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Ronny Allan
Award winning Neuroendocrine Cancer Patient Advocate. Diagnosed with Metastatic Neuroendocrine Cancer in 2010.
I always try to use graphics for a number of pictures, I admit mainly to catch people’s attention but also because sometimes a picture on its own tells a story or at least provides a great introduction to one.
If the picture catches your eye, clicking on will take you to the text. This post will auto update as new blogs are published.
thanks for reading and sharing!

Pancreatic NET with carcinoid syndrome – not as common as you think

A spotlight on Appendiceal Neuroendocrine Neoplasms

Nuclidium wins award to study NET radiopharmaceutical – Phase 1 Clinical Trial of TraceNET (TM)

Experimental drug for Gastric NET – Netazepide

A Newsletter from RonnyAllan.NET – 13th March 2023

Fructose intolerance – the NET Effect

A tribute to the life and legacy of Miranda Filmer

Treatment for Neuroendocrine Cancer: Beware of the alternatives

RonnyAllan.NET – Summary of February 2023 – Ronny Allan – Living with Neuroendocrine Cancer

A spotlight on Gastric Neuroendocrine Neoplasms

Sometimes I climb hills just to piss my cancer off

Belzutifan for the Treatment of Advanced Pheochromocytoma/Paraganglioma (PPGL), Pancreatic Neuroendocrine Tumor (pNET), or Von Hippel-Lindau (VHL) Disease-Associated Tumors

A Phase II Clinical Trial of Nivolumab and Temozolomide for Neuroendocrine Neoplasms

A Newsletter from RonnyAllan.NET – 12th February 2023

RonnyAllan.NET – Summary of January 2023 – Ronny Allan – Living with Neuroendocrine Cancer

Phase I study of procaspase-activating compound-1 (PAC-1) in the treatment of advanced malignancies (incl NET)

Dustin Diamond

Neuroendocrine tumors are uncommon but definitely not rare

Cancer Ablation

Lactose intolerance – the NET Effect

EUS Guided Ablation for small pancreatic NETs (Less than 2cm)

RonnyAllan.NET – a review of 2022

RonnyAllan.NET – Summary of December 2022

Happy New Year from Ronny

Piss off cancer – 12 years of Christmas and I’m still here!

A Christmas 2022 message from Ronny

A multicentre validation of the NETPET score (Dual [68Ga]DOTATATE and [18F]FDG PET/CT in patients with metastatic GEPNENs

Stereotactic body radiation therapy (SBRT) in the treatment of Neuroendocrine Neoplasms

Lanreotide: 12 more years

RonnyAllan.NET – Summary of November 2022

In the news – new Neuroendocrine Tumour PET Fluorine-18 based ‘tracer’

Incurable isn’t terminal

The Inspirational Wilko Johnson: 12 July 1947 – 21 November 2022

Neuroendocrine Neoplasms (NEN) – genetic related syndromes

Neuroendocrine Cancer: Those who know, know!

Ask More, Assume Less

Piss off Cancer, it’s been 12 years since my “big surgery”

Neuroendocrine Cancer: 10 questions your dietitian will ask

Neuroendocrine Cancer: Beware But Be Aware

Incidental Findings in Somatostatin Receptor PET (SSTR PET) scans (e.g. Ga68/Cu64)

RonnyAllan.NET – Summary of October 2022

Alpha-emitter PRRT: Phase 1/2 Study of AlphaMedix™ (²¹²Pb-DOTAMTATE) in Adult Subjects With SSTR positive NET

How are you, Doctor?

Benign liver lesions and cysts – something or nothing?

Understanding your Somatostatin Receptor (SSTR) PET Results

Evolving Approaches in the Management of Neuroendocrine Tumor-Associated Carcinoid Syndrome

The Hidden Pheochromocytoma

New test of pancreatic cysts to help with cancer detection

Evidence of disease but stable

Study of Lu-177-DOTATATE (Lutathera) in Combination With PARP Inhibitors in Inoperable/Metastatic Gastroenteropancreatic Neuroendocrine Tumors (GEP-NET)

Neuroendocrine Cancer: Glossary of Terms

Opinion: On Rare Cancer Day, what’s wrong with a bit of Neuroendocrine Cancer awareness?

Prospective Phase II Trial of Prognostication by 68Ga-NOTA-AE105 uPAR PET in Patients with Neuroendocrine Neoplasms: Implications for uPAR-Targeted Therapy

Living with cancer: 5 tips for facing things you can’t control

A Study of CF33-hNIS (VAXINIA), an Oncolytic Virus, as Monotherapy or in Combination With Pembrolizumab in Adults With Metastatic or Advanced Solid Tumors (MAST)

Neuroendocrine Cancer: When you get years added to your life, it’s important to get life added to your years

Opinion: Neuroendocrine Cancer – remission, cancer-free, no evidence of disease

Clinical Trial: Phase 1b/3 Targeted Alpha-Emitter PRRT RYZ101 (Ac225)

Lung nodules – something or nothing?

