I had surgery and spent most of the month in hospital recovering from that.  It's also a month where I feel real awareness of Neuroendocrine Cancer takes a backwards step as others continue with the 1980s theme instead of getting into the 21st century.  However that said, I had a very good…
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17 Nov 2025
By Ronny Allan
0 Comments
Bone metastases in Neuroendocrine Tumours (NET) – Part 1

Bone metastases in Neuroendocrine Tumours (NET) – Part 1

Patient Advocacy, , , , ,
DisclaimerThis information is for education and reassurance only.It is not a substitute for personalised medical advice, diagnosis, or treatment. Bone metastases in neuroendocrine tumours (NETs) vary widely in behaviour, appearance, and clinical significance. Decisions about systemic therapy, radiotherapy, ablation, bone‑targeted agents, surgery, or monitoring must be made by your own specialist NET team, who understand your full medical history, imaging, pathology, and symptoms. Every patient’s situation is unique.The treatments described here — including somatostatin analogues, PRRT, targeted therapies, chemotherapy, radiotherapy, ablation, bone‑targeted agents, and surgical stabilisation — are used differently depending on tumour type, receptor status, bone stability, symptoms, and…
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16 Nov 2025
By Ronny Allan
0 Comments
MP0712 (212Pb x DLL3), Radio-DARPin – DLL3 Radioligand Therapy Trial for Neuroendocrine Neoplasms

MP0712 (212Pb x DLL3), Radio-DARPin – DLL3 Radioligand Therapy Trial for Neuroendocrine Neoplasms

Clinical Trials and Research, , , , , , , , ,
Update 2nd July 2026. First patients dosed.  Molecular Partners and Orano Med have dosed the first patients in a US Phase 1/2a trial of MP0712, a novel Radio-DARPin drug targeting DLL3, a protein highly expressed in small cell lung cancer and other neuroendocrine tumors. This therapy uses lead-212 to deliver targeted alpha radiation to tumors, aiming to improve treatment precision and reduce side effects. Initial safety and efficacy data are expected later in 2026, with comprehensive results anticipated in 2027. The trial is ongoing at five US sites, with more centers planned to open this year. What is Radioligand Therapy?…
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09 Nov 2025
By Ronny Allan
0 Comments
It’s been 15 years since my “big surgery”

It’s been 15 years since my “big surgery”

Awareness, Inspiration, Patient Advocacy, , ,
D Day  I was 54 years and 9 months old at diagnosis on 26th July 2010.  For the first few months, I had no idea what the outcome would be.  What I did know at the time, given the final staging and grading, in addition to the other damage that was accumulated via various tests, checks, and scans; is that my body had been slowly dying. Without intervention I may not be here now to tell you this tale and who knows what would be listed on my death certificate. It’s amazing to think something that would eventually kill me…
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08 Nov 2025
By Ronny Allan
0 Comments
The Dethroning of Neuroendocrine Neoplasms as an Orphan Disease: US Incidence, Prevalence, and Survival in the 21st Century

The Dethroning of Neuroendocrine Neoplasms as an Orphan Disease: US Incidence, Prevalence, and Survival in the 21st Century

Awareness, Patient Advocacy, , ,
  USA - Prevalence of Neuroendocrine Neoplasms (NENs) breaches the Orphan Disease threshold for the first time (officially) The latest US SEER figures confirm that staggering increase in the prevalence of NENs. In that cross-sectional study which evaluated 145,477 NEN cases in the US, age-adjusted incidence rates increased 5.2-fold between 1975 and 2021, with an annual percentage change of 3% between 2000 and 2020, and the 20-year limited duration prevalence projected in the US population on January 1, 2021, was 243 896. Survival for all NENs improved, including for patients with distant-stage gastrointestinal and pancreatic NENs. And even this figure is…
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07 Nov 2025
By Ronny Allan
0 Comments
Reframing Neuroendocrine Neoplasms Beyond “Rare”

Reframing Neuroendocrine Neoplasms Beyond “Rare”

