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Ronny Allan
Award winning Neuroendocrine Cancer Patient Advocate. Diagnosed with Metastatic Neuroendocrine Cancer in 2010.
I always try to use graphics for a number of pictures, I admit mainly to catch people’s attention but also because sometimes a picture on its own tells a story or at least provides a great introduction to one.
If the picture catches your eye, clicking on will take you to the text. This post will auto update as new blogs are published.
thanks for reading and sharing!
Somatostatin Receptor Positive Advanced Bronchial Neuroendocrine Tumors – PRRT vs Everolimus
Opinion: Let’s attack Cancer metaphors
A review of November 2023 on RonnyAllan.NET – Living with Neuroendocrine Cancer
European Neuroendocrine Tumor Society (ENETS) 2023 guidance paper for Digestive Neuroendocrine Carcinoma
Neuroendocrine Cancer – Clinical Esoterica
Neuroendocrine Cancer – The F Words
Laughter is the best medicine
European Neuroendocrine Tumor Society (ENETS) 2023 guidance paper for gastric neuroendocrine tumours (NETs) G1–G3
European Neuroendocrine Tumor Society (ENETS) 2023 guidance paper for Duodenal neuroendocrine tumours (NETs) G1–G3
I woke up on World Neuroendocrine Cancer Day
Piss off Cancer, it’s been 13 years since my “big surgery”
When Should Genetic Testing Be Performed in Patients With Neuroendocrine Tumors?
8th November 2010 – on the way to hospital for surgery, alert the crash team!
Neuroendocrine Cancer: Make time for your wellness
Systemic Treatments for Advanced, Well-Differentiated, Small-Bowel Neuroendocrine Tumors That Progress on Somatostatin Analogues
Imaging to Monitor Treatment Response in Patients With Advanced Neuroendocrine Tumors
Neuroendocrine Tumors and Carcinoid Syndrome: Individualizing Treatment to Match the Tumor Burden and Symptoms
Expert Perspectives in Neuroendocrine Tumors and Carcinoid Syndrome
A review of October 2023 on RonnyAllan.NET – Living with Neuroendocrine Cancer
Piss off cancer – I’m 68
European Neuroendocrine Tumor Society 2023 guidance paper for functioning pancreatic neuroendocrine tumour syndromes
European Neuroendocrine Tumour Society (ENETS) 2023 guidance paper for nonfunctioning pancreatic neuroendocrine tumours
Every Day is World Neuroendocrine Cancer Day!
No flushes please!
The right awareness can lead to speedier diagnoses and save lives
My treatment is a pain in the butt!
Exercise – it’s a free prescription
Blogging is a full-time job – and I walked right into it!
The Big C – a subject nobody wants to talk about
Neuroendocrine Cancer – diagnostic challenges: sometimes quiet, sometimes noisy
Meet Edison® Histotripsy System – powerful bubbles
Always thank your Nurse – sometimes they’re the only one between you and a hearse!
My stomach cramps my style
Neuroendocrine Cancer: Troublesome Thyroids
Another dartboard event, another first
Shrek and Princess Fiona
Just got (a) shot in the buttocks
Dr Google will see you now
My right-hand woman – Chris
Who needs a gallbladder anyway?
Neuroendocrine Cancer Clinical Trial – Lutetium-177Lu (Satoreotide)
A review of September 2023 on RonnyAllan.NET – Living with Neuroendocrine Cancer
Never mind the Bollocks – here’s the cancer
First and only FDA-cleared, fully automated chromogranin A assay
Neuroendocrine Cancer: Question, Clarify, Confirm
Clinical Trial – Lutathera NETTER-2 Important Update
Lanreotide: Ipsen injection devices vs generic injection devices
Cancer doesn’t take holidays (but I do)
Update from Ronny Allan: No evidence of progressive disease at any site
Exercise is Medicine
Jimmy Buffett 1946-2023 – Neuroendocrine Carcinoma (Merkel Cell Carcinoma)
Passive patient or active advocate?
Childhood Cancer Awareness Month – Neuroendocrine Cancer (featuring Elizabeth)
A review of August 2023 on RonnyAllan.NET – Living with Neuroendocrine Cancer
Is your glass half empty or half full?
Neuroendocrine Cancer – normally slow but don’t be fooled!
Diagnosis – I’m no longer in control
Phase 3 CABINET Clinical Trial – Cabozantinib for Advanced Neuroendocrine Tumours
Living with an incurable cancer – does mind over matter help?