Awareness Post – Neuroendocrine Cancer in children and adolescents

Eat that doughnut!

Thyroid nodules – something or nothing?

Management of asymptomatic sporadic non-functioning pancreatic neuroendocrine neoplasms no larger than 2 cm: interim analysis of prospective ASPEN trial

Prospective phase II trial of [68Ga]Ga-NODAGA-E[c(RGDyK)]2 PET/CT imaging of integrin for prognostication in patients with neuroendocrine neoplasms

Neuroendocrine Cancer: At least 50 shades of grey

Curtis Crump: “If I’m going down, it won’t be without a fight.”

The trouble with the NET is that it can spread ……. false hope

Survival Outcomes in Metastatic Gastroenteropancreatic Neuroendocrine Tumor Patients receiving Concomitant 225Ac-DOTATATE Targeted Alpha Therapy and Capecitabine: A Real-world Scenario Management Based Long-term Outcome Study

12 years – I’m still here!

Neuroendocrine Cancer: turn surveillance into a positive

Assessment of Clinical Response Following Atezolizumab and Bevacizumab Treatment in Patients With Neuroendocrine Tumors: A Nonrandomized Clinical Trial

Neuroendocrine Cancer: diagnostic dilemmas in July 2010

CT scan findings in the COVID era: Ground Glass Opacities (GGO)

Me and the other big C – June/July 2022

New PET findings after COVID-19 vaccination: Keep Calm and Carry On?

Clinical Trial: Triapine and Lutetium Lu 177 Dotatate for Neuroendocrine Tumors

CAPTEM for Neuroendocrine Tumours

Living with Cancer: Don’t cross the bridge until you come to it

Clinical Trial: Dostarlimab, anti–PD-1 monoclonal antibody in Neuroendocrine Carcinoma

Low and High Residue Foods

On the Cancer Journey, don’t forget to live your life

Histotripsy: A new technique which destroys cancer using soundwaves (now in Clinical Trials)

We are still here!

My illness may be invisible, but I am not – Neuroendocrine Cancer

Electronic Autoinjector for Somatuline® Autogel® / Somatuline® Depot (lanreotide)

Clinical Trial: Mycapssa (octreotide capsules) for Neuroendocrine Tumours

Clinical Trial: Testing the Use of Chemotherapy After Surgery for High-Risk Pancreatic Neuroendocrine Tumors

A Spotlight on Lung Neuroendocrine Neoplasms

The trouble with the NET (Part 5) – Cancer Diet Myths

External Validation of a Clinical Score for Patients With Neuroendocrine Tumors Under Consideration for Peptide Receptor Radionuclide Therapy

Clinical Trial: Lutathera and ASTX727 in Neuroendocrine Tumours (LANTana)

Blog review and top 10 for 2021: RonnyAllan.NET

Neuroendocrine Cancer Diarrhea- building the jigsaw: Bile Acid Malabsorption

177Lu-DOTA-LM3 – a novel radionuclide therapy proven safe and effective to treat neuroendocrine neoplasms (NEN)

Small Intestine Neuroendocrine Tumours: “No other cancer really looks like this”

20th November 2010 – feeling perkier

Do we need a new model for Carcinoid Crisis in NETs?

A Trial to Assess Efficacy and Safety of Octreotide Subcutaneous Depot (CAM2029) in Patients With GEP-NET (SORENTO)

CAR-T clinical trials for Neuroendocrine Cancer

Opinion: On World Neuroendocrine Cancer Day, what’s wrong with a bit of Neuroendocrine Cancer awareness?

In the land of small tumours, there is still a lot of work to do!

The psychological impact of COVID-19 pandemic on patients with neuroendocrine tumors: Between resilience and vulnerability

Q. The best diet for Neuroendocrine Cancer? A. The one that works for you.

Lutetium 177Lu-Edotreotide Versus Best Standard of Care in Well-differentiated Aggressive Grade-2 and Grade-3 GastroEnteroPancreatic NeuroEndocrine Tumors (GEP-NETs) – (COMPOSE)

New Clinical Trial – Testing Lutetium Lu 177 Dotatate in Patients With Somatostatin Receptor Positive Advanced Bronchial Neuroendocrine Tumors

The GRAIL multi-cancer early detection test study

Neuroendocrine Tumors: Targeted Therapies – Update from NET Specialist Diane Reidy-Lagunes, MD, Memorial Sloan-Kettering Cancer Center – August 2021

UK Travel Insurance – please give cancer patients a break!