Awareness, Patient Advocacy, , , ,
  Neuroendocrine neoplasms (NENs) have outgrown the “rare disease” label. e.g. Across the U.S., UK, Australia, and Canada.  They now rank among the most commonly diagnosed cancers — yet they remain under-recognised in mainstream healthcare circles, often misdiagnosed in primary and secondary care, but continue to be medically complex requiring specialist input which often arrives late. The Global Reality - examples These figures reflect improved diagnostics, rising awareness, and longer survival (thus the prevalence figures) — but they also expose a critical gap: prevalence has increased, but understanding has not appeared to keep up.  Some of  you might add that…
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06 Nov 2025
By Ronny Allan
0 Comments
Every stripe is lost awareness

Every stripe is lost awareness

Awareness, Patient Advocacy, , ,
  Since 2015, my message has not changed and it continues to be justified because since then, many important voices in the NEN community have repeated it!  However, there has been, and still remains, some intransigence, although some of that has now buckled in the face of the recent US SEER extract from NET specialists and similar for Canadian statistics in 2026.  These two pieces of data add to the voices of UK and Australia who were ahead of the game with higher quality data some time ago.  Clearly the model is changing and everyone needs to start reframing Neuroendocrine…
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01 Nov 2025
By Ronny Allan
0 Comments
Ronny Allan – a review of my blog activity September and October 2025

Ronny Allan – a review of my blog activity September and October 2025

Newsletters
Here is the monthly summary of September and October 2025 on RonnyAllan.NET - Every share helps someone understand or even work towards a diagnosis, discovery of the best doctors and treatments.  I was too maxed out at the beginning of September, so skipped it to pick up along with October.  The selection of top posts this month really shows the breadth of subjects applicable to Neuroendocrine Cancer that need to be considered. Click on the each of the 10 posts to read. You can share the whole post or you can share those individual posts - each has a share…
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31 Oct 2025
By Ronny Allan
15 Comments
Neuroendocrine Cancer? – Where to find a NET Centre/Specialist Worldwide

Neuroendocrine Cancer? – Where to find a NET Centre/Specialist Worldwide

Awareness, Diet and Nutrition, Living with Neuroendocrine Cancer, Patient Advocacy, Survivorship, , , , , , , , , , , , , , , , , , , , ,
Scroll down to check out the doctors list just below Important note The accuracy of these lists depends on the accuracy of the sources. If you think the source is wrong, let them know, not me. However, you can also join my private Facebook group and someone in there will often be more up to date than the source!  To the best of my knowledge, this the only attempt at a worldwide list of specialists.  Finding experts Many people ask for a definition of a "NET Specialist". There's also discussions surrounding Multidisciplinary Teams (MDT)/Tumor Boards and Centres of Excellence (CoE).…
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31 Oct 2025
By Ronny Allan
0 Comments
Reports of my death have been greatly exaggerated….. the pitfalls of Artificial Intelligence (AI)

Reports of my death have been greatly exaggerated….. the pitfalls of Artificial Intelligence (AI)

Humour
Reports of my death have been greatly exaggerated….. the pitfalls of Artificial Intelligence (AI) I recently discovered — to my great amusement - that someone referred to me as “the late Ronny Allan.” While I appreciate the dramatic flair, I’d like to reassure everyone that I’m still very much alive, caffeinated, and actively moderating, educating, and occasionally ranting about neuroendocrine cancer.  To be fair, I do spend a lot of time digging through esoteric subjects such as pathology reports and clinical trial data, so perhaps someone mistook my silence for eternal rest. Or maybe they just assumed that anyone who’s…
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30 Oct 2025
By Ronny Allan
0 Comments
I made it to 70!

I made it to 70!

Awareness, Inspiration, Living with Neuroendocrine Cancer, Patient Advocacy
I started doing the “Piss off cancer” series when I got to 65, mainly because I initially thought I wouldn’t make that age. I was 54 years and 9 months old at diagnosis on 26th July 2010.  For the first few months, I had no idea what the outcome would be.  What I did know at the time, given the final staging, grading, and other damage that was accumulated via various tests, checks, and scans; is that my body had been slowly dying. Without intervention I may not be here now to tell you this tale and who knows what…
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29 Oct 2025
By Ronny Allan
0 Comments
European Neuroendocrine Tumor Society (ENETS) 2023 guidance paper for appendiceal neuroendocrine tumours (aNET)

