RonnyAllan.NET – Newsletter 1st June 2020

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Newsletters have returned!

I ceased publication of monthly newsletters over a year ago, mainly because they were time consuming to compile and the impact was less then my average post in terms of feedback.  However, since going into COVID-19 lockdown, I’ve given that some more thought.  Going forward, I’ll be sending you out a newsletter each month including an email version as soon as I can get my mailing system software up and running (I’ve been busy during lockdown!)  

Coping with lockdown

During April and May, I decided that I wasn’t going to hide away during lockdown despite the fact that I see myself as someone at risk, not just because of the Neuroendocrine Cancer but also due to a history of chest infections and mild asthma.   Mental health can be as important as physical health in times of stress and anxiety so I took to the outdoors to tell my story of how I was coping.  If course the outdoors is also a garden (yard) and so that counts too!

Back in March I told the story of my own symptomatic period and perhaps one day I might find out if I have antibodies when I’m tested accordingly.  You can read this COVID-19 diary by clicking here.

I’m not quite finished my April/May series of ‘coping’ articles but I compiled them here for you below – enjoy!

Out of Isolation - Article 1
The bench walk
A story of injection, hair cut and a broken tooth
A story of bikes, ponies, wisteria and Vitamin D 
A story of greenery, sun, adventure and Irrfan
A story of footpath etiquette, sheep, donkeys and dopamine
A story of swans, cycling, VE Day and my 124th monthly cancer treatment
A story of nurses, trees and Canada
Article 9 awaiting publication
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Routine Living

Much of the time was spent in the house and new or increased activity included, sitting in the garden (fortunately we have had very good weather in UK), watching TV and box sets, reading, short walks (the longer ones are mainly compiled above). One new thing was online quizzes with the family and video conferencing with relatives rather than phone calls.  Chris’s mum is in a care home and they are on total lockdown, no visitors. Chris was so pleased when they instigated video calls.  I did quite a bit of searching and research on online shopping and I managed to get some grocery slots.  I will not be going into town or shopping for a while yet. Chris sometimes shops but we have a very strict decontamination procedure and a whole room devoted to temporarily isolating  that don’t need to go into fridge or freezer – everything is washed or wiped. This also happens with mail.  It’ll be a while yet before we relax this routine.

Website and Social Media updates

Some of you will have noticed I’ve reduced my Facebook pages from 5 to 2 and this is how I’ll operate going forward.  These Facebook pages are really the social front end to my website – RonnyAllan.NET

Some of you will also have noticed a change in the layout of my website to include more menus for easier navigation and more sharing buttons to help you share my work.  Thanks if you’re using them already  If you wanted to practice, you’ll see them at the top and bottom of this newsletter – share away!

I’m quieter on twitter which is currently quite depressing – I hadn’t realised how many trolls there are out there but I guess many people are quite frustrated by COVID-19.

I’m working on an A to Z facility and it’ll probably take me some months to complete.  It’s quite usable if you just wanted to find an article containing a particular term.  I’m having some technical difficulty with the functionality and need to find time to populate the terms but take a look to see if it’s any use to you now.  Click a term and it will currently take you to the posts containing that ‘tag’.  The A to Z of Neuroendocrine Cancer

Blog Stats
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External work

  • I continue to be contacted by external organisations for some input. I shared a NET survey earlier in May, this came from an unexpected source (WEGO Health) and a sign that our disease is becoming more well known in non-NET circles.
  • Early in the lockdown, I was interviewed over the telephone by a Pharma company after writing an article about their product currently in clinical trials. This was a surprise call but was happy to help.  I think it’ll be appearing in their company newsletter and will try to get a copy to show you.
  • I’m being contracted to make a short patient video about coping with living under COVID-19. If that comes to fruition, I’m sure you’ll get to see it. Stay tuned.
  • I’ve been invited to take part in an online NET conference organised by the Middle East NET Society (MENETS). This is a virtual online event where the speakers will be well known NET Specialists and patients.  I think my talk is centred around “Patient Orientation”. MENETS is in the process of validating schedules and will be ready to publish the initial agenda by the end of July 2020. In the meantime, you can save the date – click here for more details.  Very grateful to my friend Mike Rosenberg for inviting me to speak and for adding my website alongside other illustrious organisations on the MENETS website.  I met Mike in Barcelona – he still owes me a Creon! 