Piss off cancer, you’ve been annoying me for 13 years but I’m still here!
Blood pressure – The NET Effect
Lung cancer diagnosed early because of new tool
The Cancer Legacy of Steve Jobs?
Still here, just reshaped
Phase 1 Clinical Trial AOH1996 for the Treatment of Refractory Solid Tumors
A review of July 2023 on RonnyAllan.NET
13 years – I’m still here!
Sometimes you gotta climb that hill, even if you get wet!
A tumour-finding probe improves the ‘effectiveness of surgery in Gastrointestinal neuroendocrine tumours
Biopsies – tissue is the issue!
A person with Cancer fell into a hole and couldn’t get out……….
NET Specialists, Multidisciplinary Teams (MDT) and Centres of Excellence
Joaquin Castro
Summary of June 2023 on RonnyAllan.NET
Sometimes, you gotta climb that hill, even if it hurts
A spotlight on duodenal Neuroendocrine Neoplasms (dNENs)
Neuroendocrine Cancer: Awareness is key, but it must be the right message
Summary of May 2023 on RonnyAllan.NET
Getting back in the saddle
Clinical Trial: Phase 1/2a Study of 23ME-00610 in Patients With Advanced Solid Malignancies (incl Neuroendocrine Neoplasms)
A spotlight on Chromogranin A
Neuroendocrine Cancer: Catch them early, not late!
A spotlight on Rectal Neuroendocrine Neoplasms
Clinical Trial: Novel Somatostatin Receptor Subtype 2 Antagonist Labelled With Terbium-161 (161Tb-DOTA-LM3) (Beta plus)
Repeat after me: Maria Menounos has Neuroendocrine Cancer
Summary of April 2023 on RonnyAllan.NET
A spotlight on 5-HIAA
The NET Detectives
Low FODMAPs – The NET Effect
Neuroendocrine Cancer: looks can be deceiving
Piss off cancer, it’s 12 years since my liver surgery!
Semaglutide (e.g. Ozempic) For adults with type 2 diabetes – The NET Effect
Neuroendocrine Cancer: oh yes, it’s the great pretender
RonnyAllan.NET – Summary of March 2023 – Ronny Allan – Living with Neuroendocrine Cancer
Pancreatic NET with carcinoid syndrome – not as common as you think
A spotlight on Appendiceal Neuroendocrine Neoplasms
Nuclidium wins award to study NET radiopharmaceutical – Phase 1 Clinical Trial of TraceNET (TM)
Experimental drug for Gastric NET – Netazepide
A Newsletter from RonnyAllan.NET – 13th March 2023
Fructose intolerance – the NET Effect
A tribute to the life and legacy of Miranda Filmer
Treatment for Neuroendocrine Cancer: Beware of the alternatives
RonnyAllan.NET – Summary of February 2023 – Ronny Allan – Living with Neuroendocrine Cancer
A spotlight on Gastric Neuroendocrine Neoplasms
Sometimes I climb hills just to piss my cancer off
Belzutifan for the Treatment of Advanced Pheochromocytoma/Paraganglioma (PPGL), Pancreatic Neuroendocrine Tumor (pNET), or Von Hippel-Lindau (VHL) Disease-Associated Tumors
A Phase II Clinical Trial of Nivolumab and Temozolomide for Neuroendocrine Neoplasms
A Newsletter from RonnyAllan.NET – 12th February 2023
RonnyAllan.NET – Summary of January 2023 – Ronny Allan – Living with Neuroendocrine Cancer
Phase I study of procaspase-activating compound-1 (PAC-1) in the treatment of advanced malignancies (incl NET)
Dustin Diamond
Neuroendocrine tumors are uncommon but definitely not rare
Cancer Ablation
Lactose intolerance – the NET Effect
EUS Guided Ablation for small pancreatic NETs (Less than 2cm)
RonnyAllan.NET – a review of 2022
RonnyAllan.NET – Summary of December 2022
Happy New Year from Ronny
Piss off cancer – 12 years of Christmas and I’m still here!
A Christmas 2022 message from Ronny
A multicentre validation of the NETPET score (Dual [68Ga]DOTATATE and [18F]FDG PET/CT in patients with metastatic GEPNENs
Stereotactic body radiation therapy (SBRT) in the treatment of Neuroendocrine Neoplasms
Lanreotide: 12 more years
RonnyAllan.NET – Summary of November 2022
In the news – new Neuroendocrine Tumour PET Fluorine-18 based ‘tracer’
Metastatic Neuroendocrine Cancer: Incurable isn’t always terminal
The Inspirational Wilko Johnson: 12 July 1947 – 21 November 2022
Neuroendocrine Neoplasms (NEN) – genetic related syndromes
Neuroendocrine Cancer: Those who know, know!