European Neuroendocrine Tumor Society (ENETS) 2023 guidance paper for appendiceal neuroendocrine tumours (aNET)

Latest ENETS Guidelines, Treatment, , ,
European Neuroendocrine Tumor Society (ENETS) 2023 guidance paper for appendiceal neuroendocrine tumours (aNET) Appendiceal neuroendocrine tumours (aNET) account for 50%–77% of all appendiceal neoplasms and are mostly identified incidentally following appendicectomy for acute appendicitis or after a laparotomy performed for unrelated reasons. In the great majority, aNET are low grade (>80% grade 1 (G1)) and very rarely, if ever, are associated with a secretory syndrome. This post is part of my ENETS Guideline series and supplements my Spotlight series article which can be found by clicking here.TABLE 1. Nine clinical questions for aNET scenarios.Q1 – What is the current incidence of aNET…
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27 Oct 2025
By Ronny Allan
0 Comments
Weekly roundup from Ronny 20th – 26th October 2025

Weekly roundup from Ronny 20th – 26th October 2025

Newsletters
Weekly roundup from RonnyAllan.NET covering period 20th - 26th October 2025 A busy week!  I continue to be diverted on personal stuff but still managed to publish many things.  My biggest task which has been outstanding for a while, was published and commenting on the latest statistics on Neuroendocrine Neoplasms out of USA, the first SEER output since 2017.  Heading - Neuroendocrine Neoplasms as a group are not rare - but then I have been saying that for 10 years.  If you missed the conversation on Facebook - click here.   New or updated blogs in the last 7 days: CABOMETYX®…
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19 Oct 2025
By Ronny Allan
0 Comments
Weekly roundup from Ronny 13th – 19th October 2025

Weekly roundup from Ronny 13th – 19th October 2025

Newsletters
  Weekly roundup from RonnyAllan.NET covering period 13th - 19th October 2025 A busy week!  I continue to be diverted on personal stuff but still managed to publish many things.  My biggest task which has been outstanding for a while, was published and commenting on the latest statistics on Neuroendocrine Neoplasms out of USA, the first SEER output since 2017.  Heading - Neuroendocrine Neoplasms as a group are not rare - but then I have been saying that for 10 years.  If you missed the conversation on Facebook - click here.  But a link to the article is also below. …
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18 Oct 2025
By Ronny Allan
2 Comments
Neuroendocrine Cancer: Looking for a Needle in a Haystack

Neuroendocrine Cancer: Looking for a Needle in a Haystack

Patient Advocacy, , , , , , , , , , , ,
Reviewed and edited 17th August 2026 The short answer Neuroendocrine cancer is difficult to detect because many grow slowly, behave unpredictably, and often hide behind common, misleading symptoms. Even with modern imaging and pathology, many tumours remain invisible until they metastasise. That’s why NETs are often described as “a needle in a haystack.” Why Neuroendocrine Cancer Is So Hard to Find Neuroendocrine neoplasms (NENs) are uncommon, heterogeneous, and frequently misdiagnosed. They mimic everyday conditions such as IBS, asthma, menopause, anxiety, gallbladder disease, and acid reflux. This symptom overlap leads to long diagnostic delays — often 5–7 years from first symptoms…
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13 Oct 2025
By Ronny Allan
0 Comments
10 Random Blog posts Set 1 – RonnyAllan.NET

10 Random Blog posts Set 1 – RonnyAllan.NET

Diet and Nutrition, Inspiration, Living with Neuroendocrine Cancer, Newsletters, Patient Advocacy, Survivorship, The NET Effect Series, Treatment
10 Random Blog posts Set 1 - RonnyAllan.NET WelcomeA new series of random blogs that are not only informational, but also relevant. Carefully selected by the author.Thanks for reading.  Feedback welcome. Neuroendocrine Cancer Nutrition Series Article 2 – Gastrointestinal Malabsorption The Cancer Legacy of Steve Jobs Cancer-related fatigue (CRF) - The NET Effect Jimmy Buffett 1946-2023 - Neuroendocrine Carcinoma (Merkel Cell Carcinoma) Cancer Ablation Meet Edison® Histotripsy System - powerful bubbles   Lower grade higher stage NETs - slow motion, chronic and indolent?   Neuroendocrine Cancer Awareness - let’s move into the 21st century   Living with NETs - nobody…
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25 Sep 2025
By Ronny Allan
8 Comments
Immunotherapy and Neuroendocrine Neoplasms

