Queen Mother of the Isle of Wight

Patient Advocacy
  Decided to do a one off today after reading a story published on 7 May on the PLANETS Charity Facebook page https://www.facebook.com/pages/PLANETS-Charity/122088044556397?fref=ts The is a story about a lady who was faced with one of the most deadly cancers - Pancreatic Cancer, where the 5 year survival rate has not risen for the last 40 years (another story for another time).  Young and fit people can struggle with this cancer and its treatment so it must be ultra tough at 83.  Her attitude and strength of character in facing up to this terrible disease is very inspiring to me and an example to all. My own cancer type is not as dangerous as this one.  However, I did have some fairly extensive surgery from the same surgeon and reading this story…
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What have the Romans ever done for us?

What have the Romans ever done for us?

Humour, Inspiration
"What have the Romans ever done for us?" Reviewed and updated 5th October 2021 .......... apart from better sanitation, and medicine, and education, and irrigation, and public health, and roads, and a freshwater system, and baths, and public order ....... 😊 (apologies to those not familiar with Monty Python stuff!) Well, they also left us the outstanding Hadrian's Wall which is the first topic of today's blog.  In January 2014, the oldest piece of paper in my 'in tray' was a newspaper article about the World Heritage Site of Hadrian's Wall - it was dated 28 Sep 2003 entitled 50 great things to do in Britain (it was second only to seeing Stonehenge at dawn).  As a history buff, I warmed to the idea of doing it but proceeded to…
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Who needs a gallblader anyway?

Who needs a gallblader anyway?

Diet and Nutrition, Treatment
We can survive without a gallbladder, but clearly it is a useful, functioning organ, and we are better off to keep it if we can. There are times when things can go wrong such as gallstones, sludge and blocked ducts, and then it may need to be removed. However……even though there wasn’t really anything wrong with my gallbladder in 2010/2011, I was convinced it had to go. You may have read previously that I receive a monthly injection of Somatuline Autogel (Lanreotide) which keeps me well.  The Lanreotide patient leaflet clearly states "Lanreotide may reduce gallbladder motility and lead to gallstone formation. Therefore, patients may need to be monitored periodically. There have been post-marketing reports of gallstones resulting in complications, including cholecystitis, cholangitis, and pancreatitis, requiring cholecystectomy in patients taking lanreotide. Fairly certain I could find a similar statement on the Octreotide leaflet. I also searched for studies and…
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F words

Patient Advocacy
[caption id="attachment_173" align="aligncenter" width="284"] Does my flush beat yours?[/caption] A few 'F' words today :-) Flushing In early 2010, I had been experiencing mild and infrequent warm feelings in my face and neck and I did notice a slight reddening whilst looking in a mirror when it occurred.  It was odd and nothing like I had experienced before.  I thought nothing of it, dismissing it as something to do with my age!  When I was going through the diagnostic phase some months later, the Consultant who carried out the initial set of tests was interrogating me (literally) for any clues which could help him pin down the nature of my problem (I now know he had evidence of cancer but not the type).   I ran through every single niggle…
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Exercise – it’s a free prescription

Patient Advocacy
[caption id="attachment_147" align="aligncenter" width="480"] Gorgeous Chris xxx[/caption] [caption id="attachment_146" align="aligncenter" width="700"] Check out my new Fat Face hat :-)[/caption]   My E Blog on 5 May 14. Exercise I'm no stranger to exercise having served for 29 years in Her Majesty's Forces.  However, I'm not 21 anymore and I have some health challenges.  Chris isn't 21 either - despite her youthful looks (brownie points...).  Some people are quite impressed by our commitment to walk 84 miles. However, I'm hoping that's going to be the easy bit as the training regime we are putting ourselves through has been hard work and time consuming.  Today we walked 12 miles with Chris suffering neck and back pain and me with a sore right toe.  This followed a 9.5 mile on Saturday and an 8…
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Diagnosis – I’m no longer in control