Thanks for all your support in May 2020, it’s really much appreciated

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Tag Cloud (Click to see posts tagged)
5-Fluorouracil (5-FU) 5-HIAA 5-HT 5-HT3 5-HT3-RA 5-HTP 5-Hydrotryptophan (5-HTP) 5-Hydroxyindoleacetic Acid (5-HIAA) 5-Hydroxytryptamine (5-HT) 18F-FDG 18F-FDOPA 24-Hour Urinary Catacholamines and Metanephrines 64Cu-DOTATATE 68Ga-DOTATOC 68Ga-FAPI PET/CT 68Ga-OPS202 68Ga-PSMA-R2 92 Gene Assay 111In-DTPA-D-Phe1 123I-Metaiodobenzylguanidine (mIBG) 131I-Metaiodobenzylguanidine (mIBG) 177Lu-DOTA-EB-TATE 177Lu-Edotreotide (Solucin®) 177Lu-PSMA-R2 177Lu OPS 201 212Pb-AR-RMX Ac-225 Achlorhydria Acid reflux Acromegaly Actin Addisons disease Adenocarcinoma Adenoma Adhesions Adjuvant surgery Adrenal glands Adrenaline Adrenal insufficiency Adrenal medulla Adrenocortical Carcinoma (ACC) Adrenocorticotropic Hormone (ACTH) Advanced Neuroendocrine Cancer AdVince Afinitor Albumin Alcohol Alcohol flushing reaction ALDH2 Aldosterone Allergies Alopecia Alternative medicine Alternative therapies Ambulatory Lung Biopsy Service American Society of Clinical Oncology (ASCO) Amines Amino acids Amylase Anaphylactic shock Anaplastic Androgrens Anti-angiogenic therapy Antiacids Antibiotics Antidepressants Antihistamines Anxiety Appendiceal NET Aretha Franklin Ascending colon Asthma Atezolizumab (Tecentriq) Atrophic gastritis ATRX Autosomal dominant Avelumab Avistan Axid (Nizatidine) Axillary nodes AZEDRA B3 B12 BAM Barrett's Esophagus Bavencio Benign Benign NET Benign tumour Bevacizumab Biased agonist Bile acid diarrhea Bile acid malabsorption Bile acids Bile acid sequestrants Bile salt Biliary tract cancer Biological therapy Biopsy Bland liver embolization Blood brain barrier (BBB) Blood clot Blood glucose Blood test Blood thinner Blue Book Blushing Bone metastases Bowel cancer Bowel obstruction Bowel surgery Bradykinin Brain serotonin Brain tumour Breast cancer Breast NEN Broken capillaries Bronchial NETs Bronchoscopy Butt Dart C-peptide CA4P Cabometyx Cabozantinib Calcitonin Calcitonin gene-related peptide (CGRP) Calcium Camera pill Cancer Cancer anger Cancer causes Cancer grading Cancer of unknown primary (CUP) Cancerous tumour Cancer registries Cancer research Cancer staging Cancer surveillance Cancer survivor Cancerversary Capecitabine (Xeloda) CAPecitabine TEMozolomide (CAPTEM). Capsule Endoscopy Carbocaine Carboplatin Carcinoid Carcinoid crisis Carcinoid heart disease Carcinoid rage Carcinoid syndrome Carcinoid tumour Carcinoma Cardiopulmonary hemodynamic instability Carney complex Catecholamines CB-839 CDKN1B Cerebellum Chemo bath Chemotherapy Chinese dumplings Cholecalciferol Cholestyramine Chromaffin cells Chromogranin Chromogranin A (CgA) Chromogranin B (CgB) Chromogranin C (CgC) Chronic condition Cimetidine Cisplatin Cisplatin/Etoposide CLARINET Clexane Clinical trial CLO test Coeliac disease Cognitive behavioural therapies (CBT) Colon cancer Colonoscopy Colony Stimulating Factor-1 Receptor (CSF-1R) Colorectal cancer Combretastatin A-4 phosphate (CA4P) Cometriq Comorbidity COMPETE trial Complete blood count (CBC) Complex regional pain syndrome (CRPS) Constipation CONTROLNETS COR-003 COR-005 Core Biopsy Coronavirus Corticotrophin Releasing hormone (CRH) Cortisol COVID-19 Creon CRN00808 CRN01941 Crohn's Disease Cryoablation CT enterography CT guided aspiration CT scan Curative surgery