Immunotherapy and Neuroendocrine Neoplasms

Clinical Trials and Research, Treatment, , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , ,
Updated 24th September 2025. Introduction There's a lot of Immunotherapy stuff out there!  The picture regarding its use in Neuroendocrine Neoplasms is not clear and there is no general roadmap printed.  I first heard of Immunotherapy for NETs following attendance at ENETS 2017 in Barcelona. The presentation that sticks out was one given by Dr Matthew Kulke, a well-known NET Specialist in Boston. My reaction to the presentation was one of 'expectation management' and caution i.e. it's too soon to know if we will get any success and when we will get it. He also hinted that it's more likely…
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22 Sep 2025
By Ronny Allan
0 Comments
Weekly update 22nd September 2025

Weekly update 22nd September 2025

Newsletters, ,
Another helpful week with some good support on my social media outlets.  This is despite a reduction in new posts while I resolve some website issues.  I thank you if you  have supported my website via my social media accounts, particularly Facebook. So what are the highlights of last week?  Let's start with my Pheochromocytoma/Paraganglioma campaign. Click here or the picture below to read the post.  Why not join in on the Facebook post - click here. Steve Jobs is always a draw, he's so well known.  He may not have taken part in much Neuroendocrine Cancer awareness when he…
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18 Sep 2025
By Ronny Allan
0 Comments
The Treachery of Pheochromoctyomas and Paragangliomas – please think of it!

The Treachery of Pheochromoctyomas and Paragangliomas – please think of it!

Patient Advocacy, , ,
Something came up in my timeline this week and I really enjoyed reading it.  I have many alerts set for various subjects including Pheochromocytomas and Paragangliomas.  Often an old published article is republished making it to my alert system and it got pushed up the timeline. It did seem like it was up to date but I eventually spotted it was from 2006! I appreciated some of the content because it had confirmed many parts of my knowledge about these interesting tumours. Two things stood out in this 2006 document:  Firstly, the mention of how many of these tumours are…
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03 Sep 2025
By Ronny Allan
0 Comments
The 4 Cs – Causation, Correlation, Coincidence and Confounding Factors

The 4 Cs – Causation, Correlation, Coincidence and Confounding Factors

Patient Advocacy,
I learn a lot in my private patient group.  I also notice people jumping to conclusions on the cause of their issue when two variable things change at the same time.  It is pretty normal (and even I do it) to want to know what is causing a symptom but working out the causes is not always easy.  Treating the symptoms may be a more efficient use of time and energy.  Healthcare professionals are better placed to work this stuff out but in 2025, the internet, google, and even artificial intelligence can help the resourceful patient/caregiver.  But all of these…
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02 Sep 2025
By Ronny Allan
0 Comments
Ronny Allan – a review of my blog activity August 2025

Ronny Allan – a review of my blog activity August 2025

Awareness, Newsletters, Patient Advocacy
Here is the monthly summary of August 2025 on RonnyAllan.NET - Every share helps someone understand or even work towards a diagnosis, discovery of the best doctors and treatments. The selection of top posts this month really shows the breadth of subjects applicable to Neuroendocrine Cancer that need to be considered. Click on the each of the 10 posts to read. You can share the whole post or you can share those individual posts - each has a share button or you can copy and paste the internet link (url). Use your own words, invite them to subscribe to my…
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19 Aug 2025
By Ronny Allan
0 Comments
Last week on Ronny Allan dot NET – 11-17 Aug 2025

Last week on Ronny Allan dot NET – 11-17 Aug 2025

Newsletters, Patient Advocacy
It's been an amazing week on my Facebook pages with some knock on effect on my website. I have been working on (and focussing on) my main Facebook page and I appreciate the support from you guys. Sharing a facebook post has proven to be very powerful for some of my posts on that page (Neuroendocrine Cancer). Between us we attracted many people from outside the community and many who were not part of the community but now are. Thank you. On my website, I only added a couple of posts last week: 1. 2025 Surveillance Update from Ronny Allan:…
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16 Aug 2025
By Ronny Allan
0 Comments
2025 Surveillance Update from Ronny Allan: “No evidence of progressive disease”

