Ronny Allan: Living with Neuroendocrine Cancer during COVID-19 restrictions (Episode 1) – out of isolation

everything is going to be OK

It’s been over a week since I came out of my self imposed isolation of 14 days after developing “a new and continuous cough”. Although I’m much better now, nothing has really changed in that I’m sticking to my own property pretty much all of the time. In case you missed my 14 day self isolation diary – I compiled it here – click here to read.

Since coming out of isolation, we’ve been for a couple of government mandated walks from our house (max 1 hour) – it’s fairly easy to find empty streets and lanes around here, so we’re quite lucky. I did notice people keeping a wide berth of each other – very sensible.

In UK, we’re worried about our Prime Minister, no nation likes their leader being ill in times of crisis, despite a strong and stable cabinet system in place. I’m thankful to see the many messages of support from around the world and across the political divide. Edit: He’s a lot better now and may be back to work soon.

Discussions continue in my Facebook private group (click here to join). The group is quieter than usual but Neuroendocrine Cancer issues continue, people continue to be diagnosed and arrive in need of help – often just someone to listen. London and New York are the biggest two cities represented in the private group and I see them both in the headlines – please take care all.

I’ve been writing updates directly into Facebook and I know some of you reading my blog site via subscription are not on Facebook.  I’ll therefore release some of my Facebook updates here on my website every day or two.  See links to all 12 episodes below. 

Many thanks and stay safe

My 12 lockdown episodes

In the first update of this series, I explained that I kept my diary going, but again, only on my public Facebook page, so I was prompted to document these on my blog site to cater for those not on Facebook who only see what I produce in blog format. But it’s my intention to also post these on my other public Facebook sites. Because I was self-isolating, Chris was also isolating under the rules and she was also feeling under the weather. During our self-isolation period, the government ordered a “lock-down” (a bit like the shelter-in-place term used in USA) but out of self-isolation, we were still allowed out for some exercise and other essential trips such as doctors’ appointments and shopping for essential items.

The second update is a nice walk to a local beauty spot and back.

The third update is a potpourri of events including hair issues, a broken tooth and my first COVID lockdown injection covering 14/15 Apr 2020.

The fourth update is a story of bikes, ponies, wisteria and Vitamin D covering 16th – 21st Apr 2020.

The fifth update is a story of greenery, sun, adventure and Irrfan

The sixth update is a story of footpath etiquette, sheep, donkeys and dopamine covering 30th Apr – 3rd May 2020.

The seventh update is a story of swans, cycling, VE Day and my 124th monthly cancer treatment covering the period 6th – 11th May 2020.

The eighth update is a story of nurses, trees and Canada covering the period 12th – 17th May 2020.

The ninth update is a story of cream teas, peaks and blue sky covering the period 18th – 23rd May 2020.

The tenth update is a story of the Wall, Swans, Dundee and New Forest History, covering the period 26th – 29th May 2020.

The eleventh update is a story of Walking the Wall, coping strategies and the London Ga68 PET, covering the period 30th May – 5th June 2020.

The twelfth update is a story of surviving, cycling, Scottish holiday memories including the ‘Fairy Pools’, covering the period 7th – 15th June 2020. 

Thanks for reading.


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2 thoughts on “Ronny Allan: Living with Neuroendocrine Cancer during COVID-19 restrictions (Episode 1) – out of isolation

  • Marie Hughes

    I was recently diagnosed with neuroendocrine cancer that has spread to lymph nodes on my neck.
    It is the same as cancer I had in my throat 6 yrs. ago. Also found multitude of nodes on both lungs.
    I will be starting AFINITOR and would like to be in contact with others. I am told head and neck cancer is rare and I’m having a hard time finding Oncologist who is familiar with it in my area. Would like to feel I’m not alone.

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