Cushing's disease Cushing's syndrome Cyberchondria Cytoreductive Cytotoxic C‑Reactive Protein (CRP) Dag Kittlaus Dave Thomas DAXX Degenerative bone disease Denial Depression Dermal Fibrosis Dermatitis Desmoplasia DEXA Scan Dexilent Dexilent Solutab Dexlansoprazole Diabetes Diagnosis Diarrhea Diet Dietary Fibre Differential Diagnosis Differentiation Digestive Enzymes Distal Pancreatectomy Distant Metastatis Diverticular Disease DNA Do no harm Dopamine Dopamine Receptor D-2 (DRD2) Dopamine Receptors DOTANOC DOTATATE DOTATOC DP1038 Dr Google Dry skin DUNE Trial Durvalumab Dwight D. EISENHOWER Dysbiosis Early Diagnosis ECG Echocardiogram Eczema Edotreotide EGFR Electrolytes ELECT Study Elelixis Eliquis Endocrine Endocrine Cells EndolucinBeta Endoscopic Retrograde Cholangiopancreatography (ERCP) Endoscopic Ultrasound Endoscopy ENETS enlarged thyroid gland Enterade® Advanced Oncology Formula Enterochromaffin cells Enucleation EPAS1 Epidemiology Epidermal Growth Factor Receptor Epinephrine Epi Pens Erythematotelangiectatic Rosacea (ETR) Erythrocyte Sedimentation Rate (ESR) Esomeprazole Esomeprazole Magnesium Estrogen Ethanol Etoposide EUS Everolimus Exocrine Function Exocrine Pancreatic Insufficiency Exocroine Cells Explorer PET Scan Explorer Scan Eye Angiomas Facebook FACT-G Familial Medullary Thyroid Carcinoma (FMTC) Familial NETs Famotidine Fasting Gut Endocrine Profile Fatigue Fat Malabsorption Fat Soluable Vitamins FDA Fecal Elastase Test Fecal Fat FH Fibre Fibroblast Growth Factor Receptor (FGFR) Fibrotic Reaction Fight or Flight Financial Toxicity Fine Needle Aspiration Fluoro-18-L-Dihydroxyphenylalanine Fluoropyrimidine Fluorouracil (5-FU) Flushing FMTC FNA Biopsy FODMAP FOLFOX Follicular FOMO Food allergy Food Reactions Foregut NETs Fosbretabulin tromethamine Full blood count (FBC) Functional Tumours Fundraising Ga68 PET Ga68-DOTA-JR11 Ga68-DOTATATE Gallbladder Gallium 68 Gallium 68 Pet Scan Gamma Camera Gastric NETs Gastrin Gastrinoma Gastrin pH Gastro-Entero-Pancreatic Neuroendocrine Tumors Gastroenterology Gastrointestinal NETs Gastroscopy Gelfoam strips Generators Gene Testing Genetics Genito-urinary NETs GEPNETs GERD Germline Genetic Mutations Gingseng Glucagon Glucagonoma Glycated Hemoglobin (A1C) Goitre Gonadotropin-Releasing Hormone (GnRH) G protein-coupled receptors (GPCR) Grade Grading Granulinoma Graves’ disease Growth Hormone Gut Gut Flora Gut Microbiota Gut Serotonin H2 Blockers H2 Receptor Blockers H2RA Haemangioblastomas Haemoglobin Hair Loss Hashimoto's Disease HbA1c Headaches Head and Neck Cancer Heart Disease heat intolerance Hedgehog Pathway Blockers Hedinger Syndrome Heimlich Valve Helicobacter Pylori Hemoglobin Hepatic Arterial Embolization Hereditary Cancer Hereditary Pheochromocytoma/Paraganglioma Syndromes high-intensity focused ultrasound (HIFU) High Grade NET High Grade Neuroendocrine Neoplasm Hindgut NETs Histamine Histamine Receptor 2 Antagonist Histone Deacetylase Inhibitors Hodgkin's Lymphoma Holidays Homezone Hormonal Crisis Hormones Hormone Therapy Hospice Care Hotspots HPA Axis Human Gut Microbiota Hurthle Cell Hydrocele Hydrocelectomy Hydrogen Breath Test Hydronephrosis Hyperadrenergic State Hypercalcemia Hypercortisolism Hypergastrinemia Hyperglycemia Hyperinsulinism Hyperparathyroidism Hypertension Hyperthermic Intraperitoneal Chemotherapy (HIPEC) Hyperthryroidism Hypocortisolism Hypoglycemia