2025 Surveillance Update from Ronny Allan: “No evidence of progressive disease”

Inspiration, Living with Neuroendocrine Cancer, Patient Advocacy, , ,
It's only a couple of weeks since I celebrated my 15th year since diagnosis of metastatic small intestine Neuroendocrine Tumour (NET) at Grade 2.  Thinking back to that period of my life, I'm happy but also slightly amazed to be celebrating such a long milestone having been diagnosed with cancer at Stage IV. I think it's a sign of many things, including but not limited to, early intervention by inquisitive healthcare professionals following vague symptoms, early access to a NET multidisciplinary team (MDT). Of course, human resilience must also be a factor. I didn't take this diagnosis lying down, I…
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14 Aug 2025
By Ronny Allan
0 Comments
Surgery is risky but so is driving a car

Surgery is risky but so is driving a car

Treatment, , ,
I enjoyed reading an article written by Dr Eric Liu entitled The Complications of Surgery. In his article, Dr Liu, himself a surgeon, explains that surgery comes with risks, and patients should be made aware and be able to discuss these risks with their doctors. This got me thinking about my own experience which goes back to the autumn of 2010 when I first met my surgeon. At that time, there were a few articles about whether surgery or ‘biologic agents was the best treatment for certain types, grades and stages of Neuroendocrine Tumours (NETs). To some extent, these debates continue, particularly…
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11 Aug 2025
By Ronny Allan
0 Comments
I may look well, but you can’t see my battles!

I may look well, but you can’t see my battles!

Patient Advocacy, ,
As I ponder my annual surveillance this summer and wonder what will be discussed, I also think about how far I’ve travelled and what I have been able to do.  It’s more than I thought I’d be able to do, I didn’t expect to still be here. Often, I feel lucky.  Perhaps an odd thing to say when I’m living with Stage IV cancer.  But those cards were dealt in 2010, and I now play with a new deck where I do have some control over how those cards are played.  As long as it’s not a flush! No pity please.…
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09 Aug 2025
By Ronny Allan
0 Comments
NETTER-3 – Clinical Trial: [177Lu]Lu-DOTA-TATE in Patients With Grade 1 and Grade 2 Advanced GEP-NET

NETTER-3 – Clinical Trial: [177Lu]Lu-DOTA-TATE in Patients With Grade 1 and Grade 2 Advanced GEP-NET

Clinical Trials and Research, Patient Advocacy, Treatment, ,
Why is this trial important? The output of NETTER-2, suggested Lutathera for GEP-Grade 2 and 3 NETs could be used as a first line treatment. In some areas this appeared to be controversial.  The data from NETTER-1, which was focused on Grade 1 and 2 (less than ki67 of 10%), did not conclude the same, different aim. However, this appears to be the main aim of NETTER-3, to look at the data in the same way as NETTER-2 but for Grade 1 and 2 with similar criteria used on NETTER-1. You might say NETTER-3 is a follow on from NETTER-1 but…
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08 Aug 2025
By Ronny Allan
0 Comments
Ronny Allan – a review of my blog activity July 2025

Ronny Allan – a review of my blog activity July 2025

Awareness, Newsletters, Patient Advocacy
Here is the monthly summary of July 2025 on RonnyAllan.NET Every share helps someone understand or even work towards a diagnosis, discovery of the best doctors and treatments.  The selection of top posts this month really shows the breadth of subjects applicable to Neuroendocrine Cancer that need to be considered.  Click on the each of the 10 posts to read. You can share the whole post or you can share those individual posts - each has a share button or you can copy and paste the internet link (url). Use your own words, invite them to subscribe to my website and…
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07 Aug 2025
By Ronny Allan
0 Comments
Sometimes you gotta climb that hill because it’s a better view!

Sometimes you gotta climb that hill because it’s a better view!