Ask More, Assume Less
Neuroendocrine Cancer: 10 questions your dietitian will ask
Neuroendocrine Cancer: Beware But Be Aware
Incidental Findings in Somatostatin Receptor PET (SSTR PET) scans (e.g. Ga68/Cu64)
RonnyAllan.NET – Summary of October 2022
Alpha-emitter PRRT: A Phase 2 Open Label Study to Evaluate the Safety and Effectiveness of 212Pb-DOTAMTATE in PRRT Naive Subjects With SSTR Expressing NET
How are you, Doctor?
Benign liver lesions and cysts – something or nothing?
Understanding your Somatostatin Receptor (SSTR) PET Results
Evolving Approaches in the Management of Neuroendocrine Tumor-Associated Carcinoid Syndrome
The Hidden Pheochromocytoma
New test of pancreatic cysts to help with cancer detection
Evidence of disease but stable
Study of Lu-177-DOTATATE (Lutathera) in Combination With PARP Inhibitors in Inoperable/Metastatic Gastroenteropancreatic Neuroendocrine Tumors (GEP-NET)
Neuroendocrine Cancer: Glossary of Terms
Opinion: On Rare Cancer Day, what’s wrong with a bit of Neuroendocrine Cancer awareness?
Prospective Phase II Trial of Prognostication by 68Ga-NOTA-AE105 uPAR PET in Patients with Neuroendocrine Neoplasms: Implications for uPAR-Targeted Therapy
Living with cancer: 5 tips for facing things you can’t control
A Study of CF33-hNIS (VAXINIA), an Oncolytic Virus, as Monotherapy or in Combination With Pembrolizumab in Adults With Metastatic or Advanced Solid Tumors (MAST)
Neuroendocrine Cancer: When you get years added to your life, it’s important to get life added to your years
Opinion: Neuroendocrine Cancer – remission, cancer-free, no evidence of disease
Clinical Trial: Phase 1b/3 Targeted Alpha-Emitter PRRT RYZ101 (Ac225)
Lung nodules – something or nothing?
Awareness Post – Neuroendocrine Cancer in children and adolescents
Eat that doughnut!
Thyroid nodules – something or nothing?
Management of asymptomatic sporadic non-functioning pancreatic neuroendocrine neoplasms no larger than 2 cm: interim analysis of prospective ASPEN trial
Prospective phase II trial of [68Ga]Ga-NODAGA-E[c(RGDyK)]2 PET/CT imaging of integrin for prognostication in patients with neuroendocrine neoplasms
Neuroendocrine Cancer: At least 50 shades of grey
Curtis Crump: “If I’m going down, it won’t be without a fight.”
The trouble with the NET is that it can spread ……. false hope
Survival Outcomes in Metastatic Gastroenteropancreatic Neuroendocrine Tumor Patients receiving Concomitant 225Ac-DOTATATE Targeted Alpha Therapy and Capecitabine: A Real-world Scenario Management Based Long-term Outcome Study
12 years – I’m still here!
Neuroendocrine Cancer: turn surveillance into a positive
Assessment of Clinical Response Following Atezolizumab and Bevacizumab Treatment in Patients With Neuroendocrine Tumors: A Nonrandomized Clinical Trial
Neuroendocrine Cancer: diagnostic dilemmas in July 2010
CT scan findings in the COVID era: Ground Glass Opacities (GGO)
Me and the other big C – June/July 2022
New PET findings after COVID-19 vaccination: Keep Calm and Carry On?
Clinical Trial: Triapine and Lutetium Lu 177 Dotatate for Neuroendocrine Tumors
CAPTEM for Neuroendocrine Tumours
Living with Cancer: Don’t cross the bridge until you come to it
Clinical Trial: Dostarlimab, anti–PD-1 monoclonal antibody in Neuroendocrine Carcinoma
Low and High Residue Foods
On the Cancer Journey, don’t forget to live your life
Histotripsy: A new technique which destroys cancer using soundwaves
We are still here!