Hypokalemia Hypotension Hypothalamus Hypothyroidism IBS IBS-C IBS-D IBS-M iCancerVirus ICD ICD-O IGF-1 Ileum Surgery Illegal Drugs Image Guided Biopsy Imipridones Immunotheraphy Immunotherapy Imodium INCA Incidence Incomplete emptying Incurable but Treatable Incurable Cancer Indium 111 Inflammatory Bowel Disease (IBD) Injection Insulin Insulinoma Intelligent Patients Intermediate Grade NETs International Classification of Diseases for Oncology Inter Science Institute Interstitial laser ablation Interventional Radiologist Interventional Radiology Intestinal Ischaemia Intra-abdominal Ultrasound Intra-operative chemotherapy Intranasal administration Intraoperative Hypertensive Crisis Intraoperative radiotherapy (IORT) Invisible Disease Iobenguane I 131 Ipilimumab Ipsen Ipsen Assist Ipsen Homezone Irinotecan Iron Deficiency Anemia Irreversible Electroporation Irrfan Khan Irritable Bowel Syndrome (IBS) Islet Cells Islets of Langerhams Jaundice JR11 Kallikreins Karzinoide Ketogenic Diet Keytruda Ki-67 Lactulose Lanreotide Lansoprazole Laparoscopic Surgery Large Cell Neuroendocrine Carcinoma Late Diagnosis LCNEC Lenvatinib Lenvima Leukemia Level 4 Lower Jugular Group Levoketoconazole Levothyroxine Lipase Liquid Biopsy Liver Liver Biopsy Liver Directed Therapy Liver Embolisation Liver Metastases Loperamide Low FODMAP Low Grade NETs Lu-177 Lung Cancer Lung NETs Lung Nodules Lutathera Lutathera-177 (177Lu)-DOTATATE Luteinizing Hormone (LH) Lutetium 177 (Lu-177) LUTIA Trial Lymphadenectomy Lymphatic System Lymphedema Lymph Nodes Lymphoma Malabsorption Malignant Mammalian Target of Rapamycin (mTOR) Mammogram MANEC Marcaine Mast Cells Mastocytosis MDH2 Medical Food Medicines and Healthcare Products Regulatory Agency Medullary Thyroid Carcinoma Melanoma Melatonin MEN MEN1 MEN2 MEN2A MEN2B MEN4 Meningioma MENX Merkel Cell Carcinoma Mesenteric Disease Mesenteric Lymph Nodes Mesenteric Root Dissection Mesentery Metanephrines Metastatic Neuroendocrine Cancer Metronidazole MIBG Microsatellite Instability High Midgut Midgut NETs MiNEN Minerals Miotic Count Misdiagnosis Mobile Administration Program Novartis Molecular Markers Monoamine oxidase inhibitors (MAOIs) MRI Scan MSH-H MTD201 mTOR Inhibitor Multidisciplinary Team Multikinase Inhibitor Multimodal Treatment Multiple Endocrine Neoplasia (MEN) Multiple Myeloma Multi TKIs Multivitamins Mycappsa Myeloma NANETS National Cancer Institute Nausea NCT02693067 NEC Neil Pearce Neoplasm NET NET Cancer NET Cancer Day NET Centre of Excellence NETDetect NETest NET Markers NET Patient Foundation NET Research Foundation NET Specialist Nurse NETSPOT NET Syndromes NETTER-1 NETTER-2 Neuroblastoma Neuroedocrine Neoplasms Neuroendocrine Neuroendocrine Cancer Neuroendocrine Carcinoma Neuroendocrine Neoplasms Neuroendocrine Tumors Neuroendocrine Tumour Neuroendocrine Tumours Neurofibromatosis Type 1 (NF1) Neurokinin A (NKA) Neuropeptide K Neurotensin Neurotransmitters Nexium Nexium 24 HR Nexium IV NF1 NHS NICE Nick Robinson Nivolumab Nizatidine NKA No-Carrier-Added Lutetium-177 Nodules Noid Non-Functional Tumours Non-Small Cell Lung Cancer Nonpeptide Noradrenaline NORDIC NEC Study Norepinephrine Novartis Novocaine NT-proBNP Nuclear Medicine Nuclear Scan Nurses Nutrition Nutrizym Octreoscan Octreotide Octreotide-RP Octreotide Acetate Octreotide Scan Octreotide Soak Ocular Rosacea Olivia Williams Omega 3 Omeprazole