Translate
Ronny Allan
Award winning Neuroendocrine Cancer Patient Advocate. Diagnosed with Metastatic Neuroendocrine Cancer in 2010.
I always try to use graphics for a number of pictures, I admit mainly to catch people’s attention but also because sometimes a picture on its own tells a story or at least provides a great introduction to one.
If the picture catches your eye, clicking on will take you to the text. This post will auto update as new blogs are published.
thanks for reading and sharing!

Somatostatin Receptor Positive Advanced Bronchial Neuroendocrine Tumors – PRRT vs Everolimus

Opinion: Let’s attack Cancer metaphors

A review of November 2023 on RonnyAllan.NET – Living with Neuroendocrine Cancer

European Neuroendocrine Tumor Society (ENETS) 2023 guidance paper for Digestive Neuroendocrine Carcinoma

Neuroendocrine Cancer – Clinical Esoterica

Neuroendocrine Cancer – The F Words

Laughter is the best medicine

European Neuroendocrine Tumor Society (ENETS) 2023 guidance paper for gastric neuroendocrine tumours (NETs) G1–G3

European Neuroendocrine Tumor Society (ENETS) 2023 guidance paper for Duodenal neuroendocrine tumours (NETs) G1–G3

I woke up on World Neuroendocrine Cancer Day

Piss off Cancer, it’s been 13 years since my “big surgery”

When Should Genetic Testing Be Performed in Patients With Neuroendocrine Tumors?

8th November 2010 – on the way to hospital for surgery, alert the crash team!

Neuroendocrine Cancer: Make time for your wellness

Systemic Treatments for Advanced, Well-Differentiated, Small-Bowel Neuroendocrine Tumors That Progress on Somatostatin Analogues

Imaging to Monitor Treatment Response in Patients With Advanced Neuroendocrine Tumors

Neuroendocrine Tumors and Carcinoid Syndrome: Individualizing Treatment to Match the Tumor Burden and Symptoms

Expert Perspectives in Neuroendocrine Tumors and Carcinoid Syndrome

A review of October 2023 on RonnyAllan.NET – Living with Neuroendocrine Cancer

Piss off cancer – I’m 68

European Neuroendocrine Tumor Society 2023 guidance paper for functioning pancreatic neuroendocrine tumour syndromes

European Neuroendocrine Tumour Society (ENETS) 2023 guidance paper for nonfunctioning pancreatic neuroendocrine tumours

Every Day is World Neuroendocrine Cancer Day!

No flushes please!

The right awareness can lead to speedier diagnoses and save lives

My treatment is a pain in the butt!

Exercise – it’s a free prescription

Blogging is a full-time job – and I walked right into it!

The Big C – a subject nobody wants to talk about

Neuroendocrine Cancer – diagnostic challenges: sometimes quiet, sometimes noisy

Meet Edison® Histotripsy System – powerful bubbles

Always thank your Nurse – sometimes they’re the only one between you and a hearse!

My stomach cramps my style

Neuroendocrine Cancer: Troublesome Thyroids

Another dartboard event, another first

Shrek and Princess Fiona

Just got (a) shot in the buttocks

Dr Google will see you now

My right-hand woman – Chris

Who needs a gallbladder anyway?

Neuroendocrine Cancer Clinical Trial – Lutetium-177Lu (Satoreotide)

A review of September 2023 on RonnyAllan.NET – Living with Neuroendocrine Cancer

Never mind the Bollocks – here’s the cancer

First and only FDA-cleared, fully automated chromogranin A assay

Neuroendocrine Cancer: Question, Clarify, Confirm

Clinical Trial – Lutathera NETTER-2 Important Update

Lanreotide: Ipsen injection devices vs generic injection devices

Cancer doesn’t take holidays (but I do)

Update from Ronny Allan: No evidence of progressive disease at any site

Exercise is Medicine

Jimmy Buffett 1946-2023 – Neuroendocrine Carcinoma (Merkel Cell Carcinoma)

Passive patient or active advocate?

Childhood Cancer Awareness Month – Neuroendocrine Cancer (featuring Elizabeth)

A review of August 2023 on RonnyAllan.NET – Living with Neuroendocrine Cancer

Is your glass half empty or half full?

Neuroendocrine Cancer – normally slow but don’t be fooled!

Diagnosis – I’m no longer in control

Phase 3 CABINET Clinical Trial – Cabozantinib for Advanced Neuroendocrine Tumours

Living with an incurable cancer – does mind over matter help?