Diagnosis – I’m no longer in control

Awareness, Survivorship
The clouds are gathering. Diagnosis. The dreaded moment when you're looking at an Oncologist and waiting to be given some news. I'd been to a routine annual Asthma clinic, referred to my GP, referred to a specialist, had a bunch of tests, and now referred to an Oncologist.  There were many hints along the way. I felt in control. Rewind 2 months to May 2010......  I was happily working, getting stuff done, making things work. I had sufficient autonomy and freedom of manoeuvre.  I felt in control.  I'm happy as a pig in the proverbial!  My annual Asthma clinic comes along and it's an opportunity to work at home for the day....yahoo - no commuting! "Hi Ronny" - "Hi Liz". Blah Blah Blah. However, glad Liz was taking it seriously - I…
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The subject nobody wants to talk about

Patient Advocacy
There are quite a lot of words beginning with C so I'll only cover a few.   The Big C The subject which must not be discussed - or is it?  I read a useful article a month ago where the writer debated where we might be if, 50 years ago, we were as open about the 'big C' as we are now.  Nowadays you cannot turn a page in a newspaper without seeing a story of sadness, inspiration or medical science progress.  Certainly the latter is behind some of the change in thinking in a number of ways.  People are living longer and we now have much better tools to discover and treat Cancer (there I said it). Moreover, because we are more open about Cancer, there is more awareness.  According…
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Bournemouth Marathon

Patient Advocacy
  Hope you enjoyed the 'A' blog yesterday.  Some of you might also note I changed the previous blog titles to make them more catchy. Here's a few 'B's Bournemouth Marathon I once ran a marathon aged 28 in Verden West Germany 1984.  I was there defending the free world from Communism (ahem....). It was a tough gig even at that age and the training was even tougher.  I'm therefore delighted to announce that my old mate Steve Davis (pictured above), former Orienteering buddy and 'Quaff Club' member, has nominated my PLANETS Charity page as his chosen cause when he runs this event in Oct.  Cheers Steve - you're a very generous guy - maximum respect.  I'll drop off the gorilla suit shortly :-) Blood Tests I touched on this important topic…
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Army to the Rescue

Patient Advocacy
  I promised you an A-Z so here are some 'A' headlines: Agenda.  The walk is 84 miles long - Chris and I will be walking from East to West over 6 days as follows: 25 May - Staying with friends near Newcastle 26 May - Wallsend to Heddon-on-the-Wall (with Nick Naylor) 27 May - Heddon-on-the-Wall to Chollerford  28 May - Chollerford to Once Brewed (with Dave Taylor) 29 May - Once Brewed to Lanercost (nr Brampton) (with Jim Waterson) 30 May - Lanercost to Carlisle 31 May - Carlisle to Bowness on-Solway 1 Jun - Lazy breakfast in our lodgings and then head south homewards! Army I've had some amazing support from ex Army colleagues, not just a donation to the cause but also the use of their time and access to their contacts.…
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What’s it all about?

Patient Advocacy
My plan yesterday was to blog for 26 days using the alphabet A to Z as a guide for the content.  That would have taken me to 25th May, the day before my walk of Hadrian's Wall commences.   However, Chris and I were playing a game we used to play with our children on long car journeys "I can see something beginning with....."  On analysis, it appears I might struggle with certain letters!  Guess what....K, J, Q, U, X, Y and Z are not necessarily the problem!   I'm still intending to do this but may cover more than one letter in a single blog, thus now requiring less than 26 days in the lead up to the walk. You've probably heard the term "I'm not doing this for the good…
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Blogging is a full-time job – and I walked right into it!

Blogging is a full-time job – and I walked right into it!

Inspiration, Living with Neuroendocrine Cancer, Survivorship
The original postThis is a new skill so bear with me, please!  The aim of this blog is to post a running commentary of a walk of Hadrian's Wall with my wife Chris.The walk commences 26 May 14 at Wallsend in East Newcastle and completes on the evening of 31 May 14 at Bowness-on-Solway.The walk is for two purposes:1.   To raise awareness of Neuroendocrine Cancer2.  To promote and fundraise for PLANETS Charity (Pancreatic, Liver And Neuroendocrine Tumours).As a lead-up to the actual walk itself, I'll be blogging daily with an A to Z of my life-changing experience together with any interesting stories arising from the training and preparation for the walk itself.  During the period of the walk, the daily blogs will focus on progress along the route.  I hope to…
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