I thought I was going to die. I didn’t

Small Intestine Neuroendocrine Tumours (SI NETs): To cut or not to cut?

Cancer-related fatigue (CRF) – Neuroendocrine Cancer

Let’s Talk About NETs (#LetsTalkAboutNETs)

11 years – I’m still here!

Neuroendocrine Cancer: 48 hours before diagnosis

Every picture tells a story (point, click, read)

A person with Neuroendocrine Cancer fell into a hole and couldn’t get out……….

A painting from America

The 6 E’s

I have walked 500 miles and I will walk 500 more (….. sing along)

Clinical Trial: Survivin Long Peptide Vaccine in Treating Patients With Metastatic Neuroendocrine Tumors

Neuroendocrine Tumour (VMT-𝛼-NET) programs

Dual Tracer (68Ga-DOTATATE and 18F-FDG) PET Imaging in G2 & G3 Gastroenteropancreatic Neuroendocrine Tumours

Generic Somatostatin Analogues for Neuroendocrine Cancer

A Diagnostic Imaging Study of 64Cu-SARTATE™ for Neuroendocrine Tumours

A Neuroendocrine Cancer diagnosis: I didn’t even feel ill

Treatment for Neuroendocrine Cancer – a summary for patients

Ronny Allan Newsletter – 1st March 2021

Opinion: On Rare Disease Day, what’s wrong with a bit of Neuroendocrine Cancer awareness?

My treatment is a pain in the butt!

Ronny Allan – Top 10 for 2020 – Neuroendocrine Cancer

Neuroendocrine Cancer: Follow up tests and checks

Neuroendocrine Cancer – I didn’t hear it coming

Opinion: On World Cancer Day, what’s wrong with a bit of Neuroendocrine Cancer awareness?

Ronny Allan Newsletter – 1st February 2021

Lanreotide and Keytruda – the PLANET study (NCT03043664)

Currently trending on RonnyAllan.NET

The Invisibility of Appendiceal and Colorectal NETs – do the math

Ronny Allan Newsletter – 1st January 2021

A 2020 blog review (RonnyAllan.NET)

Genome methylation accurately predicts neuroendocrine tumor origin – finding Neuroendocrine Neoplasms of unknown primary

Somatostatin Receptor Positive Advanced Bronchial Neuroendocrine Tumors – PRRT vs Everolimus

The other Big C can be dangerous too

Neuroendocrine Tumours – now you see them, now you don’t!

Selecting patients and the Challenges of Evaluating Response to PRRT in GEPNETs: The Present and the Future

Lanreotide: Eleven more years please!

2 Million!

Ronny Allan Newsletter 1st December 2020

If it’s not raining, it’s not training! (part 2)

Ronny Allan Newsletter 1st November 2020

Piss off cancer – I’m 67

Early diagnosis of late stage cancer!

Serotonin – it’s a no-brainer!

Paul Hunter Tribute – Snooker champion and Neuroendocrine Cancer patient

Ronny Allan Newsletter 1st October 2020

Clinical Trial: Phase II CLARINET FORTE Somatuline Autogel (Lanreotide) increased dosing frequency

I don’t look sick enough, sorry not sorry

Clinical Trial of Tidutamab in Neuroendocrine Cancer (DUET-1)

“I’m vertical” – Steve Jobs announces to Apple staff after a liver transplant

Flower power and the happy hormones

1.4 million thanks!

RonnyAllan.NET – Newsletter 1st September 2020

Small intestine, large surgery

RonnyAllan.NET – Newsletter 1st August 2020

Paraneoplastic endocrine syndromes – the NET effect

10 years, I’m still here

Don’t be cavalier with a cancer diagnosis

Neuroendocrine Cancer – no sweat!

After lockdown – the new normal is not normal

Living with Neuroendocrine Cancer during COVID-19 restrictions (Episode 12) – a story of surviving, cycling, Scottish holiday memories including the ‘Fairy Pools’

The NETest® – a Chromogranin A replacement and more?

RonnyAllan.NET – Newsletter 1st July 2020

SSTR PET – Ga68-DOTA-JR11 vs Ga68-DOTATATE

Living with Neuroendocrine Cancer during COVID-19 restrictions (Episode 11) – a story of Walking the Wall, coping strategies and the London Ga68 PET

Targeted Therapy for Neuroendocrine Cancer – Sunitinib (Sutent)

Targeted Therapy for Neuroendocrine Cancer – Everolimus (Afinitor)

Ronny Allan: Living with Neuroendocrine Cancer during lockdown (Episode 10) – A story of the Wall, Swans, Dundee and New Forest History

My interview with ITM – I’m still here!