Piss off cancer, you’ve been annoying me for 13 years but I’m still here!

Blood pressure – The NET Effect

Lung cancer diagnosed early because of new tool

The Cancer Legacy of Steve Jobs?

Still here, just reshaped

Phase 1 Clinical Trial AOH1996 for the Treatment of Refractory Solid Tumors

A review of July 2023 on RonnyAllan.NET

13 years – I’m still here!

Sometimes you gotta climb that hill, even if you get wet!

A tumour-finding probe improves the ‘effectiveness of surgery in Gastrointestinal neuroendocrine tumours

Biopsies – tissue is the issue!

A person with Cancer fell into a hole and couldn’t get out……….

NET Specialists, Multidisciplinary Teams (MDT) and Centres of Excellence

Joaquin Castro

Summary of June 2023 on RonnyAllan.NET

Sometimes, you gotta climb that hill, even if it hurts

A spotlight on duodenal Neuroendocrine Neoplasms (dNENs)

Neuroendocrine Cancer: Awareness is key, but it must be the right message

Summary of May 2023 on RonnyAllan.NET

Getting back in the saddle

Clinical Trial: Phase 1/2a Study of 23ME-00610 in Patients With Advanced Solid Malignancies (incl Neuroendocrine Neoplasms)

A spotlight on Chromogranin A

Neuroendocrine Cancer: Catch them early, not late!

A spotlight on Rectal Neuroendocrine Neoplasms

Clinical Trial: Novel Somatostatin Receptor Subtype 2 Antagonist Labelled With Terbium-161 (161Tb-DOTA-LM3) (Beta plus)

Repeat after me: Maria Menounos has Neuroendocrine Cancer

Summary of April 2023 on RonnyAllan.NET

A spotlight on 5-HIAA

The NET Detectives

Low FODMAPs – The NET Effect

Neuroendocrine Cancer: looks can be deceiving

Piss off cancer, it’s 12 years since my liver surgery!

Semaglutide (e.g. Ozempic) For adults with type 2 diabetes – The NET Effect

Neuroendocrine Cancer: oh yes, it’s the great pretender

RonnyAllan.NET – Summary of March 2023 – Ronny Allan – Living with Neuroendocrine Cancer

Pancreatic NET with carcinoid syndrome – not as common as you think

A spotlight on Appendiceal Neuroendocrine Neoplasms

Nuclidium wins award to study NET radiopharmaceutical – Phase 1 Clinical Trial of TraceNET (TM)

Experimental drug for Gastric NET – Netazepide

A Newsletter from RonnyAllan.NET – 13th March 2023

Fructose intolerance – the NET Effect

A tribute to the life and legacy of Miranda Filmer

Treatment for Neuroendocrine Cancer: Beware of the alternatives

RonnyAllan.NET – Summary of February 2023 – Ronny Allan – Living with Neuroendocrine Cancer

A spotlight on Gastric Neuroendocrine Neoplasms

Sometimes I climb hills just to piss my cancer off

Belzutifan for the Treatment of Advanced Pheochromocytoma/Paraganglioma (PPGL), Pancreatic Neuroendocrine Tumor (pNET), or Von Hippel-Lindau (VHL) Disease-Associated Tumors

A Phase II Clinical Trial of Nivolumab and Temozolomide for Neuroendocrine Neoplasms

A Newsletter from RonnyAllan.NET – 12th February 2023

RonnyAllan.NET – Summary of January 2023 – Ronny Allan – Living with Neuroendocrine Cancer

Phase I study of procaspase-activating compound-1 (PAC-1) in the treatment of advanced malignancies (incl NET)

Dustin Diamond

Neuroendocrine tumors are uncommon but definitely not rare

Cancer Ablation

Lactose intolerance – the NET Effect

EUS Guided Ablation for small pancreatic NETs (Less than 2cm)

RonnyAllan.NET – a review of 2022

RonnyAllan.NET – Summary of December 2022

Happy New Year from Ronny

Piss off cancer – 12 years of Christmas and I’m still here!

A Christmas 2022 message from Ronny

A multicentre validation of the NETPET score (Dual [68Ga]DOTATATE and [18F]FDG PET/CT in patients with metastatic GEPNENs

Stereotactic body radiation therapy (SBRT) in the treatment of Neuroendocrine Neoplasms

Lanreotide: 12 more years

RonnyAllan.NET – Summary of November 2022

In the news – new Neuroendocrine Tumour PET Fluorine-18 based ‘tracer’

Metastatic Neuroendocrine Cancer: Incurable isn’t always terminal

The Inspirational Wilko Johnson: 12 July 1947 – 21 November 2022

Neuroendocrine Neoplasms (NEN) – genetic related syndromes

Neuroendocrine Cancer: Those who know, know!