My illness may be invisible, but I am not – Neuroendocrine Cancer
Electronic Autoinjector for Somatuline® Autogel® / Somatuline® Depot (lanreotide)
Clinical Trial: Mycapssa (octreotide capsules) for Neuroendocrine Tumours
Clinical Trial: Testing the Use of Chemotherapy After Surgery for High-Risk Pancreatic Neuroendocrine Tumors
A Spotlight on Lung Neuroendocrine Neoplasms
The trouble with the NET (Part 5) – Cancer Diet Myths
External Validation of a Clinical Score for Patients With Neuroendocrine Tumors Under Consideration for Peptide Receptor Radionuclide Therapy
Clinical Trial: Lutathera and ASTX727 in Neuroendocrine Tumours (LANTana)
Blog review and top 10 for 2021: RonnyAllan.NET
Neuroendocrine Cancer Diarrhea- building the jigsaw: Bile Acid Malabsorption
177Lu-DOTA-LM3 – a novel radionuclide therapy proven safe and effective to treat neuroendocrine neoplasms (NEN)
Small Intestine Neuroendocrine Tumours: “No other cancer really looks like this”
20th November 2010 – feeling perkier
Do we need a new model for Carcinoid Crisis in NETs?
A Trial to Assess Efficacy and Safety of Octreotide Subcutaneous Depot (CAM2029) in Patients With GEP-NET (SORENTO)
CAR-T clinical trials for Neuroendocrine Cancer
Opinion: On World Neuroendocrine Cancer Day, what’s wrong with a bit of Neuroendocrine Cancer awareness?
In the land of small tumours, there is still a lot of work to do!
The psychological impact of COVID-19 pandemic on patients with neuroendocrine tumors: Between resilience and vulnerability
Q. The best diet for Neuroendocrine Cancer? A. The one that works for you.
Lutetium 177Lu-Edotreotide Versus Best Standard of Care in Well-differentiated Aggressive Grade-2 and Grade-3 GastroEnteroPancreatic NeuroEndocrine Tumors (GEP-NETs) – (COMPOSE)
New Clinical Trial – Testing Lutetium Lu 177 Dotatate in Patients With Somatostatin Receptor Positive Advanced Bronchial Neuroendocrine Tumors
The GRAIL multi-cancer early detection test study
Neuroendocrine Tumors: Targeted Therapies – Update from NET Specialist Diane Reidy-Lagunes, MD, Memorial Sloan-Kettering Cancer Center – August 2021
UK Travel Insurance – please give cancer patients a break!
I thought I was going to die. I didn’t
Small Intestine Neuroendocrine Tumours (SI NETs): To cut or not to cut?
Cancer-related fatigue (CRF) – Neuroendocrine Cancer
Let’s Talk About NETs (#LetsTalkAboutNETs)
11 years – I’m still here!
Neuroendocrine Cancer: 48 hours before diagnosis
Every picture tells a story (point, click, read)
A person with Neuroendocrine Cancer fell into a hole and couldn’t get out……….
A painting from America
The 6 E’s
I have walked 500 miles and I will walk 500 more (….. sing along)
Clinical Trial: Survivin Long Peptide Vaccine in Treating Patients With Metastatic Neuroendocrine Tumors
Clinical Trial: Neuroendocrine Tumour (VMT-𝛼-NET) programs
Dual Tracer (68Ga-DOTATATE and 18F-FDG) PET Imaging in G2 & G3 Gastroenteropancreatic Neuroendocrine Tumours
Generic Somatostatin Analogues for Neuroendocrine Cancer
A Diagnostic Imaging Study of 64Cu-SARTATE™ for Neuroendocrine Tumours
A Neuroendocrine Cancer diagnosis: I didn’t even feel ill
Treatment for Neuroendocrine Cancer – a summary for patients
Ronny Allan Newsletter – 1st March 2021
Opinion: On Rare Disease Day, what’s wrong with a bit of Neuroendocrine Cancer awareness?
My treatment is a pain in the butt!
Ronny Allan – Top 10 for 2020 – Neuroendocrine Cancer
Neuroendocrine Cancer: Follow up tests and checks
Neuroendocrine Cancer – I didn’t hear it coming
Opinion: On World Cancer Day, what’s wrong with a bit of Neuroendocrine Cancer awareness?
Ronny Allan Newsletter – 1st February 2021
Lanreotide and Keytruda – the PLANET study (NCT03043664)
Currently trending on RonnyAllan.NET
The Invisibility of Appendiceal and Colorectal NETs – do the math
Ronny Allan Newsletter – 1st January 2021
A 2020 blog review (RonnyAllan.NET)
Genome methylation accurately predicts neuroendocrine tumor origin – finding Neuroendocrine Neoplasms of unknown primary