Living with Neuroendocrine Cancer, Sometimes you gotta climb that hill!, Survivorship, Travel with Ronny,
For those who are not familiar with my "sometimes you gotta climb that hill" series, let me explain one important thing before you read. These posts are metaphorical posts. The "hill" represents a challenge, often one that people with cancer have to face. It is not a blog about physically walking up a hill - although I do use my outdoor challenges to get the point over (plus many of my followers prefer my exploits to my technical articles!). I always get a lot of personal satisfaction and self administered mental health treatment by taking part, and that is also…
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28 Jul 2025
By Ronny Allan
0 Comments
Weekly Roundup on RonnyAllan.NET – 28th July 2025

Weekly Roundup on RonnyAllan.NET – 28th July 2025

Newsletters, Patient Advocacy
New or Repurposed/Republished blogs this weekClick pictures to read Click the picture to read the post Page - Neuroendocrine Cancer - featured post Go straight to the facebook post - click here or go straight to the relevant blog post - click here Page - Ronny Allan - featured postGo straight to the facebook post - click here or go straight to the relevant blog post - click here Page - World Neuroendocrine Cancer Day - featured postGo straight to the facebook post - click here or go straight to the relevant blog post - click here Now click on…
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24 Jul 2025
By Ronny Allan
0 Comments
My NET is different than yours

My NET is different than yours

A spotlight on NENs, Awareness, Living with Neuroendocrine Cancer, , , , , , ,
When you manage a large support group, you see a lot of posts.  Many of them highlight a lack of knowledge about the heterogeneity of Neuroendocrine Neoplasms.  The issue is not always with those answering the question but often it is the person asking the question.  Sometimes intervention is needed to focus responses. So, what are the key issues?   Read on..... If you read any authoritative source on this cancer, it will normally begin with “Neuroendocrine Neoplasms (NENs) are heterogeneous tumours ………….”  “Heterogeneous” means consisting of dissimilar parts or elements, essentially meaning “mixed” or “diverse,” but I used the term…
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21 Jul 2025
By Ronny Allan
0 Comments
Ronny’s Weekly Roundup 14th – 20th July 2025

Ronny’s Weekly Roundup 14th – 20th July 2025

Patient Advocacy
New or Repurposed/Republished blogs this weekClick pictures to read https://medicalstories.tv/ Page - Neuroendocrine Cancer - featured post Go straight to the facebook post - click here or go straight to the relevant blog post - click here Page - Ronny Allan - featured postGo straight to the facebook post - click here or go straight to the relevant blog post - click here Page - World Neuroendocrine Cancer Day - featured postGo straight to the facebook post - click here or go straight to the relevant blog post - click here https://ronnyallan.net
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16 Jul 2025
By Ronny Allan
0 Comments
Ronny Allan’s Glossary of Terms (Basic Edition)

Ronny Allan’s Glossary of Terms (Basic Edition)

Clinical Trials and Research, Diet and Nutrition, Living with Neuroendocrine Cancer, Patient Advocacy, Ronny Allan's "The Trouble with the NET Series", Spotlight on NENs - Types Series, The NET Effect Series, Treatment, ,
Welcome to my Neuroendocrine Cancer terms and definitions list providing a source of meanings for acronyms and medical terms, all sourced from top cancer/Neuroendocrine Cancer sites.  This version is a simple combination of an intelligent search (e.g. type first character to filter etc) plus a simple long list of all the terms in my repository. But each has a link which will direct you to the definition of the term plus where applicable, links to any of my articles where I have tagged this term (therefore providing added context).Please note I’m constantly working on the repository to clean up all definitions, adding…
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15 Jul 2025
By Ronny Allan
5 Comments
Medical Stories – Neuroendocrine Tumors (NETs): Anthony’s Story

Medical Stories – Neuroendocrine Tumors (NETs): Anthony’s Story

Inspiration, ,
Great patient story from Anthony and Amy featuring well-known US NET specialist Dr Pamela Kunz. Some of you will have heard me or read one of my posts, emphasising the importance of patient stories.  This story encompasses all the strongest areas for awareness but also explains a classic NET journey for others to hear about.  It's wonderful to hear the voice of caregiver Amy as these things tend to impact on close family too.  I hear that strength come through in her voice and I'm sure Anthony appreciates that.  Anthony is a strong too, this guy plays soccer, tennis, he runs…
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14 Jul 2025
By Ronny Allan
0 Comments
RonnyAllan.NET – weekly round-up 7th – 13th July 2025 