Ask More, Assume Less

Neuroendocrine Cancer: 10 questions your dietitian will ask

Neuroendocrine Cancer: Beware But Be Aware

Incidental Findings in Somatostatin Receptor PET (SSTR PET) scans (e.g. Ga68/Cu64)

RonnyAllan.NET – Summary of October 2022

Alpha-emitter PRRT: A Phase 2 Open Label Study to Evaluate the Safety and Effectiveness of 212Pb-DOTAMTATE in PRRT Naive Subjects With SSTR Expressing NET

How are you, Doctor?

Benign liver lesions and cysts – something or nothing?

Understanding your Somatostatin Receptor (SSTR) PET Results

Evolving Approaches in the Management of Neuroendocrine Tumor-Associated Carcinoid Syndrome

The Hidden Pheochromocytoma

New test of pancreatic cysts to help with cancer detection

Evidence of disease but stable

Study of Lu-177-DOTATATE (Lutathera) in Combination With PARP Inhibitors in Inoperable/Metastatic Gastroenteropancreatic Neuroendocrine Tumors (GEP-NET)

Neuroendocrine Cancer: Glossary of Terms

Opinion: On Rare Cancer Day, what’s wrong with a bit of Neuroendocrine Cancer awareness?

Prospective Phase II Trial of Prognostication by 68Ga-NOTA-AE105 uPAR PET in Patients with Neuroendocrine Neoplasms: Implications for uPAR-Targeted Therapy

Living with cancer: 5 tips for facing things you can’t control

A Study of CF33-hNIS (VAXINIA), an Oncolytic Virus, as Monotherapy or in Combination With Pembrolizumab in Adults With Metastatic or Advanced Solid Tumors (MAST)

Neuroendocrine Cancer: When you get years added to your life, it’s important to get life added to your years

Opinion: Neuroendocrine Cancer – remission, cancer-free, no evidence of disease

Clinical Trial: Phase 1b/3 Targeted Alpha-Emitter PRRT RYZ101 (Ac225)

Lung nodules – something or nothing?

Awareness Post – Neuroendocrine Cancer in children and adolescents

Eat that doughnut!

Thyroid nodules – something or nothing?

Management of asymptomatic sporadic non-functioning pancreatic neuroendocrine neoplasms no larger than 2 cm: interim analysis of prospective ASPEN trial

Prospective phase II trial of [68Ga]Ga-NODAGA-E[c(RGDyK)]2 PET/CT imaging of integrin for prognostication in patients with neuroendocrine neoplasms

Neuroendocrine Cancer: At least 50 shades of grey

Curtis Crump: “If I’m going down, it won’t be without a fight.”

The trouble with the NET is that it can spread ……. false hope

Survival Outcomes in Metastatic Gastroenteropancreatic Neuroendocrine Tumor Patients receiving Concomitant 225Ac-DOTATATE Targeted Alpha Therapy and Capecitabine: A Real-world Scenario Management Based Long-term Outcome Study

12 years – I’m still here!

Neuroendocrine Cancer: turn surveillance into a positive

Assessment of Clinical Response Following Atezolizumab and Bevacizumab Treatment in Patients With Neuroendocrine Tumors: A Nonrandomized Clinical Trial

Neuroendocrine Cancer: diagnostic dilemmas in July 2010

CT scan findings in the COVID era: Ground Glass Opacities (GGO)

Me and the other big C – June/July 2022

New PET findings after COVID-19 vaccination: Keep Calm and Carry On?

Clinical Trial: Triapine and Lutetium Lu 177 Dotatate for Neuroendocrine Tumors

CAPTEM for Neuroendocrine Tumours

Living with Cancer: Don’t cross the bridge until you come to it

Clinical Trial: Dostarlimab, anti–PD-1 monoclonal antibody in Neuroendocrine Carcinoma

Low and High Residue Foods

On the Cancer Journey, don’t forget to live your life

Histotripsy: A new technique which destroys cancer using soundwaves

We are still here!