Omeprazole and Sodium Bicarbonate ONC201 Oncoceutics Oncologists Oncolytic Immunotherapy Oncolytic Virus Ondansetron OPDIVO Ops 201 Ops 202 Ossteoblastic Activity Osteoporosis Ovarian Cancer Ovarian NETs Overactive Thyroid Overdiagnosis Overdiagnosis Oxaliplatin (Eloxatin) Oxigene Oxitriptan Palliative Care Palliative Treatment Palpitations Pancreas Pancrease Pancreastatin Pancreatic Adenocarcinoma Pancreatic Cancer Pancreatic Enzyme Replacement Therapy Pancreatic Insufficiency Pancreatic NET (Pan NET) Pancreatic NETs Pancreatic Polypeptide (PP) Pancreatic Uncinate Process Activity Pancreatin Pancreoprivic Diabetes Pancrex Pantoloc Control Pantoprazole Papillary Papulopustular (acne) Rosacea Paraganglia Paraganglioma Parathyroid Parathyroid NETs Partoid Gland NETs PAS Pasireotide Patent Foramen Ovale Pathology Patient PD-1/PD-L1 Inhibitors PDR001 Pellagra Pembrolizumab Pemetrexed PEN-221 Pentetreotide Pepcid Pepcid AC Peptide Receptor Radionuclide Therapy Peptides Peritoneal Carcinomatosis Pernicious Anaemia PERT Pheochromocytoma Physicians Physiological Uptake PI3K Inhibitors Pituitary Adenoma Pituitary Gland Pituitary NETs Pituitary Tumours PLANET Plasma 5HIAA Plasma Somatostatin Like Immunoreactivity Plasma Viscosity Platelet-derived Growth Factor Receptor (PDGFR) Platinum Pleural Fibrosis pNET Poker Face Poorly Differentiated Post Operative Seroma PostOperative Seroma PPoma PRCRT Pre-Diabetic Pre-existing conditions Pressor Amines Prevacid Prevacid 24-Hour Prevacid IV Prevalence Prilosec Prilosec OTC Probiotics Prognosis Prognostics Progressive Cancer Proinsulin Proliferative Rate Prostaglandins Prostate Cancer Prostrate Cancer Proteasem Creon Proteasome Inhibitors Protein ARX Protein Kinase Inhibitor Protein PDX1 Protonix Proton Pump Inhibitors (PPI) Provectus Biopharmacutaicals Inc PRRT Pruritus Pseudomyxoma peritonei (PMP) Public Health England Pulmonary Embolism Pulmonary Fibrosis Pulmonary NETs Pustule PV-10 Q-Octreotide Q-Sphera Quality of LIfe (QoL) Rabeprazole. Aciphex RADIANT Radioactive Iodine Radioembolization Radio Frequency Ablation (RFA) Radioimmuotherapy Radioiodine Radiolabelled Somatostatin Analogue Radionuclides Radiopeptide Radiotherapy Rage RaniPill Rani Therapeutics Ranitidine rapid pulse Rare Cancer Rare Disease Rare Solid Tumors Rashes RB1 Recklinghausen's Disease RECORLEV (levoketoconazole) Rectal Cancer Rectal NETs Remission Renal Cell Carcinoma (RCC) Renal Insufficiency RET Retroperitoneal Fibrosis Retroperitoneal Reaction Retroperitoneum Rhinophyma Right Hemicolectomy Robin McGee Ronny Allan Rosacea Rose Bengal Sandostatin LAR SANET SANET-ep Sapanisertib Satoreotide Scanning Scans Scanxiety SCF Nodes Scleroderma SCNEC SDHA SDHAF2 SDHAF2(SDH5) SDHB SDHC SDHD SEER SEER 2004 SEER 2012 Selective Internal Radiotherapy (SIRT) Selective Serotonin Reuptake Inhibitors (SSRIs) Seretide Serotonin Serotonin and norepinephrine reuptake inhibitors (SNRIs) Serotonin Syndrome Serum Ferritin Serum Serotonin Setrons SIBO Side Effects Siegfried Oberndorfer Sigmoidoscopy Signifor Silent Cancer SiNETs SI NETs Skin Fibrosis Skin NETs Small Cell Lung Cancer Small Intestine Bacterial Overgrowth (SIBO) Small Intestine NETs Snake Oil SNMMI Social Media Society of Nuclear Medicine and Molecular Imaging Solid Tumors Solucin SOM230 SomaKit TOC Somatoprim Somatostain Receptors (SSTR) Somatostatin Somatostatin Analogues Somatostatinoma