RonnyAllan.NET – weekly round-up 7th – 13th July 2025 

Newsletters, Patient Advocacy
New or Repurposed/Republished blogs this weekClick pictures to read Page - Neuroendocrine Cancer - featured post Go straight to the facebook post - click here or go straight to the relevant blog post - click here Page - Neuroendocrine Cancer - featured post Click here to read about NET and diet Page - Ronny Allan - featured postGo straight to the facebook post - click here or go straight to the relevant blog post - click here Page - World Neuroendocrine Cancer Day - featured postGo straight to the facebook post - click here or go straight to the relevant…
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13 Jul 2025
By Ronny Allan
4 Comments
Hot Saturday cycle ride

Hot Saturday cycle ride

Patient Advocacy, Survivorship, Travel with Ronny
You're right, this is a strange title for Ronny to use on his blog........ However, I'm testing a different way to blog from my website to test something which has been annoying me (and others). Anyway, that's the explantion, now enjoy the pictures and story!The weather in UK is currently very hot (..... for UK!) so we decided on a slow cycle down to the nearest beach. It was a great and relaxing ride. We had already taken sandwiches for lunch and we just needed a cup of tea (cappachino for Chri) at a place called The Noisy Lobster -…
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10 Jul 2025
By Ronny Allan
0 Comments
2025: A Review of the 1st half of the year on RonnyAllan.NET – Living with Neuroendocrine Cancer

2025: A Review of the 1st half of the year on RonnyAllan.NET – Living with Neuroendocrine Cancer

Newsletters
ReviewMy 2025 year to date has been really tough due to other commitments.  However, the total viewing figures at 30th June are not bad considering where I started.  To be honest, I’m still flabbergasted by reaching one million views in 2018, and then reach 2 million in December 2020.  I'm over two-thirds of the way to 3 million at 1 Jul 2025. It just happened, there wasn't a plan!  I'm grateful for every single view though.2025 has been a challenging year, mainly because I've had a lot of holidays plus I have a major family commitment which is not looking to…
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01 Jul 2025
By Ronny Allan
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Ronny Allan – a review of my blog activity Jun 2025

Ronny Allan – a review of my blog activity Jun 2025

Awareness, Newsletters, Patient Advocacy, ,
Here is the monthly summary of June 2025 on RonnyAllan.NET Every share helps someone understand or even work towards a diagnosis, discovery of the best doctors and treatments.  The selection of top posts this month really shows the breadth of subjects applicable to Neuroendocrine Cancer that need to be considered.  Click on the each of the 10 posts to read. You can share the whole post or you can share those individual posts - each has a share button or you can copy and paste the internet link (url). Use your own words, invite them to subscribe to my website and follow…
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30 Jun 2025
By Ronny Allan
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RonnyAllan.NET – weekly round-up 23rd-30th June 2025

RonnyAllan.NET – weekly round-up 23rd-30th June 2025

Newsletters
New or Republished Blog Posts this week https://ronnyallan.net/2025/06/29/a-trial-to-assess-efficacy-and-safety-of-octreotide-subcutaneous-depot-cam2029-in-patients-with-gep-net-sorento/ https://ronnyallan.net/2025/06/27/dll3-expression-in-neuroendocrine-neoplasms-an-overview/ https://ronnyallan.net/2025/06/26/an-enets-position-statement-on-nutritional-support-in-neuroendocrine-neoplasms/ https://ronnyallan.net/2025/06/23/ronnyallan-net-weekly-round-up-23rd-june-2025/ https://ronnyallan.net/2025/04/26/currently-trending-on-ronnyallan-net/ Page Neuroendocrine Cancer This is my biggest and oldest page, mostly generating blog posts for reading and sharing. Click on the icon above to browse this page. Click below to read a popular recent post. Click the graphic to read and share the post Page Ronny Allan This is a personal themed page but also posts blogs. Follow this page for my blogs and my travel plus personal NET related updates. I also use this page to admin and moderate inside my private Facebook group click picture to…
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29 Jun 2025
By Ronny Allan
6 Comments
A Trial to Assess Efficacy and Safety of Octreotide Subcutaneous Depot (CAM2029) in Patients With GEP-NET (SORENTO)

