Living with Neuroendocrine Cancer - Ronny Allan - Living with Neuroendocrine Cancer

24May 2014 by Ronny Allan 7 Comments

My right-hand woman – Chris

Inspiration, Living with Neuroendocrine Cancer, Survivorship

There's been a lot in my blog about cancer, the cancer patient and the medical teams. However, we sometimes forget to mention the close family and friends who are also a piece of the cancer jigsaw. Without these people, it's possible the patient would potentially have a much poorer quality of life.I've had tremendous support from my immediate family and many of my friends. Some of my closest friends have almost been functioning as counsellors. I'm in a much better place than I was nearly in 2010 but I have a lot of people to thank for some excellent progress. My son & daughter's families have all been there for me and although my 4 grandsons don't fully understand the situation, their presence in my life is a great tonic.Perhaps…

20May 2014 by Ronny Allan 1 Comment

Diagnostic Challenges

Awareness, Living with Neuroendocrine Cancer, Treatment

I was checking my statistics this morning and found the most viewed post to date was published on the day Stephen Sutton passed away. I didn't really want to jump onto the Stephen Sutton bandwagon but when I found on the day of his passing that it had taken 6 months to diagnose his bowel cancer, I knew this would be relevant to Neuroendocrine Cancer awareness, particularly important as it's one of the primary aims of my blog. I'm thinking the top viewing score to date is not because it mentioned Stephen Sutton (sad as that event was) but because the issues he faced are well known to Neuroendocrine Cancer patients, many of whom are readers. In the past week, the newspapers have published several follow up articles on…

13May 2014 by Ronny Allan 3 Comments

North of the wall is a dangerous place – you must never go there!

Living with Neuroendocrine Cancer

There was a 60 minute silence last night as another episode of Game of Thrones was aired. Not a Facebook post or tweet in sight. This has to be 'up there' in a list of the best TV series ever? Don't know about you but I'm sometimes confused about who is who and how they are related and/or connected! (see useful chart at the bottom of this post) Chris and I love the introduction bit. She likes the music, I like the geography. There are some obvious correlations there, e.g. 'The Wall' is meant to relate to Hadrian's Wall with those horrible barbarian Scots to the north :-) Thank God Hadrian's Wall and the climate in particular, isn't as bad as portrayed on GOT! I did contemplate using 'trousers' as…

11May 2014 by Ronny Allan 4 Comments

My treatment is a pain in the butt!

Living with Neuroendocrine Cancer, Treatment

This header is a bit 'tongue in cheek' (....did you see what I did there?) I'm very happy to have this treatment every 4 weeks - I can think of far worse scenarios. When I was first diagnosed, the dreaded word 'Chemo' was discussed. Actually, Chemo isn't particularly effective in treating Neuroendocrine Cancer, although I've heard of cases where it has made a difference. Today's letter is 'L' and there are a few. Lanreotide This is currently my mainstay treatment and I look forward to it once every 4 weeks. It is injected 'deep subcutaneous' in the upper outer quadrant of the buttock. Prior to my diagnosis, I was a tad squeamish when it came to injections, even the smallest would make me cringe and I couldn't bear to watch…

29Apr 2014 by Ronny Allan 4 Comments

Blogging is a full-time job – and I walked right into it!

Inspiration, Living with Neuroendocrine Cancer, Survivorship

The original postThis is a new skill so bear with me, please! The aim of this blog is to post a running commentary of a walk of Hadrian's Wall with my wife Chris.The walk commences 26 May 14 at Wallsend in East Newcastle and completes on the evening of 31 May 14 at Bowness-on-Solway.The walk is for two purposes:1. To raise awareness of Neuroendocrine Cancer2. To promote and fundraise for PLANETS Charity (Pancreatic, Liver And Neuroendocrine Tumours).As a lead-up to the actual walk itself, I'll be blogging daily with an A to Z of my life-changing experience together with any interesting stories arising from the training and preparation for the walk itself. During the period of the walk, the daily blogs will focus on progress along the route. I hope to…