Ronny Allan: Living with Neuroendocrine Cancer during COVID-19 restrictions (Episode 9) – a story of cream teas, peaks and blue sky

RonnyAllan.NET – Newsletter 1st June 2020

Ronny Allan: Living with Neuroendocrine Cancer during COVID-19 restrictions (Episode 8) – a story of nurses, trees and Canada

Ronny Allan: Living with Neuroendocrine Cancer during lockdown restrictions (Episode 7) – A story of swans, cycling, VE Day and my 124th monthly cancer treatment

Ronny Allan: Living with Neuroendocrine Cancer during lockdown restrictions (Episode 6) – A story of footpath etiquette, sheep, donkeys and dopamine

Ronny Allan: Living with Neuroendocrine Cancer during lockdown (Episode 5) – A story of greenery, sun, adventure and Irrfan

Ronny Allan: Living with Neuroendocrine Cancer during COVID-19 restrictions (Episode 4) – A story of bikes, ponies, wisteria and Vitamin D

Ronny Allan: Living with Neuroendocrine Cancer during COVID-19 restrictions (Episode 3) – An injection, hair cut and a broken tooth

Ronny Allan: Living with Neuroendocrine Cancer during COVID-19 restrictions (Episode 2) – the bench walk

Ronny Allan: Living with Neuroendocrine Cancer during COVID-19 restrictions (Episode 1) – out of isolation

Neuroendocrine Cancer Surgery 3: my distant lymph nodes

We Remember – A message of hope in the time of the Coronavirus!

My Self Isolation Diary – COVID-19 2020

COVID-19 and Cancer Treatment and Surveillance

Why Coronavirus Anxiety is Hard to Control – a Neuroendocrine Cancer patient perspective

Coronavirus 19 (COVID-19): risks for cancer patients

Neuroendocrine Cancer Nutrition Series Part 6 – featuring the 2020 video series by Tara Whyand RD

Clinical Trial: Lu-177 DOTATOC (PRRT) in adult subjects with Somatostatin receptor (SSTR) positive Pulmonary, Pheochromocytoma, Paraganglioma, Unknown primary, and Thymic Neuroendocrine Tumors

Oral Octreotide using RaniPill™

Neuroendocrine Cancer: The Perfect Storm

Neuroendocrine Cancer – Liver directed therapy

Featuring Kirsty Dalglish – Pheochromocytoma and Pregnancy

Ronny Allan – Top 10 for 2019 – Neuroendocrine Cancer

NETDetect: Earlier diagnosis of Neuroendocrine Cancer gets a boost

Prognostics and Crystal Balls

Olivia Williams – Neuroendocrine Cancer (VIPoma)

“Please find something wrong with me”

Neuroendocrine Cancer: Double, Double Toil and Trouble

The Flu shot – it’s not just about you

Clinical Trials – PEN-221 for Neuroendocrine Cancer

Clinical Trials – ONC201 for Neuroendocrine Cancer (including Pheo/Para)

The Other 5 E’s

The Case of Justice Ruth Bader Ginsburg vs Cancer

Surufatinib for Neuroendocrine Cancer

The trouble with the NET (Part 4) – Cancer can kill but so can fake cures

Pancreatic Neuroendocrine Tumours – to cut or not to cut

Clinical Trials of PV-10 (Rose Bengal) for the treatment of Neuroendocrine Tumours (NET)

New Radiotracer Can Identify Nearly 30 Types of Cancer – SNMMI – 68Ga-FAPI PET/CT

LUTATHERA (PRRT) – NETTER 2 Clinical Trial for Grade 2/Grade 3 Patients Advanced GEP-NET (NETTER-2)

Clinical Trial of Paltusotine for the Treatment of Neuroendocrine Tumours

The Heterogeneity of Grade 3 (High grade) Neuroendocrine Neoplasms

Clinical Trial: Treatment of IBS with diarrhoea – titrated ondansetron (TRITON)

I’m not sick, I just have cancer

Rosacea – the NET Effect

Neuroendocrine Cancer: No one gets it until they get it!

From dying to living, to hell and back

“I Knew There Was Something Wrong, But I Didn’t Know What” — A Nurse Shares Her Cancer Story

Letter from America

Proton Pump Inhibitors (…..and H2 Blockers) the NET Effect

Clinical Trial: Lenvatinib Efficacy in Metastatic Neuroendocrine Tumors (TALENT)

Clinical Trial: Intra-arterial Lu177 (PRRT) for Neuroendocrine Cancer liver metastases (LUTIA)

Clinical Trial SPARTALIZUMAB – Immunotherapy for Neuroendocrine Neoplasms (PDR001)

Breath test with the goal of detecting multiple cancers – ready to start trials

Q-Sphera™ – Next Generation Somatostatin Analogue delivery system?

Neuroendocrine Cancer: a needle in a haystack?

Neuroendocrine Cancer Clinical Trial – Lutetium-177 OPS-201 (Satoreotide)