A Trial to Assess Efficacy and Safety of Octreotide Subcutaneous Depot (CAM2029) in Patients With GEP-NET (SORENTO)

Clinical Trials and Research, Treatment, , , , , ,
Latest on NET.  Camurus announces completed enrolment in the Phase 3 SORENTO study of CAM2029 in patients with neuroendocrine tumours December 14, 2023 at 02:01 am EST Lund, Sweden - 14 December 2023 - Camurus (NASDAQ STO: CAMX) today announces completed enrolment in the randomized, active-controlled Phase 3 SORENTO study evaluating the efficacy and safety of octreotide subcutaneous depot (CAM2029) in patients with neuroendocrine tumours located in the gastrointestinal tract or pancreas (GEP-NET). "The enrolment of patients in SORENTO has exceeded expectations. Going forward, we will continue to collect data for the primary endpoint assessment of superiority in progression-free survival with CAM2029 compared to…
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27 Jun 2025
By Ronny Allan
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DLL3 Expression in Neuroendocrine Neoplasms – an overview

DLL3 Expression in Neuroendocrine Neoplasms – an overview

Clinical Trials and Research, Treatment, , , , , ,
Updated 20th August 2025 Background - Conventional therapeutic targets for neuroendocrine tumours (NETs) include somatostatin receptors (SSTRs), mammalian Target of Rapamycin (mTOR), Vascular Endothelial Growth Factor (VEGF), and tyrosine kinases. These pathways are crucial for tumour growth, survival, and angiogenesis. The most well known is SSTRs given that most NETs express these and allows targeted therapies such as somatostatin analogues (SSA) and peptide receptor radionuclide therapy (PRRT) to be used. Other targeted therapies like everolimus and sunitinib, which inhibit mTOR and tyrosine kinases respectively.  Sunitinib also targets VEGF as does cabozantinib. For neuroendocrine carcinomas (Grade 3 poorly differentiated), targeting has…
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26 Jun 2025
By Ronny Allan
0 Comments
An ENETS Position Statement on nutritional support in Neuroendocrine Neoplasms

An ENETS Position Statement on nutritional support in Neuroendocrine Neoplasms

Diet and Nutrition, , , , , , , , , ,
I've written many times about Nutrition and NETs - clearly it should say NENs (Neuroendocrine Neoplasms) as the issues also extend to Neuroendocrine Carcinomas.  I was helped in the early days by my friend and 'nutrition for NET' mentor Tara Whyand, at the time, probably the top NET Nutrition Registered Dietitian in the world.  Perhaps she still is. Much of what Tara said and wrote, and what I emphasised, particularly in my blog and my patient group, was that much of this was not fully integrated into NEN patient care as part of a multi disciplinary approach.  Many attempts have…
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23 Jun 2025
By Ronny Allan
2 Comments
RonnyAllan.NET – weekly round-up 23rd June 2025

RonnyAllan.NET – weekly round-up 23rd June 2025

Newsletters
New or Republished Blog Posts this week https://ronnyallan.net/2024/09/20/cabozantinib-for-advanced-neuroendocrine-tumours-another-tool-in-the-treatment-toolbox/ https://ronnyallan.net/2025/06/19/good-morning-from-ronny-allan/ https://ronnyallan.net/?na=view&id=53 https://ronnyallan.net/2025/06/11/dont-delay-your-blood-tests-its-not-good-for-your-health/ https://ronnyallan.net/2025/06/10/ronnyallan-net-weekly-round-up-9th-june-2025/ https://ronnyallan.net/2025/04/26/currently-trending-on-ronnyallan-net/ Page Neuroendocrine CancerThis is my biggest and oldest page, mostly generating blog posts for reading and sharing. Click on the icon above to browse this page. Click below to read a popular recent post. Click the graphic to read and share the post Page Ronny AllanThis is a personal themed page but also posts blogs. Follow this page for my blogs and my travel plus personal NET related updates. I also use this page to admin and moderate inside my private Facebook group RIP Dr Richard Warner…
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