My illness may be invisible, but I am not – Neuroendocrine Cancer

Electronic Autoinjector for Somatuline® Autogel® / Somatuline® Depot (lanreotide)

Clinical Trial: Mycapssa (octreotide capsules) for Neuroendocrine Tumours

Clinical Trial: Testing the Use of Chemotherapy After Surgery for High-Risk Pancreatic Neuroendocrine Tumors

A Spotlight on Lung Neuroendocrine Neoplasms

The trouble with the NET (Part 5) – Cancer Diet Myths

External Validation of a Clinical Score for Patients With Neuroendocrine Tumors Under Consideration for Peptide Receptor Radionuclide Therapy

Clinical Trial: Lutathera and ASTX727 in Neuroendocrine Tumours (LANTana)

Blog review and top 10 for 2021: RonnyAllan.NET

Neuroendocrine Cancer Diarrhea- building the jigsaw: Bile Acid Malabsorption

177Lu-DOTA-LM3 – a novel radionuclide therapy proven safe and effective to treat neuroendocrine neoplasms (NEN)

Small Intestine Neuroendocrine Tumours: “No other cancer really looks like this”

20th November 2010 – feeling perkier

Do we need a new model for Carcinoid Crisis in NETs?

A Trial to Assess Efficacy and Safety of Octreotide Subcutaneous Depot (CAM2029) in Patients With GEP-NET (SORENTO)

CAR-T clinical trials for Neuroendocrine Cancer

Opinion: On World Neuroendocrine Cancer Day, what’s wrong with a bit of Neuroendocrine Cancer awareness?

In the land of small tumours, there is still a lot of work to do!

The psychological impact of COVID-19 pandemic on patients with neuroendocrine tumors: Between resilience and vulnerability

Q. The best diet for Neuroendocrine Cancer? A. The one that works for you.

Lutetium 177Lu-Edotreotide Versus Best Standard of Care in Well-differentiated Aggressive Grade-2 and Grade-3 GastroEnteroPancreatic NeuroEndocrine Tumors (GEP-NETs) – (COMPOSE)

New Clinical Trial – Testing Lutetium Lu 177 Dotatate in Patients With Somatostatin Receptor Positive Advanced Bronchial Neuroendocrine Tumors

The GRAIL multi-cancer early detection test study

Neuroendocrine Tumors: Targeted Therapies – Update from NET Specialist Diane Reidy-Lagunes, MD, Memorial Sloan-Kettering Cancer Center – August 2021

UK Travel Insurance – please give cancer patients a break!

I thought I was going to die. I didn’t

Small Intestine Neuroendocrine Tumours (SI NETs): To cut or not to cut?

Cancer-related fatigue (CRF) – Neuroendocrine Cancer

Let’s Talk About NETs (#LetsTalkAboutNETs)

11 years – I’m still here!

Neuroendocrine Cancer: 48 hours before diagnosis

Every picture tells a story (point, click, read)

A person with Neuroendocrine Cancer fell into a hole and couldn’t get out……….

A painting from America

The 6 E’s

I have walked 500 miles and I will walk 500 more (….. sing along)

Clinical Trial: Survivin Long Peptide Vaccine in Treating Patients With Metastatic Neuroendocrine Tumors

Clinical Trial: Neuroendocrine Tumour (VMT-𝛼-NET) programs

Dual Tracer (68Ga-DOTATATE and 18F-FDG) PET Imaging in G2 & G3 Gastroenteropancreatic Neuroendocrine Tumours

Generic Somatostatin Analogues for Neuroendocrine Cancer

A Diagnostic Imaging Study of 64Cu-SARTATE™ for Neuroendocrine Tumours

A Neuroendocrine Cancer diagnosis: I didn’t even feel ill

Treatment for Neuroendocrine Cancer – a summary for patients

Ronny Allan Newsletter – 1st March 2021

Opinion: On Rare Disease Day, what’s wrong with a bit of Neuroendocrine Cancer awareness?

My treatment is a pain in the butt!

Ronny Allan – Top 10 for 2020 – Neuroendocrine Cancer

Neuroendocrine Cancer: Follow up tests and checks

Neuroendocrine Cancer – I didn’t hear it coming

Opinion: On World Cancer Day, what’s wrong with a bit of Neuroendocrine Cancer awareness?

Ronny Allan Newsletter – 1st February 2021

Lanreotide and Keytruda – the PLANET study (NCT03043664)

Currently trending on RonnyAllan.NET

The Invisibility of Appendiceal and Colorectal NETs – do the math

Ronny Allan Newsletter – 1st January 2021

A 2020 blog review (RonnyAllan.NET)

Genome methylation accurately predicts neuroendocrine tumor origin – finding Neuroendocrine Neoplasms of unknown primary

The other Big C can be dangerous too