Somatostatin Receptors Somatostatin Receptor Scintigraphy (SRS) Somatuline Somatuline Autogel Somatuline Depot SONICS Trial Spartalizumab Specialist Nurse SPECT Spider Veins SPINET Splenosis Splenuniculi Squamous Cell Carcinoma SSTR SSTR-PET SSTR2 St. John's wort Stable Cancer Staging Steatorrhea Stem Cell Factor (c-KIT) Stem Cells Stephen Sutton Sternoclavicular joint Steve Jobs Stomach Cancer Stomach Cramps Stomach Ulcers Streptozotocin (Zanosar) Stress Subpectoral lymph nodes Substance K Substance P Sugar Sugar and Cancer Sulfatinib Sunitinib Superior Mesenteric Artery Superior Mesenteric Vein Supplements Supraclavicularfossa Supraclavicularfossa (SCF) lymph nodes Surgeons Surgery Surgical Risks Surufatinib Surveillance Survivor Survivorship Sutent SUV Sweating Sweet's Syndrome Symptoms Syndromes T3 T4 Tachycardia Tachykinins Tachykinins (Substance P) Tagamet Tagamet HB TALENT Trial Tara Whyland Targeted Alpha-emitter Therapy (TAT) Targeted Alpha-emitter Therapy (TAT) – 212 Pb-AR-RMX Targeted Therapy Tecentriq Telangiectasia Telotristat Ethyl Temozolomide (Temodal) Terminal Cancer Terminal Ileum Testicular Cancer Testosterone Tetracycline The 5 E's The Nurse Home Health Administration Program The Queen Elizabeth Hospital Adelaide Theranostics Thymic NET Thyroid Thyroid Biopsy Thyroid Cancer Thyroiditis Thyroid Lesion Thyroid NETs Thyroid Stimulating Hormone (TSH) Thyroxine (T4) TKI TNM Toripalimab Total Gastectomy Total Pancreatectomy TP53 TPH1 TPH2 Transarterial chemo embolization (TACE) Transarterial Embolization Transarterial Embolizaton (TAE) Transarterial Radio Embolization (TARE) Tremelimumab Tricyclic Antidepressants Triiodothyronine (T3) Tryptophan Tryptophan Hydroxylase TSH Tuberous Sclerosis (TS) Tumor Board Tumour Markers Tumour Mutational Burden (TMB) Type 1 Diabetes Type 2 Diabetes Type 3c Diabetes Type 3c Diabetes Mellitus (T3cDM) Typical Lung NET Tyramine Tyrosine Kinase Inhibitor U.S. National Institutes of Health UKINETS Ulcerative Colitis Ultrasound Scan Underactive Thyroid Unmet Needs Unresectable Neuroendocrine Tumours Ureter US FDA Vanillylmandelic acid (VMA) Vascular Vascular Disrupting Agent (VDA) Vascular Endothelial Growth Factor (VEGF) Vasoactive Amines Vasoactive Intestinal Peptide (VIP) Vasoactive Peptides Vasodilation Verner-Morrison syndrome Vertebral haemangioma VIPoma Vitamin ADEK Vitamin B12 Vitamin D Vitamin D3 Von Hippel-Lindau (VHL) Syndrome Water Soluble Vitamins WDHA WEGO Health Weight Loss Well Differientiated Wermer Syndrome Wheezing Whipple's Procedure White blood count (WBC) WHO WHO 2019 Wilko Johnson World Health Organisation XERMELO Yttrium 90 (Y90) Zantac Zebra Zinc ZOFRON Zolendronate Zollinger-Ellison Syndrome

2 thoughts on “RonnyAllan.NET – Newsletter 1st June 2020

  • Alison mcclure

    Hey Ronny, Paul here myself and Allie share the same email so it may show as Alison in comments.
    I just wanted to say your posts and photos during this covid 19 have been uplifting, motivational and interesting for us all to read and a great example in how you have handled living through this crisis. I feel your work and sharing on living with Neurodocrine cancer is incredible and we cannot help but pick up on the FUN you and Chris have had on your various days out.

    Thank You
    Paul & Allie

I love comments - feel free!

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